Jo Hunt (activism, also @JoElizaHunt for papers)
@healthhubris
Disabled psy therapist, researcher & activist. #MECFS #Chiari #CCI #EDS #longCovid. she/her. Animal lover. Here for intersectional social justice
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Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
😷🇵🇸⛵️ Capt. Caffiend ☕️ 🇵🇸😷
@capt_caffiend
Likes Coffee, Cake, Canines & Curse-words. Pākehā. PhD Student-Women's Health. Feminist Killjoy. #pwLC. Keep in touch via: capt_caffiend-hello at yahoo dot com
Martin Arber CQSW; BA;
@thearbers
social worker in East London for 15 years, then moved into Training and Lecturing. In 1987 had to retire due to health problems. Eventually diagnosed with ME,
Paul Keeble ME/LC
@paulrkeeble
ME since 2016 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 - 2.1 (Severe)
Independent Living
@indliving
Tweets from Frances Leckie, editor of the Independent Living website & weekly newsletter
Nanna Hlín
@nannahlin
I'm often sick, I have studied a lot, I really love hugging my son, I finally have a good university job but need more fun.
Hugo
@mx__worldwide
They/them | 29 | ME/CFS since 2016, v/severe since covid in 2022 (now 99% bedbound) | Severe hyperacusis | Pro disability justice & pro 🇵🇸 mxworldwide on 🦋
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Isabel Jordan (She/Her)
@seastarbatita
Parent. Patient Partner. Feminist. Nerd. I am congruent. #PatientsIncluded #ItDoesntHaveToHurt (Avatar from @blackmudpuppy) [email protected]
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Dr Keith Geraghty
@keithgeraghty
Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based researcher & chartered psychologist |@FBMH_UoM, @PrimaryCareMcr
NickyProctor
@nickyproctor
Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
shelley-lee waller
@shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD
A 😎 Long Covid + MECFS Billboards
@aaronca11
@lcmebillboards @lcmepirates notrecovereduk.org
Ana Sofia Pinho
@anasofiapinho
Building regenerative companies @3101co. Reimagining work @Humankind_Works. #MECFS #LC
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Respect Yourself
@respectyourself
Charity believing in young people's future, supporting through positive messages. For daily information follow @RYDaily. #Ineedhelp123.
Jo D 😷💙
@jod66
Trustee of Long Covid Support @long_covid, Mason Bee Guardian, #FBLC #LongCovid #TreatLongCovid
Judy Hamilton
@secretspartacus
@secretspartacus
Sally Bourliakas 💙
@sallybourliakas
Covid is Airborne wear FFP2/3 masks! Air filtration needed in schools & workplaces now! I’ve had long covid for 4+years. Mum, scientist, Sci-Fi reader ☮️ 🐈 🪄
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
sean stidston
@seanstidston
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Nancy Francis 🏳️🌈🇵🇸
@athanasiafr
@LivUni (trans)feminism & phenomenology, social anthropology, Basque studies, transnational movements.Ahizpatasuna. GBV survivor. Balkan immigrant, crip.she/her
Madeleine ThriftVIP®
@thriftvip
Evolving ThriftVIP #Dissabled #MEFibro ☆Unique.Eclectic☆Style #MyalgicE 30yrs ‘a luta continua’ - the struggle continues #LC Opinions my own #TryingToThrive
Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Fen, MD
@fvrhijn
💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
Esther 🔶🙏⚖️🌈👁
@room303andmore
The Force is with us
Lara Crowther - Covid is Airborne
@fillthewhole
BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Jonas R. Kunst (@kunstjonas.bsky.social)
@kunstjonas
Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Editor @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
julie
@justbeingjulie
Sarah Schafer MD MPH
@sarahschafermd
See Sjogren's Advocate, @sarahschafermd.bsky.social. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease.
Madeleine EP
@ep_madeleine
often painting, sometimes words. mostly underwater. Project manager @AllAboutTrans
Academic Parity Movement
@academicparity
A non-profit organization that aims to uproot academic harassment, bullying, and discrimination in our science backyard.
Ileana Naish-Guzmán
@ileananaish
FIA. The actuaries know.
