Fatih(@fatihnomad) 's Twitter Profileg
Fatih

@fatihnomad

#LongCovid #Dysautonomia #POTS patient since November 2020 #BC007

ID:1569067896646832130

calendar_today11-09-2022 20:59:48

391 Tweets

441 Followers

1,4K Following

Marco Wetzel (is fighting LongCovid)(@Gmwetz) 's Twitter Profile Photo

Maria Van Kerkhove World Health Organization (WHO) Hello Maria,
I once again would like to bring your attention to the world largest conference on in May - with all the leading experts in the scientific field and strong political advocates like Prof. Karl Lauterbach - and initiated by those effected. I want to invite you

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Dr. Bettina Hohberger(@Dr_B_Hohberger) 's Twitter Profile Photo

Ein neuer Podcast zum Thema Post-Covid-Erkrankung ist zusammen mit den Nürnberger Nachrichten entstanden. Darin wird auch auf die disCOVer-Studie aus Erlangen eingegangen.



nn.de/region/aus-dem…

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Long Covid Moonshot(@LCMoonshot) 's Twitter Profile Photo

BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot.

The proposal earmarks $10B in Long Covid research funding over the next decade.

BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot. The proposal earmarks $10B in Long Covid research funding over the next decade.
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Fatih(@fatihnomad) 's Twitter Profile Photo

Wir bitten um ein beschleunigtes Verfahren für die studie BC007. Wir werden niemals aufgeben, bis wir Erfolg haben.

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Fatih(@fatihnomad) 's Twitter Profile Photo

I feel like free horses running wild in the steppes, wolves roaming freely in the depths of the taiga forests in the moonlight, and eagles soaring through the deep blue sky. My wandering soul refuses to give up. We will defeat the Long Covid at any cost.

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Fatih(@fatihnomad) 's Twitter Profile Photo

'Kapı açılır, sen yeterki vurmayı bil! ne zaman? bilemem! yeterki o kapıda durmayı bil!'. Mevlana Celaleddin Rumi

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Dr. Bettina Hohberger(@Dr_B_Hohberger) 's Twitter Profile Photo

Der heutige International Long Covid Awareness Day fällt in die Welt-Glaukom-Woche:
 
Unser Ansatz im Bereich der Post-COVID Forschung basiert auf Studien aus dem Erlanger Glaukomregister.
 
augenklinik.uk-erlangen.de/aktuelles/nach…

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Fatih(@fatihnomad) 's Twitter Profile Photo

We must convince university clinics and experts to work together to spread BC007 research into America.

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POTS & MECFS Billboards(@Perospumpeh) 's Twitter Profile Photo

The first results of the drug BC007 will be out this year

Waiting for 3, 4, or more years for the drug to come out when it already exists is absurd

What are your suggestions to push for the release of the drug next year if it's successful? Billboards?

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Shaney Wright(@ShaneyWright) 's Twitter Profile Photo

By phenotypes, I mean a PEM phenotype, SFN phenotype, POTS phenotype, GPCR AAbs phenotype (see BC007 trial), MCAS phenotype... Yes there's overlap between them but trials should be *crystal clear* about which phenotype they're targeting, paired with objective markers.

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Carmen Scheibenbogen(@C_Scheibenbogen) 's Twitter Profile Photo

Fortbildung des Post Covid Netzwerk Charité:
„Therapieoptionen bei Myalgischer Enzephalomyelitis/Chronisches Fatigue Syndrom (ME/CFS) und Post-COVID“
jetzt aufgezeichnet:
pcn.charite.de/fortbildung/

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Billy Hanlon(@bhanlon15) 's Twitter Profile Photo

Yahoo: 'Living with long COVID: Here's how my life has dramatically changed after COVID-19 gave me POTS disorder'

'I went from an active, healthy life to a couch-ridden state in a matter of weeks due to postural orthostatic tachycardia syndrome.'

ca.style.yahoo.com/living-with-lo…

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Raoul Schendel(@Raoul__Lucas) 's Twitter Profile Photo

Berlin Cures has issued a new press release about the progress of their phase II trial with for .

Over 50% of the targeted 114 patients have now been recruited.

berlincures.com/en/news/bc-007…

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