EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
ID: 26993786
http://www.eurordis.org 27-03-2009 12:29:29
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3 days to put in your nominations for the EURORDIS-Rare Diseases Europe #BlackPearlAwards 👇
In Part 2 of our conversation with Paralympian & Researcher Sofie Skoubo, Sofie reveals how her PhD is pushing the boundaries of classroom accessibility so that children with rare diseases stay connected to their education and vital social interactions! ▶️go.eurordis.org/10MW
In this new article, Maria Cavaller Bellaubi and Ariane Weinman analyse parent's and children's perspectives on how the future of paediatric drug development could be improved for the maximum benefit of the paediatric population. Read the full chapter: bit.ly/ETPDD_ch3
We are thrilled that our INNOVCare case study, submitted at the invitation of European Commission, is now available on the Social Innovation Match database, promoting successful social initiatives and future partnerships. #ESFplus #SocialInnovationPlus 👉 go.eurordis.org/JLOy8j
Coinciding with #NewbornScreening Awareness Month, Gulcin Gumus, co-authored a paper on the critical need for timely newborn screening to improve life quality for the rare disease community, now published in Rare Disease and Orphan Drugs Journal. 📚 Read now: go.eurordis.org/MhwykP