Gen Handley
@genhandley
Adventure finder & perpetual student. Campaigner for access to life-saving medications. Background in physiotherapy & biomedical science
ID: 1346097727
12-04-2013 05:49:52
498 Tweet
236 Takipçi
218 Takip Edilen
This was a question posed to Vertex Pharmaceuticals today by the eloquent advocate for #Australia Gen Handley & to which we hope a response will come very soon because #cfcantwait #vertexsaveus #trikafta4aus #trikafta4all
We're calling on Vertex Pharmaceuticals to agree to the recommendation for the 20% without delay & to work quickly with the PBAC to find a solution for access for everyone #AccessNowSavesLives #YesToTrikafta
What’s up with this?! @GregHuntMP Vertex Pharmaceuticals Don’t #CF lives matter! Pay for #Trikafta, make the submissions, agree on a reasonable price. #CFCantWait We are struggling to breathe while we wait! #YesToTrikafta
Kaftrio en España Vertex Pharmaceuticals Ministerio de Sanidad Carolina Darias Fantastic news for Spain 😊 - but Vertex Pharmaceuticals, 000’s of CF patients are still waiting for access to #Kaftrio. Do the right thing & publish a global access plan now. #GlobalCFFamily #Kaftrio4All
We need #Trikafta in Australia @GregHuntMP Liberal Party Not ScoMo We are desperate! Waiting for the results on the PBAC on the 28th. Our lives depend on it! I hope that my 35 year old daughter will soon be able to breathe #YesToTrikafta #CFCantWait Lisa Wilkinson
Big day for Matt and around 3500 other Australians living with cystic fibrosis tomorrow. They could find out if 'lifesaving' drug Trikafta will be added to the Pharmaceutical Benefits Scheme. Story by Emily McPherson Nine.com.au 9news.com.au/national/thous…
These young Australians were all unwell in hospital over the festive period - @GregHuntMP Vertex Pharmaceuticals please help us stay well & out of hospital by saying #YesToTrikafta later today
“Lives can’t be saved if we can’t afford it”. With $7.5billion in the bank Vertex Pharmaceuticals don’t need to hold #cysticfibrosis patients to ransom. Let’s see tomorrow if they have put #Australian lives before profit. #GlobalCFFamily #CFWontWait YesToTrikafta
Today is the DAY we find out if @GregHuntMP Vertex Pharmaceuticals will make Trikafta available here in Australia! This is the 4th submission and keeps being rejected! Cystic Fibrosis is something that just can’t wait! Please for all of those who need this miracle drug just do it 🙌
Exciting news today with a Yes from the PBAC - a big step forward to accessing #Trikafta. There are further steps though and we implore Vertex Pharmaceuticals & @GregHuntMP to negotiate & list quickly! #CFCantWait
One step forward for #Australian #cysticfibrosis patients but like countries all around the world, Australia demands a reasonable price for #Trikafta. Excessive pricing = pain & suffering on a global scale. Vertex Pharmaceuticals must change their ways in 2022 #GlobalCFFamily YesToTrikafta
We've moved closer today but we need Vertex Pharmaceuticals to negotiate quickly and put #LivesBeforeProfit so #Trikafta can be listed on the PBS #CFCantWait