International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile
International Meeting on Laminopathies

@imlaminopathies

Bringing together experts in #rarediseases caused by mutations in genes encoding proteins of the nuclear envelope 👩‍🔬 New therapies 💉 Knowledge 🔬 Patients

ID: 1598342720447303680

calendar_today01-12-2022 15:46:39

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International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

📸 The album of the International Meeting on Laminopathies is now available! Take a look to the congress and experience the fantastic atmosphere that we enjoyed! 👬👫👭 📲 flickr.com/photos/imlamin…

Mary MACK (@maryocmack) 's Twitter Profile Photo

There is still time to sign up to join this informative webinar on lamin disease, its often associated LMNA cardiomyopathy and need for defibrillator placement: the who, what and when. #lamindisease #nuclearlamins #nuclearenvelopathies DCMFoundation International Meeting on Laminopathies

Svetlana Gorokhova (@sgorokhova) 's Twitter Profile Photo

Mariko Okubo (Institut de Myologie) presenting gene therapy approaches using AAVs and LMNA mouse model (K32del) – able to express human laminin A, but not to suppress the mutant LMNA expression #WMS2023

ERDERA (@erdera_org) 's Twitter Profile Photo

🚨Registration before 14 January 2024 to join us in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases ℹ️Registration & more information: ejprarediseases.org/event/training…

🚨Registration before 14 January 2024 to join us in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases
ℹ️Registration & more information: ejprarediseases.org/event/training…
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

Welcome to the official account for the 5th Laminopathies Conference! 🧬 Join us for cutting-edge research, inspiring talks, and live updates from the Laminopathies meeting in Paris. Follow for the latest news! #Laminopathies2025 #laminopathies #lmna #lmnacardiac

International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

We’re excited to see many of you in Paris next week! If you can’t make it in person, don’t worry—follow us here and on our website for access to the live stream. #laminopathies #lmna #paris #livestream

International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

📢 The Laminopathies 2025 meeting is around the corner! 📄 Abstracts are now available — scan the QR code to access them instantly and explore the latest research in the field. 🔗 Learn more at Laminopathies.net #Laminopathies2025 #RareDisease #LMNA #lmnacardiac

📢 The Laminopathies 2025 meeting is around the corner!

📄 Abstracts are now available — scan the QR code to access them instantly and explore the latest research in the field.

🔗 Learn more at Laminopathies.net 
#Laminopathies2025 #RareDisease #LMNA #lmnacardiac
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

📢 5th Laminopathies Meeting in Paris! 🧬 The poster abstracts are now available! Scan the QR code below or visit Laminopathies.net to explore the latest research from the community. #Laminopathies2025 #LMNA #RareDiseaseResearch #laminopathies

📢 5th Laminopathies Meeting in Paris!

🧬 The poster abstracts are now available!
Scan the QR code below or visit Laminopathies.net to explore the latest research from the community.

#Laminopathies2025 #LMNA #RareDiseaseResearch #laminopathies
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

🚨 The Laminopathies Meeting will also be available online! Join virtually via Zoom webinar: 👉 zoom.us/j/96240745334 Don’t miss this key event for the laminopathies community - whether you're a researcher, clinician, patient, or advocate. Laminopathies.net

International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

We start tomorrow! 🧬 The Laminopathies Meeting begins with registration at 14:00 — we’re looking forward to seeing you all there! More info: laminopathies.net #Laminopathies #RareDisease #LMNA #Genetics #PatientCommunity

International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

The #Laminopathies Meeting is LIVE! Experts, researchers & advocates are gathering to push forward breakthroughs in LMNA & lamin-related diseases. Follow the latest updates, science, and community highlights 👉 Laminopathies.net #Laminopathies2025 #RareDisease #LMNA

The #Laminopathies Meeting is LIVE!

Experts, researchers & advocates are gathering to push forward breakthroughs in LMNA & lamin-related diseases. Follow the latest updates, science, and community highlights 👉 Laminopathies.net

#Laminopathies2025 #RareDisease #LMNA
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

An unforgettable evening at the #Laminopathies conference gala dinner/cocktail party - great conversations, inspiring connections, and a stunning venue. Huge thanks to the organisers and LMNA cardiac for bringing this community together! 💙 #RareDisease #Laminopathy #lmnacardiac

An unforgettable evening at the #Laminopathies conference gala dinner/cocktail party - great conversations, inspiring connections, and a stunning venue. Huge thanks to the organisers and <a href="/LmnaCardiac/">LMNA cardiac</a> for bringing this community together! 💙 #RareDisease #Laminopathy #lmnacardiac
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

Day 2 of the #Laminopathies conference is underway! 💡 Dive into today’s sessions and connect with the global community driving progress in laminopathy research. Full program available at laminopathies.net #RareDisease #Laminopathy #Laminopathies

Day 2 of the #Laminopathies conference is underway! 💡 Dive into today’s sessions and connect with the global community driving progress in laminopathy research. Full program available at laminopathies.net

#RareDisease #Laminopathy #Laminopathies
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

Day 3 of the #Laminopathies2025 meeting is underway — our final day! We’re closing strong with sessions focused on patients and patient organizations, followed by a powerful round table discussion. Let’s keep the momentum going 💪🧬 #RareDisease #Patient #laminopathies

Day 3 of the #Laminopathies2025 meeting is underway — our final day! We’re closing strong with sessions focused on patients and patient organizations, followed by a powerful round table discussion. Let’s keep the momentum going 💪🧬 

#RareDisease #Patient #laminopathies
International Meeting on Laminopathies (@imlaminopathies) 's Twitter Profile Photo

Laminopathies Meeting 2025 wrapped up with two powerful sessions: “Towards Patients” & the Patient Session. The exchange between experts & patients was incredibly valuable. Thanks to everyone who joined us! #Laminopathies #RareDisease #PatientVoices #lmna

Laminopathies Meeting 2025 wrapped up with two powerful sessions: “Towards Patients” &amp; the Patient Session.
The exchange between experts &amp; patients was incredibly valuable.

Thanks to everyone who joined us! 

#Laminopathies #RareDisease #PatientVoices #lmna
LMNA cardiac (@lmnacardiac) 's Twitter Profile Photo

Thank you for an inspiring International Meeting on Laminopathies meeting in Paris! On behalf of LMNAcardiac and all LMNA patients ❤️, we’re grateful for the strong interest and meaningful interaction between experts and patients. Hopeful for the future! 🙏 #LMNA #RareDisease #Cardio #PatientAdvocacy

Thank you for an inspiring <a href="/IMLaminopathies/">International Meeting on Laminopathies</a> meeting in Paris!
On behalf of LMNAcardiac and all LMNA patients ❤️, we’re grateful for the strong interest and meaningful interaction between experts and patients. Hopeful for the future! 🙏

#LMNA #RareDisease #Cardio #PatientAdvocacy
LMNA cardiac (@lmnacardiac) 's Twitter Profile Photo

📣 We need your help! 💙 Download our flyer & spread the word about LMNA-related heart disease: ✅ Share online ✅ Hang in clinics & waiting rooms ✅ Send to your network Will you help us grow? 🌍 👉 lmnacardiac.org/help-us-raise-… #LMNA #RareDisease #HeartHealth

📣 We need your help! 💙
Download our flyer &amp; spread the word about LMNA-related heart disease:
✅ Share online
✅ Hang in clinics &amp; waiting rooms
✅ Send to your network

Will you help us grow? 🌍 

👉 lmnacardiac.org/help-us-raise-…
#LMNA #RareDisease #HeartHealth