Thank you to Signature Upholstery for once again generously supporting us during our Birthday Month cape sponsorship drive.

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Really excited to be introducing I Am Super capes to our Hampshire Hospitals Children’s departments 🙌🏻👏🏻 What a fantastic insight into this family run beauty lead by Claudia 🎉 Check out the interview here 👉🏻 facebook.com/52086204829842… #childrenshealth #happinessiskey

Today we are thinking of...

Our Big Ambition is that all families who have a child affected by a syndrome w/out a name get the support they need, when they need it. We want it recognised that being #undiagnosed is not always a temporary stage-the genetic cause of some conditions may never be known. *LR

We've got an #undiagnosed #genetic conditions information event coming up in London on 1 March. Would you like to come along? ow.ly/4xdd30h042l

Our lovely Parent Rep for East Sussex, Marie Pritchard has a stand at the Family Fund event today in #Brighton at Brighthelm Centre 10am-2:30pm. If you're in the area come and say hello! #undiagnosed

After our successful #Newcastle event, we've got undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London. Pls RT to get the word out to families Contact! To find out more and register click here: ow.ly/iqzf30hcC9W

Hi Rainbow Trust Children’s Charity please can you RT to help us get the word out to families about our #undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London? To find out more and register click here: ow.ly/iqzf30hcC9W #charitytuesday

Here in Bristol we held a Christmas Party Hop Skip and Jump. LJ

Every week we send balloons to children who have been in hospital so that we can put a smile on children’s and families’ faces and let them know that they aren’t alone. To find out more about the support that SWAN UK offers, visit: undiagnosed.org.uk #undiagnosed

We have been away for a little while, but we are hitting the ground running in 2018 & are starting with Winchester Young Carers & Winchester Hospital. Our first Super Sewing Day is this month. Please come along and help us sew as many capes as possible.

'Without a #diagnosis you allow yourself to think, "perhaps it’s nothing, perhaps it will go, perhaps I’m just being over protective and neurotic".' ow.ly/YZdg30hV5VB #undiagnosed

'The impact of getting a diagnosis through genome sequencing is huge. When there is a diagnosis it's often just a string of letters and numbers & it's hard to know where to go for support. SWAN UK still provides support for families whose children have received a rare diagnosis.'

We're doing a big shout out to Amanda Wathen amanda wathen who is running the TCS London Marathon for SWAN UK! Please help spur Amanda on and donate through @VMGiving: ow.ly/RRzD30iaw5M. Interested in doing something similar for SWAN UK? Email us: [email protected]

Want to find out more about the Genetic Alliance UK team? Genetic Alliance UK is the charity that runs SWAN UK. You can find out about us here: geneticalliance.org.uk/our-team/. We had to capture Jayne, Mariana, Nick and Lauren who came to work unwittingly dressed as a pack of fruit pastels!

We are getting excited 🤡 for Wednesday night . #stardustcircus #realfooddubbo The Project Sunrise Today Show... fb.me/6TTebL43z

We can't wait to share our family videos for Undiagnosed Children's Day! #UCDsuperhero x.com/RedGoatFilms/s…

So proud of my boy. He is such an amazing big brother. x.com/swan_uk/status…

Only 4 months to go! A big thanks to all our production partners, sponsors and volunteers who have committed to supporting Graze Festival 2018 🎪🎭🎸☀️🍻 #winchester grazefestival.com/our-supporters/