🚨 In case you missed it: King’s team featured on BBC Breakfast as part of the launch of the Longitude Prize on ALS a £7.5M challenge to harness AI & big data for discovering new treatments for ALS/MND. Huge potential for impact! 💡🧠💊 #MND #AI #DrugDiscovery

A big thank you to ALS Care & Support India for organising Global Awareness day along with AIIMS, New Delhi 🇮🇳. These kind of forums bring hope that soon will have a cure, more clinical trials and #ALS clinic in india DD News All India Radio News Jagat Prakash Nadda Ministry of Health Agam Jung

#Neuralink will soon work for #ALS patients to communicate . Isn’t technology fantastic. Thank you Elon Musk

Good News for #ALS community in India . AIIMS, New Delhi 🇮🇳 is soon going to start ALS clinic with multidisciplinary doctors team. Thank you ALS Care & Support India for organising the Gobal Awareness Day Ministry of Health DD News Zee News NDTV All India Radio News Target ALS

This is super awesome. Being a #MND #ALS patient & an Advocate, such news gives lot of hope. May we soon find a cure. #AI is definitely a game changer The ALS Association ALS Advocacy ALS Care & Support India Target ALS Ministry of Health AIIMS, New Delhi 🇮🇳 Zydus Lifesciences Ltd. Jagat Prakash Nadda

India has 75000 cases of #ALS patients. survive 2-5 year max. This disease doesn’t have a cure, no clinical trials in India, no therapy available, people just die. @Tofersen is approved drug for SOD1 ALS but not in India. Ministry of Health ALS Care & Support India Target ALS Jagat Prakash Nadda

On this day 86 years ago, Lou Gehrig gave his iconic “Luckiest Man Alive” speech at Yankee Stadium — just weeks after his ALS diagnosis. We’re forever grateful to Lou for helping bring awareness to ALS. His legacy lives on forever. 💜

Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪

.Dr. Marty Makary FDA Biologics Secretary Kennedy, as a physician with ALS, I’m pleading for justice morningstar.com/news/accesswir… Survival data have long been the gold standard for FDA approvals; and as Marty Makary MD, MPH has emphasized: "gold standard science and common sense" will guide this FDA's

A Citizen Petition was submitted to the FDA requesting a new review of data supporting NurOwn®. We remain focused on advancing the ENDURANCE Phase 3b trial and exploring pathways that could bring meaningful options to people living with #ALS. Here: bit.ly/4nArET5

More than 75k patients of #ALS in India . Why no treatment yet? Why no research in India ? Why no hope? Why Tofersen for #SOD1 not approved here?Just like cancer treatment/therapies why can’t we have better facilities. AIIMS, New Delhi 🇮🇳 ALS Care & Support India Target ALS ALS Advocacy

Thank you Dr. Marty Makary to talk about neuro degenerative diseases which needs attention. #ALS treatments need attention. Faster approval to save lives Ministry of Health Jagat Prakash Nadda AIIMS, New Delhi 🇮🇳

Urging indian government to approve Tofersen in India too. Make it accessible and affordable. People with SOD1 ALS don’t have time to wait. CDSCO_INDIA_INFO Ministry of Health AIIMS, New Delhi 🇮🇳 ALS Care & Support India Jagat Prakash Nadda Anupriya Patel PMO India ALS Advocacy MND Campaigns

Indian parliament discussion be like …… We need Tofersen for treating SOD1 #ALS . Cure ALS ALS Care & Support India ALS Advocacy AIIMS, New Delhi 🇮🇳 Ministry of Health CDSCO_INDIA_INFO Jagat Prakash Nadda Anupriya Patel MND Association Target ALS Agam Jung Asha Ek Hope

It’s been more than 2 plus years that Tofersen Biogen has been approved by FDA to treat SOD1 #ALS but unfortunately not approved in India nor it’s available under EAP program. Hope for an approval ALS Care & Support India Ministry of Health CDSCO_INDIA_INFO Jagat Prakash Nadda DD News AIIMS, New Delhi 🇮🇳

Requesting Govt of India to approve Tofersen Biogen for SOD1 #ALS patients. #timeismeltingaway AIIMS, New Delhi 🇮🇳 Ministry of Health PMO India DD News Zee News NDTV Jagat Prakash Nadda Anupriya Patel ALS Care & Support India Target ALS ALS Advocacy MND Association MND Campaigns

A group of Veer Naris and widows of fallen soldiers called on President Droupadi Murmu at Rashtrapati Bhavan. This interaction was organised by the Army Women’s Welfare Association.

Sharing my thoughts with Yorkshire Evening Post⁩ on the most beautiful ⁦Rob Burrow Centre for #MND ⁦Leeds Teaching Hospitals⁩ ⁦Leeds Hospitals Charity⁩ ⁦Leeds Rhinos Foundation⁩ ⁦Leeds Rhinos⁩ - a big shout out to the public for walking shoulder to shoulder with us 🌺 gbr01.safelinks.protection.outlook.com/?url=https%3A%…

Dear Wes Streeting, Tofersen is life-saving, and free, yet around 20 people with SOD1 MND are being denied access to it. They do not have time to wait. You’ve got the power. Please use it. #PrescribeLife

The chamber of secrets has been opened