heart rate in the low 40s. tight chest. dizzy. pain flare. gonna be a long night 😕

"Where does it hurt?" 😂 #EDS #EverythingHurts

important neuro appt tomorrow 😕 hoping for some answers 😌😌

started occupational therapy today and saw my therapist googling my diagnoses 😐

one of those nights when i feel like no one understands 😔

thunderstorms for 4 days straight during finals week 🙃 bad timing

i always feel bad complaining about family trips but they are just so exhausting 😅

has anyone tried an anti-inflammatory diet? (no gluten, soy, dairy) I would love to hear anyone's opinion or results :)

had a productive appt with a new pulmonologist today. i really liked him and i'm staying hopeful about his new treatment ideas :)

can't decide if i'm normal people sick or if i've just overexerted myself 🤔🤢

my AP Psych textbook says that weather changes worsening chronic illness symptoms is a myth and an illusion 🙄🤔

Anyone else constantly clench their jaw through the day? starting to bother my teeth/jaw and Idk if it’s because of stress or pain 🤔🤷🏻‍♀️

so much schoolwork but so much pain :/ i feel like i’m drowning in work

i’m on the highest dose of muscle relaxers that i’m allowed but every time I move or take a deep breath both sides of my back spasm 😅 oww. anyone have any advice?

Your account is so inspiring and I know that it's not just me who appreciates having you as a part of my life! x.com/ehlersdanlosgr…

starting botox injections today to hopefully better manage my dystonia 😬 really hoping this works!!

MRI today. Surgery scheduled in 3 weeks. Ankle reconstruction surgery # 2 on the same ankle. Let’s do this

Double ear and sinus infections 8 days before surgery 😞 Really hoping that this doesn’t mean my surgery is going to get postponed

had my ankle reconstruction surgery this morning. i’ve been given morphine, demerol, dilauded, and percocet since and nothing is touching the pain 😖 really hoping something starts working soon

a concussion the weekend before exam week is such bad timing 😒