GSG (@galactosaemia) 's Twitter Profile
GSG

@galactosaemia

The Galactosaemia Support Group offers support to families with galactosaemic children and adult galactosaemics in the U.K.

ID: 181107128

linkhttp://www.galactosaemia.org calendar_today21-08-2010 08:40:41

939 Tweet

340 Followers

148 Following

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It is important to choose a plant based milk with added calcium, vitamin D and Iodine. Below are some examples - galactosaemia.org/gsg-blog/plant…

Karen Ford (@karengsg) 's Twitter Profile Photo

#RareDiseaseDay2023 Galactosaemia is a rare inherited metabolic disease. Babies inherit a faulty gene from each parent & are very poorly until diagnosis, then need a milk free/low galactose diet for life. They are 1 in 45,000 #ThisIsMyRareBaby GSG Rare Disease Day

#RareDiseaseDay2023 Galactosaemia is a rare inherited metabolic disease. Babies inherit a faulty gene from each parent &amp; are very poorly until diagnosis, then need a milk free/low galactose diet for life. They are 1 in 45,000 #ThisIsMyRareBaby <a href="/galactosaemia/">GSG</a> <a href="/rarediseaseday/">Rare Disease Day</a>
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The GSG are busy behind the scenes reviewing and updating the website to make it more user friendly for all. Please may I ask you to take the time to complete the attached survey. This will help the program designers create the best platform for you preview.userzoom.com/mpaap/MTAgQzg2…

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Aldi recalls The Deli Salami Selection and The Deli Continental Selection because of undeclared milk. Read more: food.gov.uk/news-alerts/al…

Karen Ford (@karengsg) 's Twitter Profile Photo

The day has arrived, it’s the Galactosaemia Support Group Conference! We have some fabulous talks & breakout sessions lined up supported by caring NHS staff GSG #GSGCON2023 #Galactosaemia #SupportingFamilies #NHS #Charity #SuttonColdfield

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First talk of the day is from Louise Robertson “All About The Diet” people with galactosaemia follow a Low Galactose diet GSG #GSGCON2023 #LowGalactoseDiet #GSG

First talk of the day is from <a href="/louisedietitian/">Louise Robertson</a> “All About The Diet” people with galactosaemia follow a Low Galactose diet <a href="/galactosaemia/">GSG</a> #GSGCON2023 #LowGalactoseDiet #GSG
Karen Ford (@karengsg) 's Twitter Profile Photo

Breakout session discussing independent living by Jess Constable, specialist OT at the at the GSG conference GSG #GSGCON2023 #EmotionalSupport #independentLiving

Breakout session discussing independent living by Jess Constable, specialist OT at the at the GSG conference <a href="/galactosaemia/">GSG</a> #GSGCON2023 #EmotionalSupport #independentLiving
Karen Ford (@karengsg) 's Twitter Profile Photo

Great first talk of the 2nd day on “What is Galactosaemia?” By Dr Morris at the Galactosaemia support Group conference GSG #GSGCON2023 #Galactosaemia

Great first talk of the 2nd day on “What is Galactosaemia?” By Dr Morris at the Galactosaemia support Group conference <a href="/galactosaemia/">GSG</a>  #GSGCON2023 #Galactosaemia
Karen Ford (@karengsg) 's Twitter Profile Photo

Such an inspirational talk from Jenny about growing up with Galactosaemia at the GSG Conference. Receiving little to no support through school she went on to university and earned a degree in IT, the room was full of admiration for Jenny GSG #GSGCON2023 #GSG

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Breakout sessions before lunch were Clare talking about help and support for people with galactosaemia and Brian offering advice on applying for jobs and interview techniques, both were well received GSG #SupportIsThere #GSGCON2023 #GSG

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Excellent talk by Becky Grimwood on Mental Health to close the GSG Conference, we all need Good Mental Health, Becky offered advice on how to help achieve that GSG #GSGCON2023 #MentalHealthAwareness #Galactosaemia #StressBucket

Excellent talk by Becky Grimwood on Mental Health to close the GSG Conference, we all need Good Mental Health, Becky offered advice on how to help achieve that 
<a href="/galactosaemia/">GSG</a> #GSGCON2023 #MentalHealthAwareness #Galactosaemia #StressBucket