What happens when you have a chronic illness that isn't being researched seriously? Patient-led groups like RemissionBiome MECFS/LongCovid Patient-Led Science are designing their own research to address the needs of those with ME and long-COVID. See my latest in The Observer The Guardian theguardian.com/science/2023/j…

LongCovid at 1.3yrs: New Wheels! Acceptance is key to living with #LongCovid, accepting that new you can’t do what old you could. Unable to walk any distance, today I accepted that it’s better to be out in a wheelchair than to not be outside at all. A very happy family outing!

The US is starting to be on top of #LongCovid What's the NHS going to do? NHS Steve Barclay NHS England Rishi Sunak -- Millions suffering on your watch and no answers! #pwLC #pwMECFS #pwLongCovid

I have done a kava video - just search 🕸️Dr.T, PhD kava

Heartily recommend this article from today’s Washington Post: “I have long covid. For the millions like me, the pandemic isn’t over.” washingtonpost.com/opinions/2023/…

Now it's officially launched, we can share the animation from our The British Academy project on energy limiting conditions. Huge thanks to Stacy Bias - stacybias.bsky.social and Ell Rose (fourfooteleven.illustration) for the brilliant art work. Please do share: youtube.com/watch?v=Atdpgi… #NEISvoid #ChronicIllness Chronic Illness Inclusion

tinyurl.com/OpenResponseto… 47 psychologists, academics & psychiatrists have signed an open response to British Psychological Society re the DHSC Interim Delivery Plan for #MyalgicEncephalomyelitis, stating that #ME is a 'serious, chronic, systemic, potentially life-threatening biomedical disease’.

Very pleased to be joining Angela Oels and Jens Marquardt and colleagues virtually in Augsburg this morning. I will be speaking on Algorithmic Climate Governance:reproducing hegemony or radical transformation! uni-augsburg.de/de/fakultaet/p…

📽️ “I really want to play football again and go to school again.” In April 2022, Jay (12) was diagnosed with #longCOVID. Prof. Selina Kikkenborg Berg describes the challenges of researching #longCOVIDinKids. Read more👉 bit.ly/46wP2Yq

Hey guys, I've created a GoFundMe for UK billboards. I've just chosen an arbitary target of £5,000 but as stated on the GFM, ALL decisions will be made with Twitter polls and the target can be amended at any time and I won't make any profits from this. gofundme.com/f/billboards-f…

First UK billboard promoting NotRecovered and raising awareness for #LongCovid and #MECFS. This billboard is located at the following location in Bournemouth and will be up 24/7 for two weeks. google.com/maps/@50.75275…

These billboards are for everyone with #LongCovid and #MECFS who have been abandoned by healthcare, society and the government. There is absolutely no justifiable explanation for this to continue happening in 2023 when there are now hundreds of scientific research papers

Awareness campaigns are needed to properly educate doctors and the public about post viral infection syndromes like #MECFS and #LongCovid! Why do patients have to organize and pay for this?

Renuka Dhinakaran An article was recently published about that. amp.abc.net.au/article/103205…

Absolutely, Putrino Lab. CBT and GET for post-viral diseases like LongCOVID and ME/CFS should be seen as malpractice. In time, the psychosocial label and those driving that agenda will also be proven wrong.

Robert Howard With respect,I don’t think it shows “bravery” to ask these questions,I think it shows ignorance. Ignorance of the 4yrs of research & tens of thousands of research papers showing the pathophysiology: innate immune abnormalities, complement activation, endothelitis & endothelial 1/

🌎 Digital natures: New ontologies, new politics? 🌎 Check out this excellent new paper by Andrés Luque-Ayala, Ruth Machen & Eric Nost in Digital Geography & Society setting up a special issue on Digital Natures! sciencedirect.com/science/articl… #DigitalEcologies Eric Nost Andres Luque-Ayala Ruth Machen

Do check out the great papers included in the SI by digital natures scholars @rohawkins; @JJSilvs; Eliot Tretter; ryan burns @burnsr77.🟦☁️.social; Hira Sheikh; Juan P Astaburuaga; Silvia Cifuentes and Maros Krivy sciencedirect.com/journal/digita…

Introduction to the special issue of Digital Geography and Society on "Digital Natures: Reworking Epistemologies, Ontologies and Politics" w/ Andres Luque-Ayala Ruth Machen sciencedirect.com/science/articl… The six papers in the special issue are open access here: sciencedirect.com/journal/digita…