We need your help. We would like to hear from people in Australia with #dementia and their #carers and supporters about how they make decisions in everyday life - small decisions and big ones. 20 mins $10 gift card. Link is here redcap.unsw.edu.au/surveys/?s=NE8… thanks!! #alzheimers #AD

Huge thanks to Philip Angrave and Dr Janet Carter for representing the Young Dementia Network at the Dementia Summit conference yesterday and sharing their personal and professional knowledge of young onset #dementia. 🙏👏

In my last report, I focused on legal capacity and informed consent. Let’s come together at #HRC57 side event with BAGSO as we discuss key outcomes and the challenges ahead. Now is the time to act! Fri. 13 Sept. 13.00-14.00 Palais des Nations, Room XXV

Striving to be a bigger better human has magnificent consequences. Enjoy them

Well I've been 40 for a week and the NGO food bank people have solicited me to go to a #DignityInDying session and learn about getting euthanised. Just like disabled people said would happen. Thanks Qld Labor, #VAD is great, love being poor and disabled in your state.

I can’t get my head around how according to palliative care Australia, people under 65 get access to palliative care upon terminal diagnosis, but people over 65 get 3 months max. How the f&$k does this contribute to dignity of older people?

The parliament website section for the age care bill is down. There must be thousands of interested people trying to look at the bill. While inconvenient, how good is it that Australia has so many people interested and engaged in improving life for older people

My long held theory that inflammation not plaque is at the root of dementia is getting closer to reality.

I’m getting ready to do advance care planning. I’m trying to find out the practical implications of ticking each box. For example, if I don’t want to be fed with a tube, what exactly will happen to my body. If I find life intolerable due to incontinence, what will happen. Why are

Hey, AUSTRALIA 🇦🇺 Did you know that there’s “One dead [aged care] resident every 4 hours from COVID last week.”? Aged care reform seems to be a lot more like ‘kill them quick’ rather than ‘keep them safe’. Politics is to blame. Public Health is dead, just like the residents.

We must never forget thousands of babies and children lost within sites scattered throughout the country in institutions run by Religious Orders who received #StateFunds We still don’t know where they’re buried including #Bessboro numbering 859. 🙏 to Teeny Timbre. #NeverForget

AAG presents for #DementiaActionWeek 24 Bold & Unapologetic Voices in Dementia Research, Policy & Advocacy. Watch advocates Gwenda Darling, Theresa Flavin& Bobby Redman in this solutions-focused discussion. Facilitated by Dr Anita Goh 🧠 🇦🇺 🇲🇾 She/her. Own views. bit.ly/AAGDementiaAct…

Is anyone else fed up with hard sell/bullying retail people? Pet shop lady harassed me to buy a way too small harness for my puppy. Went for an eye test, redirected without asking to a hearing test. 2pairs of glasses for $500-great. Oh sorry if you bring your own frames it’s

‘It’s the only disease where you’re not supported to fight for your life’: why Kate Swaffer is demanding dementia rights "Her experience nudged her to change her PhD from being about the stigma of #dementia, to looking at dementia as a disability" theguardian.com/australia-news…

What’s happening here?