@ExTINGUISHTrial (@extinguishtrial) 's Twitter Profile
@ExTINGUISHTrial

@extinguishtrial

The ExTINGUISH Trial for NMDAR Encephalitis, a NeuroNEXT Clinical Trial Network study sponsored by NIH/NINDS 👉Enrolling Now

ID: 1437198456339120130

linkhttps://clinicaltrials.gov/ct2/show/NCT04372615 calendar_today12-09-2021 23:36:42

229 Tweet

264 Followers

93 Following

@ExTINGUISHTrial (@extinguishtrial) 's Twitter Profile Photo

The ExTINGUISH Trial Methods Paper is available, Open Access! 👉There are no approved (or rigorously studied) treatments for NMDAR Encephalitis. 👉 Enrollment is ongoing for newly diagnosed NMDAR Encephalitis patients, via NIH/NINDS & the NeuroNEXT Clinical Trial Network

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

We've got an all-star team of experts lined up for TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders in SLC on August 16th 🏔️ If you or your loved one are impacted by #NMOSD, #MOGAD, #AE or #SPS, join us! To register, visit tinyurl.com/TSFSLC

We've got an all-star team of experts lined up for TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders in SLC on August 16th 🏔️

If you or your loved one are impacted by #NMOSD, #MOGAD, #AE or #SPS, join us! 

To register, visit tinyurl.com/TSFSLC
Stacey Clardy MD PhD (@staceylclardy) 's Twitter Profile Photo

Patients and caregivers are welcome from the Mountain West and beyond. We are a quick 15 minutes from the SLC airport if you want to see beautiful Utah— including learning about our extensive outdoor accessibility options!— but please do first register below 👇

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🏔 As we make final preparations for our Intermountain West Patient Day for Rare Neuroinflammatory Disorders in Salt Lake City tomorrow, we'd like to take a moment to recognize and thank Dr Stacey Clardy MD PhD and University of Utah Neurology, our partners and sponsors. We can't wait to see you!

🏔 As we make final preparations for our Intermountain West Patient Day for Rare Neuroinflammatory Disorders in Salt Lake City tomorrow, we'd like to take a moment to recognize and thank Dr <a href="/StaceyLClardy/">Stacey Clardy MD PhD</a> and <a href="/UofUNeurology/">University of Utah Neurology</a>, our partners and sponsors.  

We can't wait to see you!
Sumaira Flower 🍉 (@sumairaflower) 's Twitter Profile Photo

Friends in high places 🏔️ Grateful to Stacey Clardy MD PhD, Ka-Ho, University of Utah Neurology and the @ExTINGUISHTrial for helping us make our Intermountain West Patient Day in Salt Lake City one of the most memorable and impactful ones yet! 🩷🧡💛

Friends in high places 🏔️ 

Grateful to <a href="/StaceyLClardy/">Stacey Clardy MD PhD</a>, Ka-Ho, <a href="/UofUNeurology/">University of Utah Neurology</a> and the <a href="/extinguishtrial/">@ExTINGUISHTrial</a> for helping us make our Intermountain West Patient Day in Salt Lake City one of the most memorable and impactful ones yet! 🩷🧡💛
Marie Abrego (@nmo_marie) 's Twitter Profile Photo

Utah patient day has been one of the most memorable and impactful patient days. Thank you to everyone that made it possible.🩷🧡💛

Neurology Journal (@greenjournal) 's Twitter Profile Photo

Neurology Podcast: Dr. Stacey Clardy and Dr. Walter Koroshetz discuss recent advancements in neurology, emerging genomic therapies, current NINDS priorities, and more in part one of this two-part series. Listen now: hubs.la/Q03Hr3F90 #NeuroX Stacey Clardy MD PhD Walter J. Koroshetz

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🩷🧡💛 It’s been one month since our SLC Patient Day + we're still smiling! Read the summary, view the photo gallery and relive our most impactful day yet here: sumairafoundation.org/event-recap-sa… Thank you Stacey Clardy MD PhD, University of Utah Neurology and @ExTINGUISHTrial for your collaboration 🌺

🩷🧡💛 It’s been one month since our SLC Patient Day + we're still smiling!

