Kerry Newnham (@squashedhedgi) 's Twitter Profile
Kerry Newnham

@squashedhedgi

Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green

ID: 226659026

calendar_today14-12-2010 18:53:09

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FoundMyFitness Clips (@fmfclips) 's Twitter Profile Photo

The harder you exercise, the healthier your mitochondria become High-intensity workouts are uniquely powerful at activating mitophagy (clearing damaged mitochondria) and mitochondrial biogenesis (creating fresh mitochondria) These adaptations keep mitochondria efficient,

Long Covid Advocacy 💙 (@longcovidadvoc) 's Twitter Profile Photo

🧪Fascinating study funded by ME Research UK Identifying 4 distinct phenotypes in women with ME, Fibro, both & healthy controls With this illnesses being often confused, minimised & misdiagnosed 👉 this could lead to accurate biomarkers #medtwitter 🖇️ tinyurl.com/e3vxx9e9

🧪Fascinating study funded by ME Research UK

Identifying 4 distinct phenotypes in women with ME, Fibro, both & healthy controls

With this illnesses being often confused, minimised & misdiagnosed

👉 this could lead to accurate biomarkers #medtwitter

🖇️ tinyurl.com/e3vxx9e9
Kerry Newnham (@squashedhedgi) 's Twitter Profile Photo

Rather than the delivery plan being an, in the end, *3+-year* task force to deliver, finally, for people with lives devastated by the illness M.E & its poor care, I think it was used more as a way to keep people with M.E. quiet until decodeME published, expected now before August

Saul Staniforth (@saulstaniforth) 's Twitter Profile Photo

BBC News: "More than 300 members of the foreign office staff who signed a letter raising their concerns about UK policy towards Israel over its conduct in Gaza have been told by civil service leaders .. they could resign" Rivkah Brown at Novara Media broke this story 5 days ago

Lou Today (@louise_today) 's Twitter Profile Photo

'Reframing beliefs about their illness does not lead to recovery of tube-fed patients with very severe ME/CFS. Analysis of the BMJ article by Miller et al' papers.ssrn.com/sol3/papers.cf…

Kerry Newnham (@squashedhedgi) 's Twitter Profile Photo

Who are "the powers that be" in this context? #mecfs #severeME #seid From a meeting feb 2025 meassociation.org.uk/wp-content/upl…

Who are "the powers that be" in this context?  #mecfs #severeME #seid 

From a meeting feb 2025 

meassociation.org.uk/wp-content/upl…
nature (@nature) 's Twitter Profile Photo

A man with a severe speech disability is able to speak expressively and sing using a brain implant that translates his neural activity into words almost instantly. go.nature.com/4mXv8yM

Long Covid Advocacy 💙 (@longcovidadvoc) 's Twitter Profile Photo

This again is current & is run with BACME lead Anna Gregorowski. There are many confusing names for psychosomatic illness due to it's toxicity. But it's essentially treating children with ME as an MUS, or complex conditions, or perplexing presentations /10

Sjögren's Foundation (@sjogrensorg) 's Twitter Profile Photo

📢 It’s official: The name change to Sjögren’s disease is now published in Nature Reviews Rheumatology! This milestone pushes global adoption in research, care, & education. We urge everyone to update references & use “Sjögren’s disease” moving forward. 🔗sjogrens.org/blog/2025/name…

📢 It’s official: The name change to Sjögren’s disease is now published in Nature Reviews Rheumatology! This milestone pushes global adoption in research, care, & education. We urge everyone to update references & use “Sjögren’s disease” moving forward.
🔗sjogrens.org/blog/2025/name…
Adam (@abrokenbattery) 's Twitter Profile Photo

Clip from Flying Doctors S09E24 (1992) Matt is diagnosed with #MECFS. He’s told it has many names and potential causes — but it’s real and rest is essential. #FlyingDocsMECFS

Putrino Lab (@putrinolab) 's Twitter Profile Photo

Wanted to put forward a thread about #PEM since there have been some new developments and also because I just need to get some of this out of my head and work through it. Folks with infection- and exposure-associated chronic illnesses (IACIs) like #LongCOVID, #MECFS, 1/

Putrino Lab (@putrinolab) 's Twitter Profile Photo

will tell me that exercise helps their patients with PEM, and this is the point where I reiterate: not without rehabilitation first. POTS and other dysautonomias can frequently drive PEM, and according to the AAPMR and others, as many as 70% of people with IACIs may meet 16/

Clare (@clrblwrs) 's Twitter Profile Photo

Simon Wessely rewarded for his role during the Covid pandemic. What exactly was his role behind the scenes? In March 2020 he offered to go into the BBC Radio 4 Today studio despite his wife Clare Gerada being infectious with Covid. Then... (continued)

Francisco Ribeiro (@fraveris) 's Twitter Profile Photo

"Through the open window the voice of the world's beauty came whispering, too soft to be heard precisely what it said, but what did it matter if the meaning was clear?" [Virginia Woolf - To the Lighthouse] Jack Saylor Room by the sea

"Through the open window the voice of the world's beauty came whispering, too soft to be heard precisely what it said, but what did it matter if the meaning was clear?" 

[Virginia Woolf - To the Lighthouse]

Jack Saylor  Room by the sea
Todd Davenport (@sunsopeningband) 's Twitter Profile Photo

Lyrical Owl I think it's easier and more accurate to not focus on the activity limitations and the symptoms but instead to describe PEM as an impairment in activity recovery. This helps us start to disentangle these several overlapping concepts a bit.

a tired human (@saffronandsky) 's Twitter Profile Photo

Tho I am approximately half her age, my 88-year-old aunt who is dying of cancer has much higher functionality and a much higher quality of life than me. This is one helluva illness. #verysevere #longcovid #pwme