Tune in now to watch Jodi Smith give an update from the NAPRTCS Registry Committee. Recent work includes a comprehensive review of the existing Benchmarking Reports. Look for new and improved Reports early next year! #NAPRTCS2023

Nathan Paziuk of Modern Craft provides an update from the NAPRTCS IT Committee. They continue to work on ways to reduce the burden of data entry. Latest update - NAPRTCS data reports are now available in EPIC! #NAPRTCS2023

The NAPRTCS Communication Committee is hard at work keeping you informed through newsletters, webinars, reports, and social media. Have suggestions for improved communication? Let us know! Center Status Reports have been very successful! #NAPRTCS2023

Taylor House of University of Wisconsin Department of Pediatrics presents information about her upcoming project examining communication around kidney transplant preparation directed at adolescent and young adult patients. Stay tuned for additional information that will go out by email next week. #NAPRTCS2023

Next up, Ari Pollack of Seattle Children's shares information about Kids CoLab! This multicenter study looks at cooperative decision making in the adolescent #CKD and #ESKD population. The project will engage patients, caregivers, and clinicians. #NAPRTCS2023

The NAPRTCS Patient and Family Advisory Council is looking for additional members. Pediatric patients ≥ 18 years impacted by #CKD & #ESKD and their families are eligible to join. Please share with your patients so they can help guide our efforts. #NAPRTCS2023

Attending American Society of Nephrology #KidneyWk? Check out the 4 NAPRTCS posters on Thursday, Friday, and Saturday! stuart goldstein Ankana Daga and Reeti Kumar of Duke Children's will present and topics include #dialysis #cystinosis & #aHUS.

Since 1994, NAPRTCS has worked closely with industry to implement pediatric #CKD and #ESKD clinical trials. Want to learn more about the process and discuss best practices related to trial recruitment and retention? Join us for a webinar on 12/8 at 2pm ET. DM for info

COVID-19 has disproportionately affected adults w/kidney disease. Data re children w/kidney disease are limited. Read this Original Article on the impact of COVID-19 on children enrolled in the 3 arms of the NAPRTCS Registry: CKD, dialysis, & transplant. link.springer.com/article/10.100…

Check out the latest NAPRTCS publication in Pediatric Nephrology by Sarah Twichell at UVM Larner Med! This paper looks at the impact of #COVID19 on pediatric CKD & ESKD patients. Jodi Smith @Vikas_R_D Isa Ashoor Daniella Levy Erez Sarah Kizilbash Sara Boynton

Save the Date for the 2024 NAPRTCS Meetings! Our Spring Virtual Meeting will be held on March 22nd from 1p-4p ET / 10a-1p PT. Invitations will go out in early February. The Fall Meeting is planned for September 19th & 20th. More info to follow.

The NAPRTCS Spring Virtual Meeting is just one month away! Join us to learn more about our current and future projects. Register here: tinyurl.com/mpbufwka Attendance is free and open to the entire academic #PedsNeph community. Trainee attendance is encouraged.

Looking forward to seeing everyone tomorrow! NAPRTCS @Vikas_R_D Jodi Smith Darcy Weidemann

Eric Benz of Children's Hospital Colorado and Ankana Daga of Boston Children's present two upcoming studies of #SDOH in the #Transplant and #Dialysis registries that will be completed in partnership with Children's Hospital Association

Up next, Jodi Smith provides an update on the NAPRTCS #Cystinosis Registry. The registry now includes data on 106 participants with up to 5 years of follow up so far. We’ll be making an announcement about a new endeavor so make sure to tune in! #NAPRTCS2024

Next up, Ari Pollack of Seattle Children's shares information about Kids CoLab! This multicenter study looks at cooperative decision making in the adolescent #CKD and #ESKD population. The project will engage patients, caregivers, and clinicians. #NAPRTCS2024

When we engage our patients our outcomes will be better! Exciting initiatives being discussed at the NAPRTCS meeting today.

More than 1000 test results! Can’t wait for the final results NAPRTCS #naprtcs2024

Want to learn more about the NAPRTCS #Cystinosis Registry? Join us for a webinar on June 7th at 2pm EDT. Topics include new PRO measures and a transition needs assessment. Attendance is open to the entire academic medical community. Register here: tinyurl.com/43erxce5

The workforce crisis facing pediatric nephrology is echoed throughout many pediatric sub-specialties. Read these Conference Proceedings recommendations to improve recruitment, retention, & reimbursement to improve patient care. #OpenAccess link.springer.com/article/10.100…