
Haemophilia Society
@haemosocuk
We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
ID: 124145512
http://www.haemophilia.org.uk 18-03-2010 11:58:06
6,6K Tweet
4,4K Followers
708 Following

ISTH
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Plan to learn the latest science and network with global leaders at the #ISTH2025 Congress in Washington, D.C. Early registration ends April 22: isth2025.org
Cancer Research UK
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Weโre the world's leading independent cancer charity dedicated to saving lives through research, influence and information.
National Bleeding Disorders Foundation
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Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
BioMarin
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Diana Johnson DBE MP ๐ฌ๐ง๐บ๐ฆ๐
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Labour MP Hull North and Cottingham. Minister for Policing & Crime . โค๏ธStrong Yorkshire tea, cake, crime novels, black Labradors & a splash of red.
Michael Makris
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Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
ASH
@ash_hematology
The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
WFH
@wfhemophilia
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Andreea Weisl-Shaw
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Clive Smith
@clive_smith_
President of The Haemophilia Society, World Federation of Hemophilia Youth Chair, Criminal Barrister & Lecturer
Cesar A. Garrido
@cesargarridod
World Federation of Hemophilia PRESIDENT
George Parker
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FT Political Editor, former Brussels bureau chief, presenter R4 Week in Westminster. Sometimes seen at Selhurst Park and County Ground, Taunton
haemnet
@haemnet
Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Nick Warren
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Print production editor at the Exeter Express & Echo. Previously covered Exeter Chiefs and ran a lot before family life took over
Joy Chatters
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Happily retired journalist, retired Rotarian, mother of one, wicked stepmother of two and independent grandmother and great grandmother! #oneinamillion.
Orchard Primary Sch
@orchardprimary
The official Twitter account for The Orchard Primary School - Watford.
Kirsty Mellor
@kirsty0285
Haemophilia Clinical Nurse Specialist
Dr Kate Khair PhD
@katekhair
Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and ๐๐๐๐
Laurence Woollard
@thewoollard
Director @PulseInSync | Patient advocacy and policy in rare disease | MSc Health Policy @imperialcollege | Severe haemophilia A
Last Drop Village
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17th Century village transformed into a modern unique destination ๐ Bedrooms ๐ Spa ๐ฐ Weddings ๐ Birthdays ๐ Celebrations Top Rated North West Wedding Venue
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An open-access journal for sharing experience in the care of people with bleeding disorders. Enquiries: [email protected]
Martin Threadgold
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Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life ๐ปโโ๏ธ
IrishHaemophiliaSoc
@haemophiliairl
The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrand disorder and other inherited bleeding disorders
Little Bleeders
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Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrarโฆ
Anne Penn
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MyHemophiliaTeam
@hemophiliateam
We are the private social network for those living with #hemophilia and other #bleedingdisorders. Join our community of 3000 members!
Parallel Lifestyle
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Disability lifestyle brand & social enterprise. Home to #ParallelWindsor, the UK's national celebration of disability inclusion & the #PurpleSockDay campaign
The Haemophilia Society's Inquiry Team
@haemosocuk_pi
Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
Katie White
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Haematologist, mum, runner and chocolate addict
Haemophilia NI
@haemophiliani
Haemophilia NI is a charity (NI charity number: NIC107635) based in Northern Ireland aiming to support local people and families affected by bleeding disorders
April Jones ๐
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Nurse Specialist for Haemophilia and other non malignant Haematology. Newcastle Upon Tyne, UK. Making a difference in Haematology ... I hope!
Unclottable
@unclottableuk
Unclottable! Ambassador for The Haemophilia Society. Trying to provide a voice for all bleeders!
Lorna Latimer
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Exercise Physiologist, University of Leicester (views my own, not my employers)
Infected Blood Australia
@infectedbloodau
Seeking justice for Australian victims of the Infected Blood Scandal
GO Awards
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The Government Opportunities (GO) Excellence in Public Procurement Awards have been celebrating the best in all aspects of public procurement since 2002.
NLC Pathways Programme
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A programme for young people focusing on key employability skills, vocational learning and a pathway to a positive post school destination.
Asociaciรณn de Hemofilicos Unidos del Paraguay
@dehemofilicos
La ASOHEMO promueve polรญticas pรบblicas dirigidas al tratamiento de la Hemofilia en Py. Entidad sin fines de lucro comprometido con la calidad de vida.
HaemophAmicus
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Haemophilia and Allied Disorders Slovenia/Europe ๐ธ๐ฎโก๏ธ๐ช๐บโก๏ธ๐
Nina Cecconi
@physioanin
3rd year Physio Student LBU. CSP Bame & LGBTQIA member. Lover of Hiking โฐ๏ธ/ ๐๐ฝโโ๏ธand Netball ๐คพ๐ฝโโ๏ธ. All views are my own ๐ณ๏ธโ๐๐ฎ๐น๐ฌ๐ฒ๐ฌ๐ง
Bleeding Yorkshire
@bleedyorkshire
The Yorkshire chapter of The Haemophilia Society. Supporting all those with bleeding disorders in the Yorkshrie region.
stacey doherty
@staceydoherty18
Works hard but plays harder โค๏ธ
michael
@michael56032051

