Glut1 Deficiency UK
@glut1uk
A parent led charity, dedicated to improving the lives of those affected by Glut1 Deficiency through support, education and medical research.
ID: 1355510830197059586
30-01-2021 13:39:13
224 Tweet
286 Followers
394 Following
RAMAMOORTHY
@mvramamoorthy
paediatrician / student pilot #ppl
Samantha Chan
@samanthayschan
Paediatric Neurologist @StGeorgesTrust; Honorary Senior Lecturer @StGeorgesUni Research: epilepsy, sleep, cognition
Bhrinder Kaur
@bhrinder
Paediatric Lead Epilepsy Clinical Nurse Specialist. Roald Dahl Nurse
LeoCachito23
@leocachito
En la buenas siempre y en las malas mucho mas... Enamorado de mi hijo, de mi mujer y del mas grande, lejos... ⚪️🔴⚪️
Matthew's Friends
@matthewsfriends
A charity specialising in medical Ketogenic Therapies for drug-resistant epilepsy & other neurological conditions
Felix Chan
@dr_felixchan
Leader of the #ChanLab. Assistant Professor in Pharmacology at University of Birmingham. Proud Indonesian. #ChanTheMan - HelloBio, 2016. All views my own.
Kathleen Gorman
@kmgorman_neuro
Jesse Thompson
@jessew96
Jo Twiby
@jtwiby
Executive Director, The Exchange Partnership at Delta Academies Trust. NCLT trustee. UCL MBA student. Paddle-boarder and proud mum of three. Views my own.
Stéphane Auvin
@stephane_auvin
Child Neurologist & Epileptologist. Professor at @univ_paris_cite. Dept Chair at @HopRobertDebre. Senior member 2021 @InstUnivFr. Deputy Editor @EpilepsiaJourn
PJ Ryan
@pjryan77
@Burgundypapi
@burgundypapi
The Don of Vosne
Genetic Alliance UK
@geneticall_uk
National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
จึนนี่หิว
@chajunee
Live in this moment, be in the present.
ruth braden
@ruthbraden2
Early Career Academic at UniMelb at MCRI, Speech Pathologist, Mum, owner of the cutest dog in Melbourne.
Harold Sonnier
@sonnier_harold
Denise Hofman
@dlhofman
PhD from @UniversityLeeds. Researcher & #PKU patient w/ a passion for (clinical) nutritional research & endurance sports.🏊♀️🚴♀️🏃♀️
tricia rutherford
@normantricia
Professional interest in nutrition for rare disease . Very amateur interest in sport and music ! All views are my own .
Evonne Smith 💙
@evonnesmith1
Mum of 3, physio, Pilates instructor. interests MSK rehab and Pilates, osteoporosis, cancer rehab, ❤️ reading. navigating the world of childhood epilepsy
Dietitian Elzette
@dietitianzet
Leverage our in-depth understanding of nutrition and health to address your unique needs to improve health and well-being.
EPNS
@epnsnews
European Paediatric Neurology Society (EPNS): a society for physicians, health professionals, scientists and students with an interest in Child Neurology.
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Dra A. García-Cazorla
@agarciacazorla
Child Neurologist and Researcher Neurometabolism-Synaptic Metabolism Lab. Director of Research in #Neuropediatrics @SJDbarcelona_es Prof at UB. Tweets my own
Torie Robinson 🇺🇦
@torierobinson10
@EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Patient Partners Innovation Community
@ppic_online
Ketogenic Dietitians Research Network
@kdrn_online
A clinical research collaboration working together to expand the evidence base of ketogenic diets in neurological disorders. Views our own.
Royal Hospital for Children, Glasgow
@rhcglasgow
This account is no longer active. You can follow us on our other platforms below: facebook.com/RoyalHospital4… instagram.com/rhcglasgow
Brain Ablaze
@brainablaze
As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Lamar
@k1lamar
A senior medical student @KSAUHS_JD
HumanFirst
@humanistplanet
Virtual Nomad. Techie. Encyclopedia. Philonoist. Humanity. Peace. Save Nature. Brain Tumor(Meningioma) Survivor/ScarEpilepsy. - Opinions/Retweets are personal.
Larissa de Clauser, PhD 🏳️🌈
@lari_6a
Neuroenthusiast with a sweet spot for pain and epilepsy @Kanso (former @Eurac @kcl @ucl @UZH) 🧠 climber 🧗♀️permaculturist 🌿 board gamer 🎲 acroyogi
Paulo Nathalie
@paulinehermin1
GAnthony
@ganthony8120
karla garcia
@lintlickerkarla
I’m great with people but people aren’t great
CASK Research UK
@caskresearch
We are a charitable foundation promoting research into CASK gene mutations and associated neurological conditions in hope of finding therapies and treatments
Reatha
@blount_reatha
Angela
@walserangela36
Elizabeth
@elizabeth_dodd3
Carol
@drewrycarol64
Amy
@a_coley13
Charity
@c_aasen2
かんなりかずえ
@knarikazue71757
The Pronking Doc
@pronkingdoc
ellyolv
@ellyolvi
Abril Marone
@abrilmarone
MD Neurologist, Epileptologist 🧠, at @flenioficial. Also Visual Artist 🎨
Angel Nsah
@angelnsah31466
Barbie for Congress (FL-11)
@barbie4congress
Democratic Nominee for U.S. Congress, FL-11 The Villages to the west, DisneyWorld to the East & the incredible areas in between Rare Disease Advocate, MLD mom
Luna
@ethereal967725
Luna
@13elizabet32939
Yosuke Niibori PhD
@yosukenrepair
🔬 Scientist, Promoter Designer & Co-founder of Re:Pair Genomics in Toronto. Develop gene therapy for epilepsy, Dravet Syndrome, and rare genetic disorders.
CHEN
@chen980769
Dr Micheál (Mike) Taylor MBBCh BAO BSc FRCPCH
@weebrainsleeds
Consultant Paediatric Neurologist specialising in Headache, Migraine & Epilepsy. Interested in emerging research. Content does not constitute medical advice.
The Rare Disease Data Repository
@_therddr
We help you share your research data securely. No longer active on X. Find me at: bsky.app/profile/therdd…
pammymc
@pammymc266540
Lori
@lacdl22
UK Rare Epilepsies Together (UKRET)
@ukret_
Network of patient advocacy groups driving change for everyone living with rare and complex epilepsies in the UK
E Gosling
@emgoslingrd
Neonatal Dietitian. Also interested in ketogenic diet therapies, allergy and T1DM. Tweets and opinions are my own. She/her.
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Dilip Kumar Gandhi (दिलीप कुमार गांधी)
@doc_bethechange
He/Him. Paediatrician, Husband, Father and Friend Desi. Travel. Amateur 📷 mastodon.online/@Doc_BeTheChan…
Giana Blaauw (de Souza)
@gianablaauw
Passionate about children's health and nutrition. Lead Inherited Metabolic Diseases Dietitian. MSc Therapeutic Nutrition and NIHR Pre-doctoral Bridging Fellow
EpiCARE
@epicare_ern
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
Debbie McAlees
@mcaleesdebbie