SheenaCunniffe
@shemairu
Director of things • Wife • Mum • Glut1UK Trustee • Wannabe plantswoman | Ask a busy person.. Views my own
ID: 270311507
22-03-2011 11:35:53
92 Tweet
22 Takipçi
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Don’t buy your fridge from John Lewis, arrives damaged and no one wants to know. “Phone Samsung Electronics” they say. Arrived Monday 13th and still sitting in my living room. New kitchen damaged Samsung Electronics fridge. Poor show
Not so amazing Aldi Stores UK order placed online on 11th November still not received. Emailed and phoned twice and customer services told me it would be delivered... still not sorted... what now?!
on Rare Disease Day we are proud to announce the launch of a new parent led charity to support Glut1 Deficiency Syndrome. The number of people with Gluts1DS worldwide is in the hundreds with around a hundred diagnosed in the UK and Ireland. #RareDiseaseDay2021
Did you catch us on BBC Breakfast this morning? We worked with the incredible @sameermzuberi and his team at Royal Hospital for Children, Glasgow to showcase how the service is instrumental in assisting early diagnosis to help children and families like Archer's! Thank you so much to everyone involved!💙