DOLPHIN Haemophilia Exercise Study
@dolphinstudy
Using #physiotherapy and #exercise to improve #PhysicalActivity and health outcomes for young people with #haemophilia. Funded by @NIHRresearch. @HCPA11
Hemophilia Centre Aluva
@htcdh_aluva
Comprehensive Govt Hemophilia Treatment centre
Haemophilia Journal
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The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Infected Blood Compensation Authority
@ibca_uk
Call us on 0141 726 2397, Mon-Fri, 9am-5pm (excl. bank holidays). Email us at [email protected]. Sign up for updates: tinyurl.com/46u7khah
Layers Studio
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Digital studio Design valuable experiences From discovery to development Helping businesses worldwide Branding | Websites| E-commerce| Apps| Software
Helen Manson
@mrsm___
Mrs Mapsman to @mapsman, proud mum and Sister/Specialist Nurse in Bleeding Disorders Care. RCN NI Nurse of the Year โTeam Managerโ 2023 Own opinions here.
Cedric Hermans, MD, FRCP (Lon, Edin), PhD
@hermanscedric
Full Professor Haematology St-Luc Univ. Hospital - UCLouvain / Editor in Chief Haemophilia Journal WILEY - Director of the Board World Federation of Haemophilia
Mark Antony Ward
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Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood ๐ฉธ
Rare Action Network
@rareaction
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Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
MyPurplePatch ๐
@patch1purple

Cathy Harrison ๐
@cathyah1980
Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
All Things Business
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Sharing #BusinessNews from #Northamptonshire #MiltonKeynes and #Bedfordshire. In Print, Web and Social. Organisers of @NBEAwards_ @NEAwards_ & @MKEAwards_ ๐
EAHAD
@eahadnews
EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
EHC_Haemophilia
@ehc_haemophilia
The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Zara Head RN Queens Nurse
@zar_head
Queen's Nurse and Senior Clinical Project Manager at NHS South Yorkshire ICB. Passionate about Primary Care Nursing, IP&C, travel and languages. Opinions my own
Leeds Children's Hospital
@leeds_childrens
Leading the way in healthcare for children, young people and their families. Proud to be part of @LeedsHospitals. Supported by @LdsHospCharity
Brian O Mahony
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CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
WAPPS-Hemo
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Empowering hemophilia treatment through facilitating simplified PK assessment and enhancing knowledge about the value of popPK methodology in hemophilia care.
Leeds Hospitals Charity
@ldshospcharity
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HCPA
@hcpa11
Haemophilia Chartered Physiotherapists Association