haemnet
@haemnet
Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
ID: 303118729
https://linktr.ee/haemnet 22-05-2011 10:02:49
1,1K Tweet
1,1K Followers
372 Following
Mike Elhardt
@endlssquest
Blood Disorders Health Advocate, Severe Hemophilia A. New York Islanders, Yankees, Jets, WWE. Action Figures, GI Joe, Star Wars, Star Trek, Marvel, DC Comics
ISTH
@isth
Plan to learn the latest science and network with global leaders at the #ISTH2025 Congress in Washington, D.C. Early registration ends April 22: isth2025.org
Martin Theaker
@martintheaker
Claret to the core and a surviving victim of #ContaminatedBlood Severe Haemophiliac.
Megan Adediran
@meganhfn
Mother of 2 sons with severe #haemophilia A. Founder and Executive Director, Haemophilia Foundation of Nigeria. An Arsenal fan true and true….
Arizona Blood Alliance #AzBloodAlliance
@arizonableed
501c3 Organization Dedicated to increasing life-enhancing opportunities for Arizonans living with inherited blood conditions #Hemophilia #VWD #BleedingDisorders
Michael Makris
@profmakris
Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
WFH
@wfhemophilia
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
ISRCTN: the UK's Clinical Study Registry
@isrctn
A primary registry recognised by the @WHO and ICMJE, tweets from the editorial team at @BioMedCentral: biomedcentral.com/p/isrctn
Patrick James Lynch
@pjlynch
Founder & CEO, BelieveLimited.com, filmmaker & rare disease advocate
Haemophilia Society
@haemosocuk
We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
The Qual Guy
@abookclubof1
Qualitative Research, Gene Therapy, Rare Diseases, Bleeding Disorders, Cardiomyopathy, Nursing, PhD Life and Books...lots of books (He/Him)
Hemofilia México FHRM
@hemofiliamexico
A.C., de personas con Hemofilia y otros trastornos sanguíneos en México. Contactos: linktr.ee/hemofiliamexico
Lotte Haverman
@lottehaverman
Clive Smith
@clive_smith_
President of The Haemophilia Society, World Federation of Hemophilia Youth Chair, Criminal Barrister & Lecturer
lynn malec
@malecly
pediatric/adult hematologist with hemophilia focus, passionate to improve care for women/girls with bleeding disorders, clinical researcher, proud cheesehead
Cesar A. Garrido
@cesargarridod
World Federation of Hemophilia PRESIDENT
Elizabeth McIntyre
@lilmacca81
Married Ian in July 2011 and have two little beauties, Orla and Freya. Life is good :-)
caterina casari
@caterinacasari
Researcher at @InsermU1176 ❤️science, sharing #VWF & #VWD Previously @UniFerrara @UNC Supporting #ISTHEarlyCareer
Conan McIlwrath
@conanmci
Chairman, UK Haemophilia Society, Co-Chair family’s of Haemophila NI, Leakage FM NI Water, Big Toon fan, but my most important role - Dad! Opinions are my own!
Dr Kate Khair PhD
@katekhair
Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Laurence Woollard
@thewoollard
Director @PulseInSync | Patient advocacy and policy in rare disease | MSc Health Policy @imperialcollege | Severe haemophilia A
Hemophilia Foundation of Northern California
@hemofoundation
Hemophilia Foundation of Northern California - nonprofit organization serving needs of people with hemophilia, VWD, and all other bleeding disorders
Hemofilija.lv
@hemofilija_lv
Par un ap cilvēkiem ar retiem iedzimtiem asins recēšanas traucējumiem Latvijā. Hemofilija, Villebranda slimība, pavisam retie faktoru deficīti.
Ann Devos
@devosann
I am a haematology nurse at University Hospital Antwerp, department of Pediatrics on Red blood cell disorders and haematology adult transplant registration .
Hazri Aris
@hazriaris
I’m just a simple man, trying to make my way in the universe.
Trevor Baglin
@trevorbaglin
Investment Advisor Medicxi
Genomics England
@genomicsengland
We’re working to enable faster and deeper genomic research, to bring genomic healthcare to all who need it.
N. Jansen
@naatepetaatje
BSMS
@bsmsmedschool
Brighton and Sussex Medical School is an equal partnership between @SussexUni & @uniofbrighton together with #NHS organisations.
The Lancet Haematology
@thelancethaem
The Lancet Haematology is a world-leading #haematology journal publishing peer-reviewed research and reviews, opinion, and news. #hematology
CoalitionHemoB
@coalitionhemob
Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B.
Mary Cushman 🫀🧠🩸
@marycushmanmd
Hematologist, University Distinguished Professor & Vice Chair for Emerging Researchers, @UVMDeptMed. Co-Director @UVMHeartBrain. Views mine
dr dhwanee thakkar
@dhwaneethakkar
Ray McKeown
@thedatamanager
Data Manager at NI Haemophilia Comprehensive Care Centre, Belfast City Hospital. Views, tweets and/or opinions are my own unless they are quotes or retweets.
