Gen Handley (@genhandley) 's Twitter Profile
Gen Handley

@genhandley

Adventure finder & perpetual student. Campaigner for access to life-saving medications. Background in physiotherapy & biomedical science

ID: 1346097727

calendar_today12-04-2013 05:49:52

498 Tweet

236 Takipçi

218 Takip Edilen

Vertex Save Us (@vertexsaveus) 's Twitter Profile Photo

This was a question posed to Vertex Pharmaceuticals today by the eloquent advocate for #Australia Gen Handley & to which we hope a response will come very soon because #cfcantwait #vertexsaveus #trikafta4aus #trikafta4all

YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

At the July meeting there was progress with the PBAC agreeing to 20% of those waiting, but heartbreak for majority waiting in Australia. Here's the letter from our campaign #YesToTrikafta #CFCantWait

At the July meeting there was progress with the PBAC agreeing to 20% of those waiting, but heartbreak for majority waiting in Australia. Here's the letter from our campaign #YesToTrikafta #CFCantWait
YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

With 1800 people excluded from the July PBAC recommendation, we need a Health Minister who'll step in when bureaucracy gets in the way of saving lives @GregHuntMP Not ScoMo #YesToTrikafta

With 1800 people excluded from the July PBAC recommendation, we need a Health Minister who'll step in when bureaucracy gets in the way of saving lives @GregHuntMP <a href="/ScottMorrisonMP/">Not ScoMo</a> #YesToTrikafta
YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

We're calling on Vertex Pharmaceuticals to agree to the recommendation for the 20% without delay & to work quickly with the PBAC to find a solution for access for everyone #AccessNowSavesLives #YesToTrikafta

We're calling on <a href="/VertexPharma/">Vertex Pharmaceuticals</a> to agree to the recommendation for the 20% without delay &amp; to work quickly with the PBAC to find a solution for access for everyone #AccessNowSavesLives #YesToTrikafta
YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

Please sign this petition & help get Trikafta to people with Cystic Fibrosis in Australia! This new Government petition will be presented in parliament, the more signatures the better! aph.gov.au/e-petitions/pe… #YesToTrikafta

Please sign this petition &amp; help get Trikafta to people with Cystic Fibrosis in Australia! This new Government petition will be presented in parliament, the more signatures the better! aph.gov.au/e-petitions/pe… #YesToTrikafta
YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

With Trikafta available in 19 countries, we're hopeful that 2021 will be the year that Australia is added to this list. Please help by signing this petition aph.gov.au/e-petitions/pe… #YesToTrikafta

With Trikafta available in 19 countries, we're hopeful that 2021 will be the year that Australia is added to this list. Please help by signing this petition aph.gov.au/e-petitions/pe… #YesToTrikafta
YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

Great to see progress happening in Canada - we're hopeful Australia will also reach an agreement in 2021. Please help by signing our petition aph.gov.au/e-petitions/pe…

Aleta Gibbs (@leta70) 's Twitter Profile Photo

What’s up with this?! @GregHuntMP Vertex Pharmaceuticals Don’t #CF lives matter! Pay for #Trikafta, make the submissions, agree on a reasonable price. #CFCantWait We are struggling to breathe while we wait! #YesToTrikafta

Strawfie Challenge (@strawfie) 's Twitter Profile Photo

88% of Cystic Fibrosis patients lack access to life-changing treatment Findings come as drug manufacturer Vertex reports annual profits of $2.72 billion Presentation being made today at #nacfc #nacfc2021 cf/Aware @VertexSave Tanya Koorts @Bells50587538 breathewithme.org/post/88-of-cys…

Vertex Save Us (@vertexsaveus) 's Twitter Profile Photo

Kaftrio en España Vertex Pharmaceuticals Ministerio de Sanidad Carolina Darias Fantastic news for Spain 😊 - but Vertex Pharmaceuticals, 000’s of CF patients are still waiting for access to #Kaftrio. Do the right thing & publish a global access plan now. #GlobalCFFamily #Kaftrio4All

Aleta Gibbs (@leta70) 's Twitter Profile Photo

We need #Trikafta in Australia @GregHuntMP Liberal Party Not ScoMo We are desperate! Waiting for the results on the PBAC on the 28th. Our lives depend on it! I hope that my 35 year old daughter will soon be able to breathe #YesToTrikafta #CFCantWait Lisa Wilkinson

Marc Dodd (@marcdodd) 's Twitter Profile Photo

Big day for Matt and around 3500 other Australians living with cystic fibrosis tomorrow. They could find out if 'lifesaving' drug Trikafta will be added to the Pharmaceutical Benefits Scheme. Story by Emily McPherson Nine.com.au 9news.com.au/national/thous…

YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

These young Australians were all unwell in hospital over the festive period - @GregHuntMP Vertex Pharmaceuticals please help us stay well & out of hospital by saying #YesToTrikafta later today

These young Australians were all unwell in hospital over the festive period - @GregHuntMP <a href="/VertexPharma/">Vertex Pharmaceuticals</a> please help us stay well &amp; out of hospital by saying #YesToTrikafta later today
Vertex Save Us (@vertexsaveus) 's Twitter Profile Photo

“Lives can’t be saved if we can’t afford it”. With $7.5billion in the bank Vertex Pharmaceuticals don’t need to hold #cysticfibrosis patients to ransom. Let’s see tomorrow if they have put #Australian lives before profit. #GlobalCFFamily #CFWontWait YesToTrikafta

REGINA SORENSEN 👩‍🦯 (@bbreggie) 's Twitter Profile Photo

Today is the DAY we find out if @GregHuntMP Vertex Pharmaceuticals will make Trikafta available here in Australia! This is the 4th submission and keeps being rejected! Cystic Fibrosis is something that just can’t wait! Please for all of those who need this miracle drug just do it 🙌

Today is the DAY we find out if @GregHuntMP <a href="/VertexPharma/">Vertex Pharmaceuticals</a> will make Trikafta available here in Australia!
This is the 4th submission and keeps being rejected!
Cystic Fibrosis is something that just can’t wait!
Please for all of those who need this miracle drug just do it 🙌
YesToTrikafta (@trikaftaaus) 's Twitter Profile Photo

Exciting news today with a Yes from the PBAC - a big step forward to accessing #Trikafta. There are further steps though and we implore Vertex Pharmaceuticals & @GregHuntMP to negotiate & list quickly! #CFCantWait

Exciting news today with a Yes from the PBAC - a big step forward to accessing #Trikafta. There are further steps though and we implore <a href="/VertexPharma/">Vertex Pharmaceuticals</a> &amp; @GregHuntMP to negotiate &amp; list quickly! #CFCantWait
Vertex Save Us (@vertexsaveus) 's Twitter Profile Photo

One step forward for #Australian #cysticfibrosis patients but like countries all around the world, Australia demands a reasonable price for #Trikafta. Excessive pricing = pain & suffering on a global scale. Vertex Pharmaceuticals must change their ways in 2022 #GlobalCFFamily YesToTrikafta