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This bleb (pseudomeningocele) at L2-3 really looked like from an LP but patient and his mom were certain that patient had never had an LP and then produced evidence of a possible alternate explanation ⁦Spinal CSF Leak Foundation⁩ ⁦Acupuncture Today⁩ ⁦American Academy of Pain Medicine (AAPM)⁩

Preparing for the 2025 Intracranial Hypotension Conference in Amsterdam involves polishing up the churches and palaces in town. Register to attend at bit.ly/3Z86Sin and also enjoy the Amsterdam 750th anniversary celebrations ⁦Spinal CSF Leak Foundation⁩ ⁦I amsterdam⁩

Incredible #ASSR25 panel with the world’s experts on CSF leak! American Society of Spine Radiology (ASSR)

The Spinal CSF Leak Foundation is proud to support this year's 2-day Intracranial Hypotension Conference in Amsterdam, ⁩hosted by ⁦Cedars-Sinai⁩ ⁦Duke University⁩ ⁦Uni Freiburg⁩ & ⁦UvA Amsterdam⁩. ⁦ Virtual & in-person attendance options + the schedule: cedars.cloud-cme.com/course/courseo…

It took this metal hook 23 years to make its way through the dura resulting in a CSF leak with intractable orthostatic headaches and brain sagging @isscl ⁦Spinal CSF Leak Foundation⁩ ⁦Scoliosis Research Society⁩

International collaboration in CSF leak care is essential. We have been fortunate to host CSF leak specialist Dr M Slot from ⁦Amsterdam UMC⁩. Dr Slot is the youngest and first woman chair in neurosurgery in the Netherlands ⁦Spinal CSF Leak Foundation⁩ ⁦Amsterdam Neuroscience | Amsterdam UMC⁩

Superficial Siderosis Symposium June 11-13 2025 ssra.livingwithss.com/blog/superfici… #teamsuperficialsiderosis

Submit your abstract for the 2-day Amsterdam Intracranial Hypotension conference. Be part of the discussion on CSF leak care. Submit at bit.ly/3Z86Sin Oral presentation for the two best abstracts and $2000 for the #1 abstract (educational grant) ⁦Spinal CSF Leak Foundation⁩

Getting ready for an afternoon session ⁦⁦American Academy of Neurology⁩ in beautiful San Diego on low and high CSF pressure disorders with fellow CSF aficionados ⁦Ferdinand⁩ #DrKKnievel #DrCSchusse. ⁦Spinal CSF Leak Foundation⁩

An amazing presentation by ⁦Johns Hopkins Medicine⁩ MD/PhD student Cassie Parks at the #AANAM today on our research on fibrillin-2 (FBN2) mutations in patients with spontaneous spinal CSF leaks. This groundbreaking research was performed in Hal Dietz lab ⁦Spinal CSF Leak Foundation⁩

Hurt his back while hunting elk. Now an inoperable pseudomeningocele after 1 discectomy and 5 CSF leak repair attempts. What is risk of superficial siderosis? Maybe ⁦SSRA | Living with SS⁩ symposium in Boston or bit.ly/3Z86Sin in Amsterdam will tell ⁦Spinal CSF Leak Foundation⁩

We see spontaneous fistulas daily but traumatic ones are distinctly less common. This young man developed orthostatic headaches 2 years after a brachial plexus avulsion. Surgery with ⁦Andre Boyke, MD⁩ was able to address both a lateral leak and a fistula ⁦Spinal CSF Leak Foundation⁩

The Inaugural Superficial Siderosis Symposium is coming this June. Join researchers, clinicians, and patients as we unite for the first time to advance SS care and research. Remote viewing is available: DM your email for access.#symposium #SuperficialSiderosis #RareDisease

Great #CSFLeak / #SIH session at #asnr2025 with my friends and role models Peter Kranz and WouterSchievink The American Society of Neuroradiology

A new study on the crucial role of Ferumoxytol-enhanced MRV in embolization of CSF Venous Fistulas: Spinal venous anatomy showed substantial variability MRV guides tailored embolization and reveals unexpected findings like azygos stenosis ajnr.org/content/early/…

Spontaneous intracranial hypotension is caused by spinal CSF loss in 99.9% of patients. In this girl the cause was not only at the level of the skull base but CSF was exposed to the milieu extérieur resulting in 2 bouts of meningitis ⁦Spinal CSF Leak Foundation⁩ jamanetwork.com/journals/jaman…

Visit beautiful Amsterdam, the Netherlands 🇳🇱, in 4 weeks to participate in the 2-day Intracranial Hypotension conference bit.ly/3Z86Sin hosted by ⁦Cedars-Sinai⁩ Duke University ⁦Uni Freiburg⁩ ⁦UvA Amsterdam⁩ sponsored by ⁦Spinal CSF Leak Foundation⁩

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An unforgettable evening with patients caregivers and physicians passionate about solutions for superficial siderosis. Humbled to meet the giants of SS care #ProfessorDavidWerring and #DrMichaelLevy ⁦Harvard University⁩ Loeb House ⁦SSRA | Living with SS⁩ ⁦Spinal CSF Leak Foundation⁩

Congratulations to ⁦our former ⁦Cedars-Sinai⁩ resident #DrAngeliqueTay’s 6th CSF leak paper! A systematic review of CSF-venous fistulas in patients with a good story for SIH but normal brain & spine imaging. Yield is not zero! ⁦Spinal CSF Leak Foundation⁩ pubmed.ncbi.nlm.nih.gov/40533349/