Ian Hill (@ianhill7) 's Twitter Profile
Ian Hill

@ianhill7

Dad to 3 amazing kids. Occasional blogger on life as parent of a child with a rare chromosome disorder #idic15

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linkhttps://dadsviewof15q.wordpress.com/ calendar_today06-10-2011 19:59:18

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Ian Hill (@ianhill7) 's Twitter Profile Photo

Today is #RareChromoDay & we celebrate our unique kids whilst raising awareness of rare chromosome disorders. A very brief (2 minute read) blog post to mark the day and support Unique facebook.com/17722913595205…

Ian Hill (@ianhill7) 's Twitter Profile Photo

Back to school for the day @KingsWoolston to deliver industry workshops on the world of work & the promotional merchandise sector. #promotionalproducts #promotionalmerchandise

Back to school for the day @KingsWoolston to deliver industry workshops on the world of work & the promotional merchandise sector.  #promotionalproducts #promotionalmerchandise
Ian Hill (@ianhill7) 's Twitter Profile Photo

Uh, Asda Service Team Asda let's talk bread! Why have you swapped your previously v decent store baked bread for an inferior, more expensive, tasteless & rubbery insult to baking which is baked off site? It's grim, really really grim. #asda

Ian Hill (@ianhill7) 's Twitter Profile Photo

Hi @charlotte2153 would you be able to spare a few mins today to meet the End Our Pain families & hopefully Emma & her daughter Teagan, who has the same #rarechromo dup #idic15 #dup15q as our son. #helpforteagan

Ian Hill (@ianhill7) 's Twitter Profile Photo

A photo taken without me realising, but one I adore) Sometimes you don't need words, just the pure & unconditional love from your #idic15 #dup15q son giving you bear hugs and cuddles as he doesn't want to say goodbye #nonverbalautism #autism #nonverbal #autismdad

A photo taken without me realising, but one I adore) Sometimes you don't need words, just the pure & unconditional love from your #idic15 #dup15q son giving you bear hugs and cuddles as he doesn't want to say goodbye #nonverbalautism #autism #nonverbal #autismdad
Ian Hill (@ianhill7) 's Twitter Profile Photo

Not a great video but I spotted an otter on the banks of the Mersey salewaterpark this morning. Great to see. #salewaterpark #Trafford #m33 #wildlife #mersey #salewaterpark

Ian Hill (@ianhill7) 's Twitter Profile Photo

Hey HSBC UK will you be passing on the latest interest rate rise to ISA accounts or just trousering it like the previous ones? #TimeToSwitch

Ian Hill (@ianhill7) 's Twitter Profile Photo

Hi PureGym is the air conditioning not working properly in Manchester Stretford or have you just turned it down/off to save costs? Although, them having all the windows open (again) and letting all the hot air in from outside doesn't really help either!

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#ThereSheGoes It still hits true and depicts the realities & little moments life throws up as a #rarechromo parent. It just keeps on delivering & removing the mystery of our world & a shout out in the episode for Unique too 😊 #idic15 #dup15q

Unique (@unique_charity) 's Twitter Profile Photo

If you've received a diagnosis of a rare #chromosome or #gene disorder for your child, as the Doctor on #ThereSheGoes says, do get in touch with us at Unique. We can help and we are there for you. See rarechromo.org

Ian Hill (@ianhill7) 's Twitter Profile Photo

#ThereSheGoes got me thinking, what does #rarechromo #rarechromosome look like? Sheer determination like this, carrying a stick way too big for him but carry it he must 😂 #idic15 #dup15q

#ThereSheGoes got me thinking, what does #rarechromo #rarechromosome look like? Sheer determination like this, carrying a stick way too big for him but carry it he must 😂 #idic15 #dup15q
Ian Hill (@ianhill7) 's Twitter Profile Photo

Did you watch #ThereSheGoes last night? If so, you'll have heard Unique mentioned. They're a superb charity & #rarechromoday an annual initiative to raise awareness & donations to support the work they do. A post from my blog to mark the day. dadsviewof15q.wordpress.com/2023/06/21/rar…

Unique (@unique_charity) 's Twitter Profile Photo

Did you know, 16 babies are born w/a rare chromosome or gene disorder every day in the UK? At UNIQUE, we're here to offer support & advice. Follow us for stories & updates on rare chromosome & gene disorders and join us in celebrating Rare Disease Day this year ! #UniqueAndRare

Did you know, 16 babies are born w/a rare chromosome or gene disorder every day in the UK?  At UNIQUE, we're here to offer support & advice. Follow us for stories & updates on rare chromosome & gene disorders and join us in celebrating Rare Disease Day this year ! #UniqueAndRare