Myrovlytis Trust
@myrovlytis
Medical research charity driven by our ambition to cure rare diseases
We manage @BHD_Foundation & @OsteosarcomaNow
#RareDisease #rarecancer
ID: 1374710780776611845
http://www.myrovlytistrust.org 24-03-2021 13:13:27
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Our special Meet the Expert event has started! Simon Johnson, Professor of Respiratory Medicine at Uni of Nottingham #WeAreUoN is giving us a short talk on what a pneumothorax is. #WorldPneumothoraxDay
Now we are hearing from Professor Stefan Marciniak (Stefan Marciniak) from Cambridge University. Stefan is giving us a short talk on treatment options and management of pneumothorax in BHD. 💊 #WorldPneumothoraxDay
We're delighted to announce we are funding a new research project involving an international consortium of researchers. Find out more by visiting: lght.ly/ni07l6 #BHDsyndrome Asher Orion Group Stefan Marciniak Rhino Health Brigham and Women's Hospital Mass General Brigham Cambridge University
🎉Proud to be part of this collaborative effort to develop #AI diagnostic tools for #BHDsyndrome & other rare genetic disorders causing pneumothorax👉lght.ly/ni07l6 Myrovlytis Trust Asher Orion Group Stefan Marciniak Brigham and Women's Hospital Mass General Brigham Cambridge University Department of Radiology, University of Cambridge
Good morning from Manchester! We are at the #BAD2024 annual meeting 🩺 come and see us on stand PSG20 The British Association of Dermatologists #Dermatology #RareDisease #PSG
All set up for two days at the British Association of Dermatologists annual conference #BAD2024 The British Association of Dermatologists #PatientAdvocacy #Dermatology #RareDisease
We’ve had a great day meeting other patient support groups and dermatologists here @HealthySkin4All in Manchester! Fab day #BAD2024 LUPUSUK 💙 The Ectodermal Dysplasia Society Behçet's UK #Dermatology Myrovlytis Trust #PatientAdvocacy
Let’s go! This morning we’re at the Skin Genetics Group Clinical Meeting #BAD2024 The British Association of Dermatologists Looking forward to the talks!
Join us at the BHD Foundation Community Symposium on 12 October 2024 to learn about BHD, updates on the latest research and patient panel discussions! Secure your spot 👇 eventbrite.co.uk/e/bhd-communit…
Check out the programme for BHD Foundation's upcoming symposium 👇