We're looking for a Clinical Programs Manager to join the FARF team! This role will oversee all administrative aspects of the clinical programs at FARF. To learn more ➡️ bit.ly/33bv6vV

#GivingTuesday is here! We're off to an incredible start raising funds for #Fanconianemia research and families! Give here ➡️ bit.ly/2JxIq6W

Today, your gift makes TWICE the impact thanks to our generous donors Monique & Roel Harryvan, who will match up to $15,000! Thank you! bit.ly/3o5yRey

Wow!! Yesterday on Giving Tuesday, 268 people, like you, gave $68,494 online! And, we're still counting generous gifts made offline! Thank you!

Read about Fanconi anemia research updates shared this fall covering three main topics: cancer, fertility, and bone marrow failure. What do we know? What does this research mean for people with FA, and what are the next steps? Find out here ➡️ bit.ly/2WfsPMB

#ResearchFunded #FanconiAnemia fanconi.org/research

After much deliberation and feedback from stakeholders across the FA community, we have made the decision to continue hosting virtual events in 2021. Full Announcement ➡️ mailchi.mp/fanconi/2021ev… 2021 Events Sign-up ➡️ fanconi.org/calendar

New webinar announced: #COVID19 Vaccines Update: #FDA and #CDC Leaders Address the #RareDisease Community on 1/15/21! Register now: bit.ly/Vaccine-Webinar CC: National Organization for Rare Disorders (NORD), The ALS Association, Muscular Dystrophy Association, & Cystic Fibrosis Foundation

The 5th edition of the Fanconi Anemia Clinical Care Guidelines is now available to download! fanconi.org/explore/clinic…

People with #FanconiAnemia are 500-700 times more susceptible to head and neck cancers than those in the population. Learn how we're addressing this: bit.ly/2MfGq4Q #StandUpToCancer #FanconiAnemia

In December 2020, two COVID-19 vaccines were approved by the FDA in the United States. What does this mean for people with Fanconi anemia and their families? Click to read. bit.ly/39oRvK0

Looking for a new position with a growing organization? We're looking for a Clinical Science Program Manager to join our team. Could it be you? bit.ly/2YF1BQN

Join us February 18 to talk about living and coping with Fanconi anemia. This event is free to all individuals with FA and their caregivers. Learn more here: bit.ly/3rcVXBC #FanconiAnemia #FAConnect

Are you part of an international FA support organization, or an individual who would like to support the FA community in your country? You may be eligible for a $10,000 grant to support international FA initiatives. Applications due May 7. Learn more: bit.ly/2MtBYQp

🔬Calling all FA researchers: Applications for the Head & Neck Cancer Grant Program are due March 22. This is a $3.25 million collaborative grant to accelerate the treatment of head and neck cancers that affect people with FA. bit.ly/37psZH0 #standuptocancer

Reminder: Today at 5 pm Pacific there is a free workshop for individuals and families whose loved ones with Fanconi anemia have passed away. Click to sign up and connect with others 💙 #FanconiAnemia #FAConnect fanconi.org/calendar/event…

Join others in the FA community this March during our #FAConnect free virtual events! Learn more & sign up here: fanconi.org/calendar

🔬 Researcher Reminder: Applications for the $3.25 million head and neck cancer grant program are due March 22! standuptocancer.org/head-and-neck-…

This is why we fund #headandneckcancer research. Not only does it benefit those with #fanconianemia, but all those touched by head and neck cancers.

"FA is terrifying but it's also allowed our family to slow down, appreciate our time together and unapologetically love Ryan & one another." Ryan and her family are trying to raise $1,000 in honor of #FanconiAnemiaMonth! Will you help her reach her goal? fundraise.fanconi.org/fundraiser/322…