Hayley Chang
@hayleychang9
MD/PhD Candidate @rocmstp, G1 @CNL_Rochester doing things with 🐁 & 🧠
ID: 1178851342225477632
https://www.urmc.rochester.edu/education/md-phd.aspx 01-10-2019 01:57:21
135 Tweet
107 Followers
299 Following
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Phillip Kyriakakis
@breakliquid
Senior Research Scientist at Stanford Bioengineering | Taking apart and building biology.
James Ennis
@jamesennis90
Northern Ireland Rep for Cystinosis Ireland / Cystinosis Network Europe (CNE). Rare disease advocate, Cystinosis & Kidney transplant patient. Views are my own
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Albert Einstein College of Medicine - Official
@einsteinmed
Albert Einstein College of Medicine: Educating students to become caring, skilled physicians and fostering biomedical and translational research.
KU Leuven
@ku_leuven
Nieuws van Europa's meest innovatieve universiteit | News from Europe's most innovative university | Updated by the Press Office | #kuleuven
Barretstown
@barretstown
Childhood stops for seriously ill children. At Barretstown we Press Play on childhood. #PressPlay Registered Charity Number (RCN) 20027759
Avril Kennan 🌍
@avrilkennan
CEO, Health Research Charities Ireland - @HRCIreland (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
Health Research Charities Ireland - HRCI
@hrcireland
National umbrella org supporting 45+ charities active in health, medical & social care research. Also run the Irish Health Research Forum. Charity No. 20052973
SanfordCoRDS
@sanfordcords
CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry - Enroll today and share your #data! bit.ly/2hrrjlS
Ming "Tommy" Tang
@tangming2005
Director of bioinformatics at AstraZeneca. YouTube at chatomics. On my way to helping 1 million people learn bioinformatics. Also talks about leadership.
Rare Diseases Ireland
@rarediseasesie
Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
Medium
@medium
Everyone has a story to tell; find ours on Medium, Instagram/Threads (@medium), LinkedIn and medium.com/blog/newslette…
Andrew Varble
@andrewjvarble
Assistant professor at University of Rochester Medical Center in Microbiology and Immunology studying CRISPR and HGT
Dani S. Bassett
@danisbassett
Professor, University of Pennsylvania, & Santa Fe Institute. Author of Curious Minds: The Power of Connection (MIT Press). | 🏳️🌈 they/them.
Orphanet
@orphanet
The reference portal and knowledge base for information on rare diseases and orphan drugs. Orphanet nomenclature, ORPHA codes, Orphanet RD Ontology @inserm
RD-Connect
@connectrd
An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research
Cathy
@thecathyliu
Medical Student @URochester_SMD || alum @georgiatech + software engineer @vmware @amazon in a previous life
Cystinosis Hub
@cystinosishub
CystinosisHub.com
Pediatric Nephrology
@ped_neph
Original clinical research and reviews on all aspects of acute & chronic diseases affecting kidney function in children. Official journal of IPNA @IPNA_PedNeph
IRDiRC
@irdirc
#IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
Yanya Ding
@yanya_ding
Elena Levtchenko
@elenalevtchenko
Levtchenko's Lab
@levtchenkol
Levtchenko's Lab is a Pediatric Nephrology laboratory at KU Leuven, Belgium.
Koenraad Veys
@koenraadveys
Father, loving husband and pediatrician with a heart for pediatric nephrology and cystinosis
JointMeeting
@jointmeeting
The AAP/ASCI/APSA Joint Meeting is the Premier Meeting for Physician-Scientists. The meeting is the combined annual gathering of attendees from AAP, ASCI & APSA
Christopher Kilner, PhD
@classicck
Carbon Removal Scientist @Isometric_HQ | 2017 Mitchell Scholar 🇮🇪 | 2015 Goldwater Scholar🔬| AMDG CX, CXV 🏳️🌈
William Aisenberg, PhD
@willaise
Postdoc @FChrisBennett lab studying microglia replacement to treat brain disease. Frmr @sumnerlab grad student
Adrian Molina
@ammolinavargas
Jillian Ramos
@jillianramosphd
Scientist 🧬and Elite Powerlifter⛓
Neuromatch
@neuromatch
Global research training in computational sciences. Learning. Sharing. Inclusion. Worldwide. Community. Also here: neuromatch.social
Daniel D. Han
@danieldwhan
M2/G1 MD/PhD student @RocMSTP 🐝 | @URSMDCIG Leader🫀| @UCBerkeley '20 🐻
NEJM Evidence
@nejmevidence
NEJM Evidence, a new journal from NEJM Group, presents innovative #OriginalResearch and fresh, bold ideas in #ClinicalTrial design and clinical decision-making.
The PhD Place
@thephdplace
Empowering doctoral researchers through community 🎓 Follow @AcademicCourses ✨
NeuroWoodworks
@neurowoodworks
Developmental neurobiologist / artist. I sculpt biology in wood.
Michael Chin, MD, PhD
@mtchinmdphd
cardiologist scientist educator entrepreneur Tufts MSTP Director GSBS Dean My opinions are my own @tuftsmcresearch @tuftsgsbs @tuftsmedschool @chinlabtufts
Alison Livada
@alison_livada
MD/ PhD student at #URMC more accurately a nerd obsessed with eating, cooking, dancing
Rare Disease Clinical Trial Network, Ireland
@rare_trial
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Sketching Science
@sketchscience
Science, Memes, Art, and Internet. Created by @neto_flames
Cystinosis Connectio
@cystinosis_c
Cystinosis Connection is a new Facebook site where patients and caregivers can connect, share experiences and make new friends
Sante Berlingerio
@s_berlingerio
Postdoc in Pediatric Nephrology at Amsterdam UMC
Shlomit Beker
@shlomitbeker
Asst Prof @MountSinaiPsych @SinaiBrain • Studying how people with disorders are synced with their environment • migrating to: shlomitbeker.bsky.social
Mark Ayor Osabutey, MD, MS
@mark_osabutey
🇬🇭 MD @KNUSTGH ➡️ 🇺🇸 PhD Neuroscience 🧠 candidate @URNeuroscience @UofR @URochester_SMD | Budding physician-scientist | Vocalist 🎶 | Opinions mine
Şeydanur Reisli
@seydareisli
Scientist at Bristol Myers Squibb | Neuroscience PhD
RARE Ireland
@rareireland
We are a parent led charity organisation founded since 2017 providing support for families of children with rare conditions in Ireland-RCN 20206340 #rareireland
Sam Weisenthal
@samweisenthal
@samweisenthal.bsky.social stats ∩ medicine
UT Dallas Chemistry
@utdallaschembio
Official Twitter account for the Department of Chemistry and Biochemistry at the University of Texas, Dallas
Imaging Neuroscience
@imagingneurosci
The leading non-profit journal of brain imaging
Achim
@achimtreumann
Tara McMorrow, PhD
@mcmorrowtara
Associate Professor Pharmacology & Toxicology;UCD School of Biomolecular & Biomedical Science;UCD College of Science; Director of UCD Centre for Toxicology;Mum