Leanne Olney (@leanneolney) 's Twitter Profile
Leanne Olney

@leanneolney

Mum to one CF super warrior. Fighting for #orkambinow and a life unlimited 💛

ID: 999783174573121537

calendar_today24-05-2018 22:44:18

2,2K Tweet

398 Takipçi

2,2K Takip Edilen

Leanne Olney (@leanneolney) 's Twitter Profile Photo

Please help save our local pool. Thanks 😁 Chatteris Town Council: List The Empress Pool in Chatteris as an Asset of Community Value - Sign the Petition! chng.it/Tr8pxGQr via Change.org UK

Emma Ward (@emmagadie2009) 's Twitter Profile Photo

Pls dont think we R not eternally grateful 4 the care we receive from our cf teams @AmberRuddHR. As a parent of a child with #cysticfibrosis I find last 2 sentences very cold&heartless. Like 40 is ok, when actually it's only 31! Attend debate 10th June find out more. Appalled.

Pls dont think we R not eternally grateful 4 the care we receive from our cf teams @AmberRuddHR.
As a parent of a child with #cysticfibrosis I find last 2 sentences very cold&heartless. Like 40 is ok, when actually it's only 31! Attend debate 10th June find out more. Appalled.
Leanne Olney (@leanneolney) 's Twitter Profile Photo

Please help save our local pool. ❤️❤️Chatteris Town Council: List The Empress Pool in Chatteris as an Asset of Community Value - Sign the Petition! chng.it/XbHC6Gqf via Change.org UK

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

-Matt Hancock in today’s Daily Express you revel in joy with #CysticFibrosis community I’m concerned at your words re #TrikaftaNext This game changer Vertex Pharmaceuticals drug needs an immediate NHS England deal when EMA licenced NOT “should” be “earlier” Pls? x.com/nhscfwarriormu…

-<a href="/MattHancock/">Matt Hancock</a> in today’s <a href="/Daily_Express/">Daily Express</a> you revel in joy with #CysticFibrosis community

I’m concerned at your words re #TrikaftaNext This game changer <a href="/VertexPharma/">Vertex Pharmaceuticals</a> drug needs an immediate <a href="/NHSEngland/">NHS England</a> deal when EMA licenced 
NOT “should” be “earlier” Pls?
x.com/nhscfwarriormu…
Quest For A Cure (@cfquestforcure) 's Twitter Profile Photo

The new triple therapy medicine for #cysticfibrosis is a real game changer. It now has FDA approval and has been submitted to the European equivalent EMA for approval. 🤞❤️🤞

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

The wait in Wales must end. We have asked for clarity from @wgmin_health and Vertex Pharmaceuticals for people with #CysticFibrosis in Wales. This week we worked with Welsh Government to provide info on the number of people in Wales who can benefit. #LifeSavingDrugsNow – no more delays.

Geoff Maynard (@g_maynard) 's Twitter Profile Photo

I am extremely proud of my Daily Express team for their successful 8-month campaign to secure a life-saving Cystic Fibrosis drugs deal for England, Scotland and Northern Ireland (Wales next please!) Brilliant work by Chris Riches Lee 'Madz' Madden Giles Sheldrick #dailyexpresscrusade4CF

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

/OMG everyone This is why we need #TrikaftaNext immediately it’s EU Medicines Agency licensed NHS England @NHSEnglandNMD Blake Dark NICE WE CANT WAIT FOR A REVIEW AS THIS DRUG.. JUST HAS TO BE MADE AVAILABLE AS SOON AS LICENSED IN EUROPE 👇🏻 Vertex Pharmaceuticals @janedaviescf Cystic Fibrosis Trust

/OMG everyone

This is why we need #TrikaftaNext immediately it’s <a href="/EMA_News/">EU Medicines Agency</a> licensed <a href="/NHSEngland/">NHS England</a> @NHSEnglandNMD <a href="/blakeydark/">Blake Dark</a> <a href="/NICEComms/">NICE</a>
WE CANT WAIT FOR A REVIEW AS THIS DRUG..
JUST
HAS
TO 
BE
MADE 
AVAILABLE 
AS SOON AS LICENSED 
IN EUROPE 
👇🏻
<a href="/VertexPharma/">Vertex Pharmaceuticals</a> @janedaviescf <a href="/cftrust/">Cystic Fibrosis Trust</a>
Chris Riches (@chrismriches) 's Twitter Profile Photo

