🌟 Proud beyond words! Our amazing daughter Carmela Chillery-Watson has been awarded an MBE the youngest ever at just 11 years old! 👑 Her strength, courage & advocacy for muscular dystrophy inspire us all. #YoungestEverMBE #CarmelaChilleryWatson #MBE Muscular Dystrophy UK Julia's House Children's Hospices

Today is the day I start 28km walk during the month of February for Dementia UK in honour of my nana. Check out my JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/page/carmelawa…

DAY 1 Dementia UK walk for month of February in honour of my nana and other families affected. Please help with supporting use my sponsor link here. justgiving.com/page/carmelawa…

Tragedy in Australia: parents choose to die with their children and pets, after being abandoned by the system. It’s a sentence that hits like a boulder. One of those you read once and never forget. Because behind it is not just news, but a total human collapse. It happened in

BBC News (UK) Are any NHS staff speaking up against the mistreatment of severe ME/CFS patients?

"Remember that #sunscreen needs to be reapplied approximately every two hours. The effect of #chemical sunscreen wanes after you apply it, and most #sunscreens tend to be sweated off.": buff.ly/bSZHIQh via @harvard #skincare #PublicHealth #suncare #CancerPrevention

and your ableism

only when no one is watching, and when having to sit uncomfortably

“I’m 37 years old and at a healthy weight, and my body feels like I’m 90 years old. It hurts to move, washing my hair hurts… it’s a good day if I can lift my arms.” 12 People Describe What It's Like to Live With #ChronicPain buff.ly/3prnhkm #Disability

The story of living with chronic illness is not a joke or merely a superficial talk chronically ill people just say and go. #chronicillness

It's rather like a live show of daily struggle and continuous suffering that have no end yet and I think,won't come to an end in the foreseeable future #chronicillness

"Then there are the #BrainRewiring #apps ..Across platforms, the #metaphor suggests speed, precision and personal control – qualities that #biology itself rarely affords.": buff.ly/TEOj5AE via Aeon Magazine #neuroplasticity #brain #MentalHealth #PersonalDevelopment

With your attacks on the NDIS more families sadly will die. Anthony Albanese Jim Chalmers MP

“It really doesn’t make much sense to continue to push beyond our limits… We end up in a vicious cycle of more #pain, tiredness and other worsening #symptoms. All of which remove more and more control over our daily lives.” buff.ly/xZqlg2a Sam Moss #chronicillness

“There’s a lot of work that goes into appearing “fine.” The problem for so many who live in my world of #chronicillness is that we never fake being ill — but we’re masters at faking being well.” To Those Who Don’t Understand Why I’m Smiling & Sick buff.ly/3sg3qFD #spoonie

"As I realized my world in #Taiwan was ending, I..said these words: “I am loved & people care about me. I will no longer put any1 else above my own #safety & #wellbeing.” The most radical thing I’ve done in 17 years is #choose myself.": buff.ly/hVyASHi by Carrie My Several Worlds - SpA & Fibro Advocate

Interesting manoeuvre. The BBC, which has been trying to smear Sir Keir Starmer since he became PM, is now using the Prime Minister to try to smear Zack Polanski who has emerged as the bigger threat to media and business elites. Sir Keir is warming to his new role on #r4today.

"The main #character in this #book, Noah the #narwhal, suffers from chronic #migraines. It features 3 very common scenarios that any #ChronicIllness person will have to face in their lifetime — dealing with work, friends & family.": buff.ly/hpxobzp #ChronicPain #spoonie

Don't worry, I'm sure Chris Mason will be all over this once he's finished investigating the free glasses Sir Keir Starmer allegedly received in 2020. #r4today

“The world will knock you down plenty. You don't need to be doing it to yourself.” Tools to Cope With the #Stress of #ChronicPain & Ease Difficult Thinking buff.ly/3BsaIsA #ACT #mentalhealthmatters #depression