Thank you Britt for speaking to Parliamentarians today about the role children's hospices play in your family life and why the CH Grant is so crucial.

Really significant report shows nearly 25% increase in number of children with life limiting conditions in Wales in the last decade. Many living with greater medical complexity. Big challenge for government, health boards and providers. Tŷ Hafan Children's Hospice Hope House & Tŷ Gobaith Children's Hospices Lorna Fraser

Thank you Giles Sheldrick for shining a light on the importance of children's hospice funding. Vital that the £25 million grant not only continues but is also directly distributed by NHS England 👇👇👇

I first saw blur when I was 20. They were magnificent. Seen them many times since and they have been magnificent. But last night at Wembley might be the most magnificent yet. Brilliant.

First swim in Britain's oldest lido Cleveland Pools. And it is amazing. Built in 1815. Closed for nearly 40 years. Beautifully restored. A testament to what can happen with passionate volunteers, engaged community and heritage funding. Thank you to all who made it happen 🙌

Great meeting today at No.10 with James Cooper and officials. We discussed Together for Short Lives report on funding disparity in #ChildrensPalliativeCare and the lasting changes we want to see across the sector. You can read the latest report here: bit.ly/3NSw0ET

Been off twitter for a bit, hence the delay. But can think of fewer more deserved recipients than the fabulous Kate Lee . Many congratulations.

Spot on Toby Porter (NB on Blue Sky) .

Just caught up on a beautiful and moving Desert Island Discs with Jamie Dornan. As a teenager who lost their mum, so much resonated. The grief, the guilt at not remembering, the love of family. Great music choices. And Brilliantly handled too Lauren Laverne.

Thank you BBC Radio 5 Live for having me on to discuss energy costs for families of medically complex children. Cruel reality that they face massive bills to run equipment which keeps their children alive. Need Gov to look again at social tariffs to help families in need.

🆕Today's #Budget24 from HM Treasury provides no clarity on future funding for seriously ill children. For them, time is short – and they needed urgent action now. Read our reaction from our chief executive Andrew Fletcher 👉togetherforshortlives.org.uk/sustainably-fu…

A great week at Together for Short Lives – an APPG at Westminster and the chance to meet an incredible family who is joining our new #ShortLivesCantWait campaign to end the postcode lottery of care in this country. bit.ly/496utmG

📺Did you catch Andrew Fletcher on BBC Breakfast this morning? He discussed the issues facing children’s palliative care and the urgent action needed to fix them. Your voice has power. Sign our open letter to the Prime Minister to call for action today: bit.ly/4aHc6pw

Thank you BBC Breakfast for having me on to talk about inadequate resourcing of children's palliative care. #shortlivescantwait Together for Short Lives

Good luck to all the Together for Short Lives runners today including the incomparable Mrs Fletcher Susan. Thank you for supporting seriously ill children and their families.

"It's not acceptable that we're relying on charitable donations to fund this lifeline crucial care." We were in Parliament today giving evidence about children's hospice funding to MPs because #ShortLivesCantWait - support our campaign now: togetherforshortlives.org.uk/campaign/short…

I'm a bit floored by the news that Liz has died. A true champion of nursing and midwifery and always a source of wise counsel, challenge and support. She was great company too, witty, charming, warm and compassionate. Hard to believe such vibrancy has gone.

Looking forward to joining partners this pm to make the case for children's palliative care in the run up to an election. Together for Short Lives

Great to be in Birmingham with children's palliative care network chairs and leaders of care. Sharing examples of innovation and collaboration at local, regional and national level. Together for Short Lives

Some personal news. After 6 yrs leading the brilliant team Together for Short Lives I will be joining Muscular Dystrophy UK in November. V excited to be joining at an important time for people affected by muscle wasting conditions & the charity. Looking forward to working with team and the community