Im sure all at Vertex Pharmaceuticals, NI Health board & her hardworking hospital staff are as heartbroken at this image as all of us. I only spoke to Nicole yesterday and she was very scared. Pls speed up red tape and grant Nicole #trikafta access ASAP. Daily Express Liam Mc Hugh

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

So now we have confirmation #TrikaftaNext will be fast tracked by EU Medicines Agency BUT unless Vertex Pharmaceuticals change their mind on submitting data NOW, we will not get access in May/June 2020 Please $vrtx, don’t make us wait Peoole will DIE waiting again You must act NOW Matt Hancock 😩

So now we have confirmation #TrikaftaNext will be fast tracked by <a href="/EMA_News/">EU Medicines Agency</a>  BUT unless <a href="/VertexPharma/">Vertex Pharmaceuticals</a> change their mind on submitting data NOW, we will not get access in May/June 2020 Please $vrtx, don’t make us wait  Peoole will DIE waiting again You must act NOW <a href="/MattHancock/">Matt Hancock</a> 😩
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

.Matt Hancock If This Irish Health Minister can do #TrikaftaNext then surely now UK Prime Minister Boris Johnson & our amazing NHS England won’t leave the UK at the bottom of the pile again Vertex Pharmaceuticals Must ACT NOW for an interim managed deal from MAY 2020! #NoOneLeftBehind

Catherine Meredith (@873meredith) 's Twitter Profile Photo

.Matt Hancock Chris Riches Hospitals are failing to deliver #lifesaving4cf within the 30 days announced on 24thOct. Seriously ill sufferers are being told 'next year'. Devastating infections, common in winter, cause deaths which could be prevented by timely drug delivery by NHS

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

#Lifesavingdrugs4cf #Kaftrio Vertex Pharmaceuticals Chris Riches Cystic Fibrosis Trust .Vertex Pharmaceuticals Please save this amazing ladies life She is also a mother & she has tirelessly campaigned to help the CysticFibrosis community in the uk. She is hanging in on a thread. Please hurray up Lewisham and Greenwich NHS Trust Please save a life today. Please 🙏🏻🙏🏻😥😥 $vrtx Chris Riches Cystic Fibrosis Trust

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

.Vertex Pharmaceuticals This young girl is fighting for her life again Her fragile body can’t take any more So sad this is happening hours after she got Symkevi She really needed compassionate #trikafta Pls sort it NOW👇🏻 📞 📝 🚕 🚛 The whole CF community is 👀 This is high profile🙏🏻😥

.<a href="/VertexPharma/">Vertex Pharmaceuticals</a> This young girl is fighting for her life again Her fragile body can’t take any more   So sad this is happening hours after she got Symkevi
She really needed compassionate #trikafta Pls sort it NOW👇🏻
📞 📝 🚕 🚛 
The whole CF community is 👀
This is high profile🙏🏻😥
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Daily Express ThankYou Chris Riches helping the #cysticfibrosis crusade for CF .Matt Hancock Let’s get the job done ✅ My daughter is literally hanging on edge of life Give her a future😢 #KaftrioNow #kaftrio Please RT🙏🏻 Blake Dark Cystic Fibrosis Trust Vertex Pharmaceuticals NHS

<a href="/Daily_Express/">Daily Express</a> ThankYou 
<a href="/ChrisMRiches/">Chris Riches</a> helping the #cysticfibrosis crusade for CF   

.<a href="/MattHancock/">Matt Hancock</a>   Let’s get the job done ✅ 

My daughter is literally hanging on edge of life

Give her a future😢

#KaftrioNow #kaftrio 
Please RT🙏🏻

<a href="/blakeydark/">Blake Dark</a> <a href="/cftrust/">Cystic Fibrosis Trust</a> <a href="/VertexPharma/">Vertex Pharmaceuticals</a> <a href="/NHSuk/">NHS</a>
Leanne Olney (@leanneolney) 's Twitter Profile Photo

The government has failed us, and voted against protecting our NHS from trade deals in the #TradeBill. Sign this to call on the House of Lords to do what MPs could not. We Own It weownit.org.uk/lords-NHS-trad…