ERN eUROGEN
@ern_eurogen
Improving diagnosis, treatment & care for rare uro-recto-genital diseases & complex conditions needing highly specialised surgery. Funded by the EU.
ID: 893444426936307712
https://linktr.ee/ERN_eUROGEN 04-08-2017 12:12:05
2,2K Tweet
1,1K Followers
541 Following
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Amer. Urol. Assn.
@amerurological
The American Urological Association is a premier urologic association, providing invaluable support to the urologic community.
BVKJ
@bvkj
Hier twittert der Berufsverband der Kinder- und Jugendärzt*innen e.V. (BVKJ).
ICS
@icsoffice
The International Continence Society is a membership society for medical professionals concerned with treating incontinence and pelvic floor disorders.
IFSBH
@ifsbh
The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation for Spina Bifida and Hydrocephalus associations
European Association of Urology (EAU)
@uroweb
We are: 18,000+ urologists. We do: Numerous scientific meetings, CME accreditation, scientific publications, research, awareness and more.
International Cancer Patient Coalition
@united4cancer
ICPC is dedicated to promoting innovative and timely access to cancer care for patients all over the world 🌎
EUScience&Innovation🇪🇺
@euscienceinnov
Policy updates from the @EU_Commission's Directorate-General for Research & Innovation. Follow also @HorizonEU, @EZaharievaEU & @lemaitre_eu
Maastricht UMC+
@maastrichtumc
Het azM en de Faculteit Health, Medicine and Life Sciences van de Universiteit Maastricht werken samen onder de naam Maastricht UMC+.
EUPHA
@euphacts
The European Public Health Association, or EUPHA in short, is an umbrella organisation for public health associations and institutes in Europe.
European Urology
@euplatinum
The Platinum Journal | Official Journal of EAU @Uroweb | Ranked #1 in Urology & Nephrology | Editor in Chief @Albert0Briganti | IF 25.3
World Orphan Drug Congress
@orphan_drugs
World Orphan Drug Congress Europe | 27 - 29 October 2025 | RAI Congress Centre, Amsterdam
ESPU
@espuorg
The European Society for Paediatric Urology is a non-profit society whose main purpose is to promote paediatric urology.
WPATH
@wpath
World Professional Association for Transgender Health. Promoting evidence-based care, education, research, public policy, and respect in transgender health.
SIOPE 🎗️
@siopeurope
SIOP Europe, the European Society of Paediatric Oncology (SIOPE), promotes optimal standards of care for children and adolescents with cancer.
Arie Parnham
@arieurology
Urology Consultant @TheChristie | Penile Ca EAU Guideline | BAUS AGUS Chairman | RCS & BAUS research assoc. | eUROGEN Views are my own. RT is not endorsement
EORTC
@eortc
European Organisation for #Research and #Treatment of #Cancer defines better treatments for all cancer #patients to prolong survival and improve quality of life
Euractiv Health
@eahealtheu
This channel is no longer being populated with articles. Follow @Euractiv for the latest from us or visit euractiv.com/sections/healt…
LumenNicolaas
@lumennicolaas
Professor in Urology (Ghent University; Ghent University Hospital) Major (Med) in Belgian Military Reserve
Elsevier
@elsevierconnect
We help researchers and healthcare professionals advance science and improve outcomes for the benefit of society.
International Pediatric Association
@ipaworldorg
Partnered with @WHO & @Unicef we connect #pediatricians from over 149 countries, to lead improvements in child and adolescent health and rights.
Fondation Maladies Rares
@fdmaladiesrares
Fondation de coopération scientifique | Foundation For Rare Diseases - Foundation for scientific cooperation
Eupsa Office - Gaia
@eupsaoffice
European Paediatric Surgeons' Association [email protected]
Horizon Europe🇪🇺
@horizoneu
Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
BAUS
@bausurology
British Association of Urological Surgeons #BAUS25 16-18 June | Manchester Central
European School of Urology (EAU ESU)
@urowebesu
The European School of Urology (ESU) is @Uroweb's education arm, running numerous online resources and teaching courses all over the world.
Bündnis KJG e.V.
@buendnis_kjg
Bündnis Kinder- und Jugendgesundheit e.V.
SIOP International
@worldsiop
The International Society of Paediatric Oncology improves and optimises treatments throughout the world. No child should die of cancer! #SIOPcongress
Stella Kyriakides
@skyriakideseu
Former European Commissioner for Health and Food Safety 2019-2024. Human rights advocate. Focus on the positive.
Maria J. Ribal
@mariajribal
Head of Uro-Oncology Unit. @hospitalclinic. Chair of #eauguidelines Office uroweb.org/guidelines In love with Urology!! Passion for life!!!
EPSA
@epsaorg
Official account of the Egyptian Pediatric Surgery Association. Join us for the Annual Conference in December in Cairo
Cirugía Pediátrica
@secipe
Sociedad Española de Cirugía Pediátrica. Sociedad fundada en 1962. Spanish Pediatric Surgical Association.
