It just occurred to me that my #Kesimpta injection is long overdue. Originally I just wanted to postpone it for one or two days and then I completely forgot about it 🤦‍♂️

My aunt and uncle just visited me for the first time in 5 years and they said I was walking a lot better now. I know it’s not true but it still made my day to hear that 🕺

Sometimes there are ads in our local newspaper asking for donations to the #MS society, which is great obviously. But why are they always on the same page as the obituaries? We’re not dead yet 🤨

I haven’t exercised in months and my bad conscience is growing but I just can’t find the energy 😕

Today my neuro told me that blood tests aren’t mandatory when taking #Kesimpta, only optional. We’ll continue doing them nevertheless 🤷‍♂️

Another interesting thing my neuro told me: #Kesimpta can now be prescribed right after diagnosis, whereas DMTs like #Ocrevus require a highly active #MS. Though both drugs work similarly, Kesimpta apparently interacts with a lot less drugs.

Because of my #MS I can’t lift my right leg, so I basically drag it along behind me. By the end of the day my sock is full of dust and other stuff it collected from the floor. Who needs a vacuum cleaner anyway when you can have MS 😶‍🌫️

So I just canceled tonight’s invitation to celebrate New Year’s Eve as my #MS fatigue is pretty bad. But it won’t keep me from having a glass (or two) tonight. Cheers!🥂

Had my annual MRI today and when the nurse asked me about my weight I gave her my height. She repeated her question and I gave her my height once again. It took a while until I understood my mistake and now I’m a bit worried about my brain function 😒 #MS

The doctor who was performing my MRI scan today instantly recognized me: “Hey I know you, you’re here pretty regularly, aren’t you?!”. Yeah, that’s me alright 😑

My neuro commented on how much #Ocrevus and now #Kesimpta seem to be helping me. I agreed and speculated how much better I’d be doing now if these DMTs had existed after my diagnosis. He nodded but advised me not to let these “dangerous thoughts” drive me crazy.

Just realized that this year marks my 25th #MS anniversary. A quarter century of this annoying disease... On my journey I realized that it can be pretty debilitating but that dealing with it isn’t nearly as difficult as I was afraid of right after my diagnosis. Cheers! 🥂

I just visited my neuro at the #MS clinic and asked him if I’d be able to stay on my #Kesimpta treatment forever. He said he believed so, yes, but that I might be having frequent infections in which case I’d be giving myself the shots less frequently. Is anybody doing this?

I discussed my leg spasticity with the neuro at the #MS clinic and he thought it might be restless legs syndrome instead. Gave me a prescription for a drug which is usually given to Parkinson’s patients to see if it helps better than my #Sativex. Interesting!

At the #MS clinic I passed a woman in a wheelchair receiving an infusion and her partner. I greeted them while struggling to walk and there was something about the way he said hello, like he fully understood my struggle and the pain MS causes. Made a lasting impression on me.

Just had an eye doctor appointment and while looking at my pupil she said that she could see the damage #MS has caused on my optic nerve. I always thought that only MRIs were able to do this 🤷‍♂️

A minor downside of #MS: Every time somebody wants to shake my hand I have to get rid of the cane my right hand is holding. This usually leads to awkward attempts to take the cane with my left hand while desperately trying not to lose my balance 😬

I’m very grateful for not having to work anymore and receiving a disability pension. One drawback though is that I lose track of time - I just wished the cashier a happy weekend 🤨🙄

Today I went to a urologist for the first time since the pandemic started. My bladder remains one of the biggest problems caused by my #MS. He wrote me a prescription for another oral drug but announced that I might have to try Botox injections if it doesn’t work. Oh joy…

Today my neuro prescribed #Ampyra, a drug that might improve my walking. In his experience about 1/3 of his patients notice significant improvements. They measured my walking speed and will do so again in two weeks to see if I‘m among the fortunate who benefit from it 🤞