Belen
@esparisb
Sleep doc, mother, wife, caretaker. Advocate for Myotonic Dystrophy, rare diseases, and special ed. Opinions are my own 💙🐶🏖🧬😴
ID:2585090440
05-06-2014 20:33:19
2,1K Tweets
240 Followers
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.Avidity Biosciences, Inc. Announces #BreakthroughTherapy Designation of del-desiran by US FDA for Treatment of Adults with #MyotonicDystrophy Type 1. Read their letter to the DM1 Community at: myotonic.org/sites/default/…
Exciting News! 🎉
We're thrilled to announce the award an MSCA Doctoral Network to multiple European labs working on DM1.
We'll be recruiting talented PhD students next year.
Stay tuned for details! 🔍
#MSCA #myotonic Centre of Research in Myology (UMRS 974) Inserm Myotonic Dystrophy Foundation Institut de Myologie
An urgent appeal to my fellow parents.
Our children need us in this moment.
#consequences #nonviolence #parenting #universityprotests
Natural history of cardiac involvement in myotonic dystrophy type 1 – Emphasis on the need for lifelong follow-up - International Journal of Cardiology internationaljournalofcardiology.com/article/S0167-…
#musculardystrophy #MDAorg #neuromuscular
Great work from
ARTHEx biotech to have a promising drug candidate to be evaluated VERY SOON in DM1 patients. If you want to know more contact Beatriz Llamusi
Federico Trabucchi Federación ASEM DM1 - Steinert
Avidity Biosciences Announces Oversubscribed $400 Million Private Placement finance.yahoo.com/news/avidity-b… via Yahoo Finance
.ARTHEx biotech Receives IND Clearance from the US FDA to Initiate the Phase I-IIa ArthemiR™ Trial of ATX-01 for #MyotonicDystrophy Type 1. Read the full announcement at: arthexbiotech.com/post/arthex-bi…
🏥El Hospital 12 de Octubre de #Madrid participará en el #DíaMundialEnfermedadesRaras .
Con este motivo organiza el día 29 la II Jornada de Enfermedades Minoritarias con apoyo FEDER | Enfermedades Raras, AELMHU y la Sociedad Española de #MedicinaInterna Sociedad Española de Medicina Interna (SEMI).
ow.ly/oquk50QCwI7