ERDERA
@erdera_org
The European Rare Diseases Research Alliance.
Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
ID: 1085907416758345728
http://erdera.org 17-01-2019 14:31:18
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FEDER | Enfermedades Raras
@feder_ong
👉🏻 Somos la esperanza de 3 millones de personas con #enfermedadesraras 🍀 Representamos a 422 organizaciones de pacientes y a 1.546 patologías poco frecuentes
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
catherine burns
@cathburns
Health Correspondent for BBC News
James Gallagher
@jamestgallagher
Presenter of Inside Health on @BBCRadio4 and health and science correspondent, @BBCNews. Contrary to popular opinion my middle name is not Tiberius.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
WSJ Health
@wsjhealth
Health, healthcare, biotech, new drugs & medicine coverage from @WSJ. Subscribe to our newsletter: wsj.com/health
Andrea Corazza
@andreacorazza
EU advocate, interested in health, international affairs and EU external policies. Tweets are personal. RTs ≠ endorsement.
Science|Business
@scibus
Bringing together industry, research and policy since 2004. Focusing on #HorizonEU #Research #Innovation
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Iliana Ivanova
@ili_ivanova
Member of the European Court of Auditors
Anticancer Fund
@anticancerfund
The Anticancer Fund supports research for cancer treatments with a clear benefit for the patient. Brussels based, with an international scope. Philanthropy.
Biogen
@biogen
Official global newsroom account for Biogen, a leading biotech company pioneering innovative science since 1978. Community guidelines: bit.ly/1MZocKs
EUScience&Innovation🇪🇺
@euscienceinnov
Policy updates from the @EU_Commission's Directorate-General for Research & Innovation. Follow also @HorizonEU, @EZaharievaEU & @lemaitre_eu
EATG
@eatgx
Organising and leading for person-centred prevention, treatment and care for people living with or affected by HIV & associated infections in WHO Europe
CHU de Nice
@chudenice
Retrouvez les actualités du Centre Hospitalier Universitaire de Nice - Membre de @Univ_CotedAzur #CHUdeNice
AP-HM - Hôpitaux Universitaires de Marseille
@aphm_actu
Hôpitaux Universitaires de Marseille, CHU de la 2ème ville de France. Retrouvez-nous sur LINKEDIN, FACEBOOK, INSTAGRAM, BLUESKY, THREADS ET YOUTUBE.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Marc Tachelet
@tachelet
Director of @REA_research, @EU_Commission Agency funding #Research & #Innovation under #HorizonEU 🇪🇺 Tweets by me & team. Views are mine.
Critical Path Institute (C-Path)
@cpathinstitute
C-Path leads collaborations that accelerate drug development, advancing better treatment for people worldwide.
Horizon Europe🇪🇺
@horizoneu
Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
Encephalitis International
@encephalitis
A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain. e: [email protected] t: +44(0)1653 692583
ResearchProfessional
@researchprofes
Provides a database of funding opportunities, news (@ResFortnight @ResearchEurope @Funding_Insight @HE_Analyst) & insight to researchers Part of @exlibrisgroup
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
EISMEA
@eu_eismea
EISMEA implements the European Innovation Council @EUeic & manages other EU programmes focusing on SME support, innovation & the single market @EU_Commission
Raras pero Reales
@rarasreales
Sanofi, comprometidos con el descubrimiento de terapias para pacientes con #EnfermedadesRaras. pro.campus.sanofi/es/legal/polit…
Institut de Neurociències de la UB
@ubneuroscience
UB Neuroscience pursues a comprehensive understanding of the nervous system, from the neuron and neural circuits to the global function of the brain.
Duchenne Data Foundation
@duchennedf
Bringing data to life to improve the world of dystrophinopathies
euramed
@euramed1
Welcome to EURAMED, the leading European platform for research activities in medical radiation protection. Retweets are not endorsements.
Brecht Devleesschauwer
@brechtdv
Head #ServiceHealthInformation #DienstGezondheidsinformatie @sciensano • Visiting prof risk analysis @ugent • #HealthyBelgium #BurdenOfDisease #BeBOD #BurdenEU
Instituto de Salud Carlos III (ISCIII)
@saludisciii
Organismo Público de Investigación que promueve, financia y gestiona investigación biomédica y sanitaria en España. Ciencia para mejorar la salud pública.
BurdenEU
@burdeneu
Technical platform for integrating and strengthening capacity in #BurdenOfDisease assessment across Europe and beyond | #BurdenEU
Ozan Özışık
@ozisikozan
Bioinformatics
European Research Executive Agency
@rea_research
@EU_Commission 🇪🇺 Research Executive Agency funding #HorizonEU, #MSCA, #RFCS & #EUAgriPromo. Our Director is @tachelet 🔗 Privacy: europa.eu/!4drYDh
Radboudumc wetenschap
@radboudumc_weet
Wetenschappelijk nieuws van het @Radboudumc.
