INBOX — Vanderbilt Health (Vanderbilt University Medical Center) CEO tells employees they’re facing $250 million in cuts next year due to Trump’s cuts so far, and are bracing themselves for more. Does governor hopeful Sen. Marsha Blackburn support this?

Crazy Times: Trump Administration Pulls Millions of Dollars From Long COVID Grants (and Then Restores Them?) Plus ME/CFS, Antiviral, Vaccine Funding Hit #longCOVID #MECFS healthrising.org/blog/2025/03/2…

2/14, "Tennessee universities, medical centers warn Trump administration cuts will 'devastate' search for cures" 'Letter calls on members of Tennessee congressional delegation to urge Trump administration to rescind proposed NIH cuts' newschannel5.com/news/newschann…

We can do this for people with Long COVID and save lives. Most importantly, we can give people their lives back. We have a moral obligation to do so.

Among those put on administrative leave: Jeanne Marrazzo, a longtime infectious disease/HIV researcher. She -- among others -- was offered a reassignment to the Indian Health Services instead. statnews.com/2025/04/01/hhs…

Absolute BLOODBATH at HHS/NIH/CDC this morning. Generation of scientists, health care officials being wiped out

Heads up long COVID patients in the NYC area: We need more participants for this PolyBio-supported trial👇 The trial is testing if repurposed HIV medications (either Truvada or Maraviroc) reduce symptom burden in long COVID. Learn more here: polybio.org/projects/a-cli…

Timing of #NIH's announcement that Jay Bhattacharya has started as the new director is ... interesting. Bloodletting today at NIH & its sister agencies, #CDC & #FDA. Many NIH center directors, including Jeanne Marrazzo of #NIAID, have been put on admin leave.

Another day in this utopian hell. The list will grow. First official / public reporting coming out (paywalled sorry) statnews.com/2025/04/01/hhs… - Dr. Marrazzo has been placed on Admin Leave (NIAID). ** LC ALLY** - The Disability Director at CDC has been fired. - Substance Abuse

Had the honor of presenting the initial patient-reported outcomes of the collaborative rapamycin study led by Simmaron Research at ACP #IM2025 today! Had an amazing time talking with clinicians from all over the country about advancing the knowledge and care of #MECFS

Since my recent COVID re-infection, my hands are in so much pain that I can barely use them some days. I'm sure my inflammation is through the roof. Any suggestions to help w hand pain? Maybe something that works for arthritis pain(?) TIA #LongCovid

So let me get this straight: COVID is a bioweapon that leaked out of a Chinese lab. But it’s also just a cold. But still a bio weapon. But we’re not going to do ANYTHING to mitigate its spread. Like not even filtering the air to keep a supposed bioweapon from spreading?

Such an important study by Rob Wüst on the effects of exercise in #LongCovid and such an expert summary in health rising! Thank you Cort Johnson healthrising.org/blog/2025/04/1…

If you have ever been annoyed with someone for talking about their chronic illness or disability “too much”—I want you to know that I wish I had ANYTHING else to talk about. And when I do have something else to talk about, I certainly do, and am SO excited and grateful when that

Post-treatment Lyme Disease patients with chronic pain in the US—consider participating in this decentralized study (completely virtual). It’s run via the CoRE clinic under the direction of Drs. David Putrino and Amy Proal CoRE at Mount Sinai

Microvascular Dysfunction and Basal Membrane Thickening in Skeletal Muscle in ME/CFS and Post-COVID Anouk Slaghekke PhD Rob Wüst’s research group, in Amsterdam @ UmC

I'm not on here much anymore bc my energy levels are so low that I have to save it all for my family. But my dear friend Emma has #LongCovid & is relocating Greece (her story is on the GFM page) She needs help to get there. Please share. gofund.me/0796b958

People will never meet the version of me that chronic illness keeps behind closed doors. The one who collapses from pain, who can’t speak from exhaustion, who fears the future. Who breaks down when no one is watching. They will only meet the version of me who hides it so well.

How I've grown to despise the term 'lingering effects' when in actuality we're talking about Covid-induced neurodegenerative disease, autoimmunity, cancer, blood clots, people rendered bedbound, premature deaths... All pretty 'lingering' alright.

Würzburg and Berlin researchers studied 40 ME/CFS and 16 post-COVID patients and found their antibodies can enter endothelial cells, fragment mitochondria, shift energy use, and change immune signaling, suggesting a role in disease progression. medrxiv.org/content/10.110…