WHO at the EU
@whoateu
The WHO office at the European Union in Brussels. We are committed to promoting the health of citizens.
EPATH
@europeanpath
The European Professional Association for Transgender Health is an international non-profit organisation, registerd in Belgium.
Michel Wyndaele
@michelwyndaele
Philippe spiess
@spiessphilippe
Assistant chief of Surgery and Senior Member, Dept of GU Oncology, Moffitt Cancer Center, NCCN Bladder and Penile Cancer, Vice-Chair, President of GSRGT
Juan Gómez Rivas
@jgomezrivas
@UrologiaClinico @unicomplutense @ICUAUrologia / @UrowebESU ESOU Board /@actasurologicas @IJSurgery Ass Editor / @InfoAEU Edu Chair
NeuroSphinx
@neurosphinx
Filière #maladiesrares : acteurs la prise en charge des malformations pelviennes&médullaires rares avec atteintes sphinctériennes et/ou neurologiques
Oscar Brouwer
@brouwer_md_phd
Oncological Urologist at @NKI_nl / @hetAVL with special focus on rare urological cancers. Ongoing research on image guided surgery.
Diana Marinello
@dianamarinello
European Reference Network on Rare Bone Diseases
@ern_bond
Share. Care. Cure.
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
Pippa Sangster
@pippa_sangster
Male infertility lead, hypogonadism, erectile dysfunction, Peyronie’s disease & varicocele expert. Consultant Urologist, Andrology department UCLH London
EPA UNEPSA
@epaunepsa
Welcome to official twitter account of the European Paediatric Association, the Union of National European Paediatric Societies and Associations (EPA/UNEPSA).
DGKJ
@dgkj_ev
Die Deutsche Gesellschaft für Kinder- und Jugendmedizin e.V. (DGKJ) ist die wissenschaftliche Fachgesellschaft der Kinder- und Jugendmedizin in Deutschland.
UROLOGY CHEAT SHEETS
@cheaturology
The urology schemes you've always wanted but never dared to ask! @Urology3D
OD4RD Project
@orphacodes
The OD4RD project builds on Orphanet's specific expertise and on its network to support the implementation of ORPHAcodes in health systems in a standardisez way
Rare Disease and Orphan Drugs Journal
@oae_rdodj
Rare Disease and Orphan Drugs Journal(RDODJ) is an international peer-reviewed, open access, online journal.
Together for Rare Diseases
@together4rd
Together for Rare Diseases is a multi-stakeholder alliance supporting ERNs and industry to collaborate for the benefit of the rare disease community
ESPU Education Committee
@espu_edcom
All the action from the ESPU Educational Committee: Courses, advice, exams
European Commission 🇪🇺
@eu_commision
News and fake news from the European Commission. The Gen Z take you didn't know you need
ERN-Skin
@ern_skin
ERN-Skin is the European Reference Network for Rare and Undiagnosed Skin Disorders
UroGPT HUB
@urogpt
The uroGPT HUB is a research collective that aims to improve the understanding of GPTs and LLMs in Urology | Head @cacciamani_MD
JARDIN Joint Action
@jardin_eu_ja
JARDIN is created to improve the accessibility of the ERNs for people living with rare diseases or complex conditions in EU member states.
Rareatives
@rareatives
Share Your Rare | Amplifying Rare Disease Voices 🎙️ 📖 Sharing stories from the 1 in 10 🧬 New patient-led publication #RareDisease #PatientVoicesMatter
IPSO Surgeons
@ipsosurgeons
IPSO is an international society of surgeons who specialize in the #Surgical care of children with #pediatric #Cancer.
Matthieu Peycelon
@m_peycelon
MD PhD urologie pédiatrique @HopRobertDebre @UP_Medecine | Research fellow in pediatric urology @RileyUrology @IUMedSchool | @ESPU_EdCom @SFUPA1
GICS
@gicsurgery
The Global Initiative for Children's Surgery works so all the world's children will have access to surgical care.goo.gl/QwPi7o
Peter Albers
@albers_pa
Professor of Urology, Chair, Department of Urology, Düsseldorf University and Division Head, German Cancer Research Center (DKFZ), Heidelberg
CheckRare
@checkrare
Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
Kenya Paediatric Association
@kenyapaeds
Official twitter handle for Kenya Paediatric Association
CCI Europe 🎗️
@cci_europe
Every child with cancer deserves the best treatment, no matter where in Europe they live.
EpiCARE
@epicare_ern
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
John Osborne
@johnosb61266803
SFCP
@sfcptwit
Société Française de Chirurgie Pédiatrique
Luke Harper 👨🏼⚕️
@lukha33
traveling pediatric urologist, great wife, fantastic kids, what else...
@ERN_RND 🧠
@ern_rnd
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: bit.ly/33mMY4C