People living with hEDS and HSD came together with researchers from Institute of Genetics and Cancer in a recent event to share their care experiences. Ehlers-Danlos Support UK Dervil Dockrell Kathryn Berg IGC Bone Research Team @RCOT_TMH EULAR HPR - Health Professionals in Rheumatology RCOT Scottish Eastern Rose 🌹 Read more here: ed.ac.uk/centre-genomic…

To the PhD students with imposter syndrome, never forget that this diagram featured in a thesis that PASSED

John Oliver's brilliant call to arms for the British people has been banned from our TV screens here in the UK...so best not share this anywhere okay?

Recently, there’s been more mainstream interest in the political histories that shape #MECFS neglect and disability denial … so I’m re-sharing some of my academic papers & other writings on the subject #GreatestMEdicalScandal #biopolitics #psyComplex #DisabilityDenial ⬇️🧵

🧵/ This is, I believe, unprecedented in the history of UK medicine. 28 eminent UK doctors have written publicly to Layla Moran 🔶🕊️, the new chair of Health and Social Care Committee, to report something nothing less than scandalous. Read their letter here (1/n) 👇 bmj.com/content/386/bm…

I've asked a colleague who teaches stats in the University to run constituency deprivation scores and assisted suicide votes through some independent statistical analysis. The results are quite interesting. Here, for example, are how Labour MPs split on assisted suicide:

Kit Malthouse says the quiet part out loud - the sponsor of Kim Leadbeater's assisted suicide Bill suggests that legalising assisted suicide would save the NHS the cost of expensive treatment for dying people. He maintains that current support for the terminally ill is "costing

Offering patients suicide to save money for the NHS is not what I went into medicine for

Fascinating that backlashes from the rich and powerful get results from the supposed party of the oppressed and yet screams of agony from struggling poorer people, from disabled people, from older people are utterly ignored and, in effect, dismissed.

🧵 1) Dear Rachel Reeves Hello, I'm Tim. You don't know me, so I wanted to talk to you about me & my world. It's a world of #MS #epilepsy, & #disability Can I start with symptoms? - Unable to walk. - Co-ordination problems. - Seizures, major & minor. - Depersonalisation.

This is absolutely not a fair representation of the evidence you were provided with last week, Kim. I spoke in sincere good faith, & as a palliative care doctor who is *not* opposed to assisted dying. As you know, I pushed back strongly against this claim from Chris Whitty. It

I’ve mentioned this before but every single person in Keir Starmers cabinet wanting to “clamp down on benefits” can & will each claim up to £3,400 towards heating costs and they earn well over £100k Now who’s “taking the mickey?”

I am disgusted by the government’s relentless demonisation of disabled people. All so they can protect the wealthiest from paying their fair share. Instead of targeting the most vulnerable, let’s “crack down” on corporations and billionaires evading tax instead.

Over the last 2 days the Assisted Suicide Bill Committee has REFUSED amendments to exclude people with impaired judgement, the depressed and suicidal, prisoners and homeless people, those 'unduly influenced' by others, or those who are doing it because they feel a burden. 1/3

At the end Rebecca Paul MP and I managed to get Kim Leadbeater to admit that under her Bill a person would be able to get an Assisted Death for the sole reason of saving their relatives money. 3/3

DWP research links NHS waiting-lists with rise in number of claimants of disability benefits #DWP disabilitynewsservice.com/dwp-research-l…

I have written to the government to express my deep concerns about the proposed changes to disability benefits, and to ask a number of questions. I will vote against these cuts.

The dwp snuck out a report into why people claim pip that disproves all their reasons for cutting disability benefits. They don’t want you to know about it so share this far and wide (Me for Canary) thecanary.co/uk/analysis/20…