I haven't been posting much - putting all my energy into prism, education, foundation, and actually putting together a local care team. Saw my new #POTS cards in Nov. called 2 wks ago for f/u. No longer seeing POTS pts. Heard today lots of pts got the notice. Pls read my rxn.

My life will forever be divided into before and after my friend Rachel S. Rubin, MD informed me about clitoral hood adhesions. Like Rachel, the vagina (colloquial usage) never ceases to amaze. Sadly, I've got my hands full w pelvic bones, ligaments, muscles, fascia!

Remembering Leigh tonight. She should be here with us, as a practicing Orthopaedic Surgeon and inspiration to us all. Sadly, she is only the latter. Leigh Sundem Memorial Scholarship | Center for Addiction Recovery | Georgia Southern University georgiasouthern.edu/jphcoph/addict…

⁦The Ehlers-Danlos Society⁩ #GLC in less than two weeks away! Please share widely. I've just learned we have a few spaces remaining in our FULL DAY PROGRAM: SUNDAY 7/21 & Peds 7/20! Register @ EDS Society website (need to create profile) Learn about Physiolign @ physiolign.com

When the hand came out of the log I lost it.. 😂

The world shows up for us sometimes. Had watched the video of this long jump and hug 2-3x already, without any background knowledge. And it felt so special. To now find out he is a double amputee Paralympian is so heart warming it almost feels selfish to be able to watch them.

These break my 💔 but dogs can teach us so much. A person can go through this type of transition in so many ways, too. And they might look exactly the same to us before and after. Bc we can't really see someone just by looking.

Reunited w friend from college who toured prismsj.com today! Me: when you found out I had EDS, did it make so much sense? Him: no, actually. I was shocked! Me: Don't you remember me having to be carried up and down stairs a lot? Him: that wasn't bc you were drunk?

CP, OCD, Cancer - imagine a cardiologist's office "not taking pts w these dx". Unthinkable. #EDS : "outside scope" used by every specialty. Abdominal pain: GI "doesn't see EDS pts". Orthostatic Intolerance: Cards says same. #MedTwitter See The Ehlers-Danlos Society Dysautonomia Intl. for CME

Human suffering is infinite Blame, Anger, Fear, Hatred: infinite Compassion can also be infinite Mourn each loss. Pray for each terrified/injured/hungry/sick/kidnapped/orphaned child Compassion for one need not diminish compassion for another Love & peace are not betrayals 🕊️

Accountability matters. If this patient suffered a complication due to her surgery being interrupted, being sent home that same day, etc., the doctor has all of the liability. The insurance company has none. This can change. What are we waiting for??? x.com/BillAckman/sta…

BLACK WOMEN COUNT. Are we seriously@going back to POC counting as a fraction of a person??? Is the fraction 0/3??? This is so far beyond the limits of decency. businessinsider.com/gop-senator-la…

#Nurses: Trying to get in touch with NIAID News (a doc) emails bouncing. Presumably, operations...affected. On website directory giant list, no clue who to reach out to - decided to just look for #RN regardless of sub-specialty. Bc an RN will figure it out. THAT is nurses. 💕