N.Crawford 🐈⬛🌹🌿
@caitshith
eco-socialist. disabled with moderate-severe viral ME, neurodivergent with adhd + autism. RT-heavy account due to energy limits. I boost mutual aid. she/her
لا 🍃
@nuancednuggets
Clinical Psychology PhD. Lapsed academic.🩵&🧠: Displacement. Fractured MENA homelands.Intersectional Feminism. Liberation.The medically maligned.🇱🇧🏳️🌈🇵🇸
Catherine McCullough FRHistS
@catherinemuseum
Museums, maps, social history; PhD-EU & cross-border museum projects; Author: IHTA Armagh; sailor;'enthusiastic maverick'! Life interrupted LongCovid/POTS/MCAS
A. A. Leitch
@allyleitch2909
Recent Social Policy DPhil Graduate from @DSPI_Oxford / Early Career Academic (Social Policy, Political Economy, Politics, Sociology) / Views own etc.
Vera Kubenz 🇵🇸 she/they
@vera_kub
PGR - Encounters with strangers in accessible parking spaces. Disability / queer / media studies. Views own. #BWithTheT
Kirstie Stage
@stagekirstie
Researching histories of Deaf and disabled people 1970-2010. Views my own. @UKDisHistHub. Sign name: cheeky. Photo credits: Lloyd Mann & name in braille @RNIB.
kenna
@kenna_lindsay
Artist
fauzia
@itsfauziakhan
Still figuring out how to use Twitter… PsyD Trainee (on LOA) & Asst. Psychologist | Interviewer | Views own | Retweets ≠ endorsements
Michael Alexander
@michaeltikus
I like animals 🐙 Covid? Not so much. Views my own. @Long_Covid @RenegadeRes @WeCrunchME @OneSpoonProject
Merel
@merelpianist
Freelance pianist/accompanist Choir Leader @lckchoir2022 Choir Leader @longcovidchoir Vocal Coach Piano teacher Film/TV 🇱🇺 in London Long Covid
fhronesis
@fhronesis
#ME #EM😶🌫️🐚🐌 #KeepMasksInHealthcare Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
Society for Disability Studies
@dis_studies
SDS is a lively scholarly association of more than 400 artists, scholars and activists who promote Disability Studies.
Alternative Information and Development Centre
@aidc_rsa
The Alternative Information and Development Centre is focused on fighting for a just transition to a low-carbon, wage-led, sustainable and equitable economy.
Pyrgus Malvae
@atpyrgusmalvae
POC psych survivor, #intersex & #disabled, masked anticapitalist #TeamClots #CovidIsNotOver #AntiCarceralFeminism #DisabilityJustice #AbolishPsychiatry
Larry Weis
@larryweis7
#ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
elle carnitine 🍉
@elle_carnitine
immunocompromised • made & kept sick by the state • kept alive by my beloved @predi_cam_ents🪳
HopeStarMasacre
@mscrestarhope
self conscious deleter of lukewarm tweets // disabled as fuck with ME/CFS, MCAS etc. // 🇲🇽✡️. pronouns are they/them.
KeepingHope95
@keepinghope95
Disabled Advocate, Progressive Liberal, 💙🌈🏳️🌈🏳️⚧️ She/Her Exvangelical & Atheist #FBLC #EDS #LongCovid since 3/2020-pre-vaccine. #pwME ❌MAGA and ❌DM’
zedsrigil
@sunsweptforest
forest.haven they/them AuDHD me/cfs and more nature music outer space
#NotJustFatigue
@njfatigue
We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue. Donate today👇
Alex☮︎
@aelvidra
●(v)severe ME ●CCI ●EDS ●Gofundme: gofund.me/52e226b8 🅾instagram: @alekpalek ♥︎ Please concider donate to save my life ♥︎
Yann me-cfs.bsky.social
@yann_mecfs
I’m more active on BSKY now bsky.app/profile/me-cfs…
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
Proinsias Ó Martain
@fmm0179
Mark Vink, MD
@huisarts_vink
Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Louis Strappazzon
@frenchlouis4
24. 🇬🇧 From Sheffield, born in🇫🇷. Politics, music and sports. MUFC and Miami Heat. UBI Lab Manchester.
Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.