Research on #adolescents and #youngadults with #endometriosis in the US finds numerous barriers to treatment such as lack of health policies, #stigma, and high costs. Full article: doi.org/10.1007/s13178…

Just got cited in an article on #hipdysplasia & sexual functioning! The study links acetabular dysplasia (a risk for pelvic floor dysfunction) to impacts on sex & mental health. Gynecologists, urologists & orthos need to understand the hip-pelvis connection.

Not all providers realize that “tight” in #EDS isn’t the same as in other conditions. A tight #pelvicfloor may be the body’s way of compensating for widespread instability—sometimes, it’s the only support system holding things together.

Our abstract is published in The Journal of Sexual Medicine! Full article coming soon. We explored how Slipping Rib Syndrome (#SRS) can impact sexual pain, function, & disability. academic.oup.com/jsm/article/22…

Being listened to and validated in clinic shouldn't be considered exceptional or framed as "going above and beyond."

Thrilled to see another publication emerge on my favorite topic - hips and sexual functioning! esskajournals.onlinelibrary.wiley.com/doi/10.1002/ks…

I'll be attending the amazing MIND 2025 Conference. Let me know if you're planning to attend so that we can say Hi! Or register now and join me at the event! whova.com/portal/registr… @MIND2025 #MIND2025 #MUSCMIND - via #Whova event app whova.com/portal/registr…

The recent FDA approval of Journavx (suzetrigine) marks a groundbreaking step forward, which is a non-opioid alternative for treating moderate to severe acute pain. This could significantly reduce the risk of opioid misuse, abuse, and the development of opioid use disorder.

Yesterday, I heard a doctor encourage patients to use Google—to take matters into their own hands and seek out information. It was the first time I’d ever heard that, and it felt incredibly validating, both for myself and for so many other patients I know. #advocate #EDS

#vulvodynia #vestibulodynia #vulvarpain

June issue of #IJIR IJIR: Your Sexual Medicine Journal is devoted to Rare Sexual Disorders. Special thanks to our guest editors Doç. Dr. Murat Gül and Suks Minhas To read content 👉 nature.com/collections/ah… Premal Patel, MD Dhiraj S. Bal Faysal A. Yafi, MD FRCSC Herman Leliefeld Prof Frans Debruyne Cobi Reisman Paul Chung

Healthcare providers: Please inform patients when you relocate or change practices. For those relying on specific meds, sudden changes can delay care, create stress, and cause harm. A simple notice protects your patients’ time, health, and trust. #PatientCare #EDS

Rib Head Syndrome ≠ Slipping Rib Syndrome (SRS). - Rib Head = thoracic rib head subluxation → spine pain, nerve symptoms -SRS = lower rib cartilage instability → abdominal, flank, or chest pain Different mechanics, different ribs, same frustration. #ribs #thoracicspine #chest

How can we expect to change patient attitudes or outcome expectations when environmental & external factors weigh most on behaviors like med adherence or PT? Without tackling structural barriers, individual-level interventions remain ineffective & superficial

#phd I’ve created a Facebook community for doctoral students, post-docs, and research scientists navigating chronic health conditions. This group is designed to be a supportive space for connection, encouragement, and understanding. lnkd.in/gnxJhjiT

Research shows that quality-of-life in #POTS is worse than quality-of-life in other diseases that are taken much more seriously by medical providers, like cancer & HIV. Help us change that by making a donation at CureDys.org during #DysautonomiaAwarenessMonth.

Chaikof & Newton-Francis (2025) explore how students with #endometriosis navigate pain while balancing academic demands. Key takeaway: campus policies & supports often fall short, leaving students to self-manage in silence. 🔗 doi.org/10.1037/dhe000…

EDS and HSD can lead to pelvic instability, which may prompt the pelvic floor muscles to become hypertonic as a compensatory mechanism to stabilize the pelvis! In these cases, 100% pelvic floor relaxation is not appropriate for these patients.

Chronic pain isn’t just biological, it’s shaped by every layer of life. Individual → relationships → healthcare → community → society. Real change means treating symptoms and transforming systems. instagram.com/p/DQj8irMEQmS/…

Let patients bring the articles, webinars, and posts they’ve found into the conversation. That’s not misinformation — it’s someone doing their best to understand their body in a system that often leaves them searching for answers. #raredisease