ImmunAID_EU
@immunaid_eu
Official account of #ImmunAID project. For improved diagnostic & clinical management of patients with #autoinflammatory diseases. Funded by @EU_H2020 programme
ID: 1170081181079093248
http://www.immunaid.eu 06-09-2019 21:10:16
165 Tweet
297 Followers
33 Following
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
kourir france
@kourirfrance
Association des parents d' enfants Arthrite Juvénile créée en 1992. Information et soutien aux parents et enfants. Ensemble nous sommes plus forts.
Assistance Publique – Hôpitaux de Paris (AP-HP)
@aphp
⚠️ Compte officiel inactif
Vasculitis - In memory of John Mills MBE 💙💚
@vascuk
Vasculitis - A Rare Rheumatic Autoimmune Disease - Vasculitis UK trustees are all volunteers.
Rare Disease UK
@rarediseaseuk
National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
RareConnect
@rareconnect
🌐Connecting #raredisease patients globally at rareconnect.org. 💻Website help at @RareConnectSup.
Kawasaki Support UK
@kawasakisupport
Parent-run UK-based Support Group providing advice and information for those affected by Kawasaki Disease.
Association AFLAR
@asso_aflar
Association de patients souffrant de rhumatismes
Alliance maladies rares
@alliancemr
Collectif de 240 associations de malades portant la voix de 3 millions de personnes concernées par 7 000 #maladiesrares en France. Besoin d'aide ? 0800 40 40 43
IPOPI
@ipopi_info
IPOPI is the association of Primary Immunodeficiency national patient organisations. Improving awareness, access to early diagnosis and optimal treatments.
Horizon Europe🇪🇺
@horizoneu
Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
Rare Disease Policy
@rarediseaseseu
@RareDiseasesEU is currently managed by Victoria Hedley, RD Policy Manager @ Newcastle University (formerly account 4 RD-ACTION & EUCERD JA). Views now my own
Bruno Fautrel
@bfdem_
Filière de santé FAI²R
@contactfai2r
Maladies rares auto-immunes et auto-inflammatoires: lutter contre l'errance diagnostique, faciliter le parcours de soin, la prise en charge des patients.
Sophie Georgin-Lavialle
@sophiegeorgin
MD PhD/Professor of #InternalMedicine/French National Reference Center for #autoinflammatory diseases and #AAamyloidosis/@HopitalTenon #FAI2R /Paris, France
FMF ESPAÑA
@fmfspain
Cuenta oficial de la Asociación de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios de España: FMF ESPAÑA
IRDiRC
@irdirc
#IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
EUPATI France
@eupati_fr
SENSIBILISER LES PATIENTS À LA RECHERCHE ET LE DÉVELOPPEMENT DES MÉDICAMENTS. Devenez expert!
Horizon Magazine
@horizonmageu
The EU Research & Innovation Magazine @EU_Commission Subscribe to our weekly newsletter here: europa.eu/!YwKVkH
Autoinflammatory UK -Making the Invisible Visible
@periodicfeveruk
Our Support Group: facebook.com/groups/1258373… Our Facebook Page: facebook.com/Autoinflammato…
Foresight in Rare Disease Policy
@rare2030
Preparing a better future for people living with rare diseases. For more info [email protected]
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
Autoinflammatory Awareness Month
@autoinflammonth
Autoinflammatory Awareness Month has been recognized globally since 2015. Join in raising awareness to promote improved care, research & treatments. Thanks!
Behçet's UK
@behcetsuk
Caring for all affected by this rare, complex and lifelong condition. Promoting research into the cause, effects, treatment and management of Behçet's.
Siniša Savić
@sinisauksav
Professor of Clinical Immunology, University of Leeds, Chair of BSI-CIPN, Clinical director of Leeds NIHR BioResource centre, views my own
ARMA
@wearearma
ARMA is the alliance providing a collective voice for the arthritis and musculoskeletal community in the UK. Sign up for our newsletter: arma.uk.net/nl
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Raphaël DARBON
@francevasc
Rare Autoinflammatory Conditions Community - UK®️
@racc_uk
A Registered Charity (1184846) for Patients and families affected by Autoinflammatory Conditions, in the UK. Members of @EURORDIS @_ERNRITA @NationalVoices
_ERNRITA
@_ernrita
ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
Hôpital Pitié-Salpêtrière AP-HP
@hoppitiesalpe
⚠️ Compte officiel inactif 👉 Suivez-nous sur Bluesky : bsky.app/profile/pities…
FMF & AID Global Association
@fmfandaid
The FMF (Familial Mediterranean Fever) & AID (autoinflammatory diseases) is a non-profit umbrella organization registered in Zurich, Switzerland.