Read the summary, view the photo gallery and relive our most impactful day yet here: sumairafoundation.org/event-recap-sa…

Thank you <a href="/StaceyLClardy/">Stacey Clardy MD PhD</a>, <a href="/UofUNeurology/">University of Utah Neurology</a> and <a href="/extinguishtrial/">@ExTINGUISHTrial</a> for your collaboration 🌺
José María Cabrera (@josemariacm_) 's Twitter Profile Photo

At the #ECTRIMS2025 Pre-Day in Barcelona! Fascinating talk by Thaís Armangué on HSV encephalitis and NMDAR — a truly relevant and thought-provoking topic at the intersection of infection and autoimmunity.

At the #ECTRIMS2025 Pre-Day in Barcelona! Fascinating talk by Thaís Armangué on HSV encephalitis and NMDAR — a truly relevant and thought-provoking topic at the intersection of infection and autoimmunity.
@ExTINGUISHTrial (@extinguishtrial) 's Twitter Profile Photo

"Stop staring at mountains. Climb them instead, yes, it's a harder process but it will lead you to a better view" Philipp Reiter No choice but to climb the mountain when recovering from Encephalitis… but there is an incredible community here to support you 🤝 @ExTINGUISHTrial

"Stop staring at mountains. Climb them instead, yes, it's a harder process but it will lead you to a better view"
Philipp Reiter

No choice but to climb the mountain when recovering from Encephalitis… but there is an incredible community here to support you 🤝 <a href="/extinguishtrial/">@ExTINGUISHTrial</a>
@ExTINGUISHTrial (@extinguishtrial) 's Twitter Profile Photo

Still climbing. ⛰️ Still raising awareness. 🧠 Still enrolling in this critical clinical trial to bring patients with #NMDAR Encephalitis the evidence they so desperately need and deserve. 🤝 youtu.be/dIhD8y-hyPM?si…

Still climbing. ⛰️ 

Still raising awareness. 🧠 

Still enrolling in this critical clinical trial to bring patients with #NMDAR Encephalitis the evidence they so desperately need and deserve.  🤝

youtu.be/dIhD8y-hyPM?si…
Andreu Vilaseca (@andreuvilaseca7) 's Twitter Profile Photo

What if antibodies in autoimmune encephalitis could teach us how the brain works?🧬🧠 In anti-NMDAR encephalitis, immune attacks on NMDA receptors reveal their key role in memory, attention, and circuit reinforcement. Featured in Neurology Journal. #Neurology #NMDAR

What if antibodies in autoimmune encephalitis could teach us how the brain works?🧬🧠
In anti-NMDAR encephalitis, immune attacks on NMDA receptors reveal their key role in memory, attention, and circuit reinforcement.
Featured in <a href="/GreenJournal/">Neurology Journal</a>.
#Neurology #NMDAR
Practical Neurology (@practicalneurol) 's Twitter Profile Photo

🧠 New in Practical Neurology: Paraneoplastic KLHL11 antibody encephalitis presenting with progressive tinnitus, hearing loss, and cerebellar ataxia. KLHL11-IgG - strongly linked to testicular germ cell tumours - shows a distinctive “sparkles” pattern on immunofluorescence 🔬

🧠 New in Practical Neurology:
Paraneoplastic KLHL11 antibody encephalitis presenting with progressive tinnitus, hearing loss, and cerebellar ataxia.
KLHL11-IgG - strongly linked to testicular germ cell tumours - shows a distinctive “sparkles” pattern on immunofluorescence 🔬
@ExTINGUISHTrial (@extinguishtrial) 's Twitter Profile Photo

Check out this article about the @ExTINGUISHtrial … and see if you detect anything unusual about the podcast “demo” on the article ??? 👂🎙️ NeurologyMATCH2026

@ExTINGUISHTrial (@extinguishtrial) 's Twitter Profile Photo

NMDAR Encephalitis can happen any season, any time of year… which is why @ExTINGUISHTrial teams are always ready, on call, for all new NMDAR Encephalitis patients in the US, the Netherlands, and Spain.

NMDAR Encephalitis can happen any season, any time of year… which is why <a href="/extinguishtrial/">@ExTINGUISHTrial</a> teams are always ready, on call, for all new NMDAR Encephalitis patients in the US, the Netherlands, and Spain.