Irene Norstedt
@irenenorstedt
Director @EU_Commission 🇪🇺 'People: Health & Society' Directorate, DG Research & Innovation @EUScienceInnov @HorizonEU #EUHealthResearch #UnionOfEquality
Teamit
@teamitresearch
We are a research management organisation that builds strong public-private partnerships and provides transversal expertise for impactful health science.
Jana Sajovic
@janasajovic
I am an MD, who is currently working as a young researcher. My field of interest are inherited retinal diseases, especially Stargardt disease.
LUMC Global
@globallumc
LUMC Global is a platform for international connectivity in research, education and healthcare initiated by the Leiden University Medical Center @LUMC_Leiden
GenoMed4All
@genomed4all
#H2020 project leveraging the power of #AI for #Genomics and Personalized Medicine in Haematological Diseases 🧬 Funded by the @EU_Commission 🇪🇺
Glut1 Deficiency UK
@glut1uk
A parent led charity, dedicated to improving the lives of those affected by Glut1 Deficiency through support, education and medical research.
Anne-Charlotte Fauvel
@acfauvel
EU Relations @EMBL | Research & Innovation Policy Advisor Views are my own.
ProDGNE
@prodgne
#ProDGNE unifies European and Canadian efforts to develop a novel #prodrug as a therapeutic approach for #GNEMyopathy, a #rare 🧬 muscle disease #EJPRD #JTC2020
ERICA
@erica_rd_eu
The European Rare Disease Research Coordination and Support Action
Filières Maladies Rares
@filieresmr
Les Filières de Santé Maladies Rares ont pour vocation d’animer et de coordonner les actions entre les acteurs maladies rares.
TRANSFORM
@transform_cgt
🧬 TRANSFORM is a multi-stakeholder European Alliance raising awareness on cell and gene therapies 🗣 TRANSFORM MEP Interest Group
Fabian
@f_a_b__i
HaDEA
@eu_hadea
@EU_Commission's Executive Agency implementing the EU funding programmes for health, food safety, digital, industry and space. RT ≠ endorsement.
EHDN News
@ehdn_news
European Huntington's Disease Network newsletter. Editor: Catherine Deeprose, PhD. We are also on BlueSky @ehdn-news.bsky.social and LinkedIn.
Stefano Benvenuti
@stefanobenvenu6
Public Affairs Manager @telethonitalia, I'm passionate about research that can change the life of people. Views are my own
NCL_RareDisease
@ncl_raredisease
@UniofNewcastle Centre of Excellence for Rare Disease works with @NewcastleHosps @NHIPartners & more, to constitute a 'Newcastle RD' community(Tweets V.Hedley)
Screen4Care
@screen4care
Accelerating Diagnosis for Rare Disease Patients Through Genetic Newborn Screening and Artificial Intelligence
REMEDi4ALL
@remedi4all
The European Platform for Medicines Repurposing
Every Cure
@everycure
We leverage #ai to unlock the power of each and every drug to treat each and every potential disease they possibly can. Inspired by @DavidFajgenbaum
ERA4Health_Partnership
@era4health_eu
Joining efforts for tackling public health needs through transnational research funding Co-funded under the Horizon Europe Programme G.A. Nº: 101095426
Cellosaurus
@cellosaurus
The knowledge resource on cell lines #Bioinformatics #CellLines #CellLine #Cellosaurus #CellBiology #Biocuration Also: bsky.app/profile/cellos…
AnnemiekeAartsma-Rus
@oligogirl
Translating science from bench to bedside and from jargon to lay language
Lutte contre Lupus
@luttelupus
Compte créé pour faire connaître le LUPUS aux plus grands nombres. facebook.com/groups/4602548…
Biotherapies_Inst
@biotherapiesins
Biotherapies Institute, by AFM-Téléthon (@AFMPresse), to develop treatments against #RareDiseases.#genetherapy #celltherapy bit.ly/2lP2qDC
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
ern euro_nmd
@euro_nmd
Building bridges and breaking barriers in rare neuromuscular diseases.
Réseau Hôpital & GHT
@reseauhetght
Fil info des hôpitaux et des groupements hospitaliers de territoire
ERN ReCONNET 🇪🇺
@ern_reconnet
🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
EpiCARE
@epicare_ern
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
DBGen Ocular Genomics
@dbgenocular
Diagnóstico genético de las enfermedades hereditarias de la visión | Genetic testing of hereditary eye diseases.
Solve-RD
@solve_rd
Solve-RD is a H2020 funded flagship EU project. We will solve large numbers of rare diseases, for which a molecular cause is not known yet.
CVBF
@consorziocvbf
CVBF mission is to perform innovative research initiatives in the European scenario to enhance pediatric research from drug discovery to clinical phases.
@ERN_RND 🧠
@ern_rnd
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: bit.ly/33mMY4C