So young. We can thank Shane Warne for inspiring so many more cricketers to master the craft of spinning. #ShaneWarneRIP

Poland… absolute heroes for the SMA community and so many more. Free access to life saving treatment. Sergiy Kyslytsya 🇺🇦 #UkraineWar #Poland #RareDisease ua.fsma.pl/en/2022/03/10/…

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When you consider what is happening now, nerve gas agents directed at specific targets (with collateral damage), missiles…. It’s hardly inaccurate. #UkraineCrisis #SaveUkraineNow

I’m ashamed NZ cares more about how we perform against our neighbours in sport than we do in life. Australia now fund gene therapy for SMA. 3/3 treatments available. NZ have none. Our kids are still dying from this treatable disease. @AndrewLittleMP @GregHuntMP Jacinda Ardern

SJ for the win! One NZ Warriors #goldenpoint #KeepTheFaith

I can’t believe I stayed watching. That was tough to sit through. My only words are to wish Curran and Watene-Zelezniak speedy recoveries. One NZ Warriors #storm #Melbourne #gutted

Where is this Pharmac review @AndrewLittleMP and why have you shown Pharmac but not the people who called for the review in the first place? We have more riding on this… our lives! People who submitted have died waiting! #releasethereview #equalstakeholders #patientvoiceaotearoa

Many tears have been shed in Wellington on my advocacy journey and the crying skies a reminder of this. Hoping we finally see sunshine on Thursday with New Zealand Labour’s budget. I feel the weight of the lives we have lost but also the sheer desperation of those still here. #fundpharmac

The flag is flying high on budget day. If Pharmac does not get what it needs to fund it’s Options for Investment list, I’ll be writing a formal letter requesting the flag go to half mast as a lot of lives will be lost due to lack of access to medicines. New Zealand Labour #budget2022

A damn disgrace. No child should be deprived of treatment. 35 kids are suffering with this disease. It is the leading cause of genetic death in kids. Over 65 countries fund it but not NZ PHARMAC @AndrewLittleMP

Hard to feel positive for the day after that football match. #robbed #costaricavsnewzealand #proudkiwi #Heartbroken #betterteamlost

Decisions, decisions. Do I watch the The Blues or One NZ Warriors tonight? I’m more of a die hard league fan but rugby may be the winner of the day 🤔 scratch that… I’ll be in charge of the remote. #rugby #league

Pretty sure I’m Irish #IREvNZ #irisheyesaresmiling #AllBlacksVsIreland

Waiting for the Live Stream to start for the Health Select Committee. Shuffled lots to be able to finally hear a response to the Independent Review into Pharmac and there appears to be technical difficulties. So disappointing.

Leading cause of genetic death in infants. Treatable in 65 countries.. but not here. It’s cheaper to fund it than to have kids suffer… but we have a broken system that is prepared to let kids die. Rachel Smalley Helen Clark United Nations #SMAawarenessMonth bit.ly/3CukRpe

Just posted a photo instagram.com/p/CiWzGfyrQXi/…

Wow All Blacks what a start to the Bledisloe Cup. What a game! Such controversy too! I enjoyed that! This game had everything. #AllBlacks #AllBlacksVsWallabies #decisiveref

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