Michael U Callaghan
@hemagineer
Husband. Dad. Classical Hematologist. Drepanocyte Handler, Hemagineer, Hemophiliologist, Thrombonaut, Podcaster.
stephtaylor
@sctx2yahooco1
Bethany Samuelson Bannow MD, MCR
@bsamuelson_md
Hematologist, wife, mama to 2. Passionate about equal care and representation in research for women and all patients with bleeding disorders. Tweets my own.
The Haemophilia Society's Inquiry Team
@haemosocuk_pi
Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
David Lillicrap
@davidlillicrap
Queen’s U prof researching molecular aspects of blood clotting. Co-Editor in Chief (w/@JHMorrissey) of the Journal of Thrombosis & Haemostasis @JTHjournal
Megan Brown MD
@meganbrownmd
Pediatric Hematologist. Spartan. Jesus follower. Passionate about the intersection of hemostasis and women's health. All views are my own.
Ben Samelson-Jones, MD, PhD
@drsamelsonjones
Pediatric Hematologist | Gene Therapist | Biochemist | Husband | 👩👦👧👶 🐕 Dad | #WilliamsSyndrome Advocate | Views my own
J Roberts
@jonrob08
Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
Jessica Garcia, MD
@drjessgarcia
#girlmom,#wife,#FirstGen,#26.2|🇲🇽🇺🇸|@UofIllinois|@UICOMPeoria|@MedicalCollege| peds heme, bleeding & clotting doc @UTSW_PedsHemOnc|Asst. Prof| Tweets=own.
HaemophAmicus
@haemophamicus
Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
HEMOSTASIS CONNECT
@hemeconnect
Independent Medical Education from COR2ED developed by HEMOSTASIS CONNECT, international experts in bleeding disorders. cor2ed.com/community-guid…
stacey8892
@stacey88921
Mama- Cancer survivor - I teach nursing @QUB and loving it! Nurse for life! Interested in bleeding disorders, rare diseases, stroke care and education
Niamh Larkin
@niamhlarkinanp
Advanced Nurse Practitioner in Haemophilia, mum, wife, taxi, coach, shopper and student!!
ATHN
@athnnews
At ATHN, our goal is to secure data, advance knowledge, transform care—and ultimately improve the lives of people with bleeding and clotting disorders.
Sección Hemofilia de Sociedad Hematología
@hemofiliacuba
Sección dentro de la Sociedad de Hematología. Paso a paso hacia mayor calidad de vida entre hemofilicos. Canal de telegram t.me/HemofiliaCuba
Trolliebobs♿❤️💛🖤🧩🌈🐕
@trolliebobs
Autistic Advocate, Ally, Disabled Father of 4. Holding this Government to account for it's atrocities in the Contaminated Blood Scandal. May swear a bit...
flora peyvandi
@flora_peyvandi
Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Panagiotis Christoforou
@haemsummit
MD, Haematologist specialising in Haemophilia and Rare Bleeding Disorders. Currently Clinical Fellow in RLH @QMUL EHC steering committee member. Mountaineer⛰️
Haemophilia Journal
@haemophilia_jnl
The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
Melanie Richmond - Piesse
@pupstudy1989
long term campaigner for all Infected blood victims, to recieve the justice they deserve. infected and added to PUP study in 1989.
Sunny M
@sunnymvwd
Director of Corporate Strategy for Haemnet. Creating a better life for those woth VWD. Voice for the voiceless
Mark Antony Ward
@haemosexual
Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood 🩸
Hemo Girls Rock
@hemogirlsrock
Hemophilia Educator, Advocate, Research Supporter, Patient. All opinions are my own.
Coalición de las Américas
@coalicionameric
Somos una agrupación Autónoma enfocados en mejorar el cuidado y cobertura Universal de la Salud. 🔺 Hemofilia y otros desórdenes de coagulación.
Thrombosis & Haemostasis, TH,TH Open
@th_journal
#TH : basic &clinical research on #thrombosis, #haemostasis & #vascular biology. SoMe editors @_LauraParma, @daniele_pastori, @JosemyRivera, @GiulioFRomiti
Cathy Harrison 💙
@cathyah1980
Haemophilia ANP. WFH nurses committee Chair. Wife & mum, artist, forever learning. Winner of Nursing Times Nurse of the Year Award 2024. Opinions are mine.
Len Valentino
@lenvalentino1
Hematologist and Professor
Dr. Dua Hassan, MD
@drduahassan
#Pediatrician #Doctor | @ColumbiaPS MD/MPH | @BostonChildrens Residency | Passionate about #Child #Health #Medical #Research & #Education
EAHAD
@eahadnews
EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Shematologist, MD
@acweyand
Peds heme onc, mother, dreamer, pacifist, justice seeker. Clueless Mother Theresa. Retweeted by Wonder Woman #CakeForBreakfast HCWvsHunger.org
Kate Sears
@medicalwatchbc
Hi I'm Kate, community lead for Medical.watch. Want practice changing updates in oncology/hematology? Get our weekly newsletter and join 2400+ clinicians.
EHC_Haemophilia
@ehc_haemophilia
The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Brian O Mahony
@brianhemophilia
CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
British Society for Haemostasis & Thrombosis
@britsochaemthro
The BSHT is the main Academic Thrombosis & Haemostasis Society in the United Kingdom with over 300 members.
Jigar Amin
@jig_amin
HCPA
@hcpa11
Haemophilia Chartered Physiotherapists Association