UDN PEER (@udn_peer) 's Twitter Profile
UDN PEER

@udn_peer

The UDN Participant Engagement and Empowerment Resource (PEER) group supports participants and family members enrolled in the Undiagnosed Diseases Network.

ID: 1361837957280198656

linkhttp://udnconnect.org/peer calendar_today17-02-2021 00:41:17

355 Tweet

239 Followers

95 Following

UDN (@udnconnect) 's Twitter Profile Photo

UDN PEER invites you to attend a lecture with Katheryn Brauckmann & Alex Lowery on Friday, November 17th from 12:00-1:00pm ET Register here: harvard.zoom.us/webinar/regist… All are welcome! #raredisease #undiagnosed

UDN PEER invites you to attend a lecture with Katheryn Brauckmann & Alex Lowery on Friday, November 17th from 12:00-1:00pm ET

Register here:
harvard.zoom.us/webinar/regist…

All are welcome! #raredisease #undiagnosed
Sarah (@raremommn) 's Twitter Profile Photo

If you are looking for a worthy cause to support, the UDNF has integrity and a mission that is driven by both people and science. Your donation matters to me. UDN PEER Undiagnosed Diseases Network Foundation (UDNF) UDN linkedin.com/feed/update/ur…

UDN (@udnconnect) 's Twitter Profile Photo

UDN PEER invites you to attend a lecture with Katheryn Brauckmann & Alex Lowery on Friday, November 17th from 12:00-1:00pm ET Register here: harvard.zoom.us/webinar/regist… All are welcome! #raredisease #undiagnosed

UDN PEER invites you to attend a lecture with Katheryn Brauckmann & Alex Lowery on Friday, November 17th from 12:00-1:00pm ET

Register here:
harvard.zoom.us/webinar/regist…

All are welcome! #raredisease #undiagnosed
UDN PEER (@udn_peer) 's Twitter Profile Photo

Please take a look at this inspiring patient story posted by Undiagnosed Diseases Network Foundation (UDNF) . Thank you to the McGarvey Family for sharing your story and spreading awareness about #raredisease linkedin.com/posts/udnforg_…

UDN (@udnconnect) 's Twitter Profile Photo

UDN PEER invites you to attend Book Launch Lecture series with author, Kelly Cervantes, and moderator, Kim Bernardi, on Friday, January 26th from 12:00-1:00pm ET Register at bit.ly/NormalBrokenLa… All are welcome!

UDN PEER invites you to attend Book Launch Lecture series with author, Kelly Cervantes, and moderator, Kim Bernardi, on Friday, January 26th from 12:00-1:00pm ET

Register at bit.ly/NormalBrokenLa…

All are welcome!
UDN PEER (@udn_peer) 's Twitter Profile Photo

Register now for our PEER book launch lecture seriesšŸ“–! Normal Broken: The Grief Companion for When It’s Time to Heal but You’re Not Sure You Want To by @KellyGC411 . January 26th 12-1 ET Click to register : harvard.zoom.us/webinar/regist…

Register now for our PEER book launch lecture seriesšŸ“–!  Normal Broken: The Grief Companion for When It’s Time to Heal but You’re Not Sure You Want To by @KellyGC411 . January 26th 12-1 ET
Click to register : harvard.zoom.us/webinar/regist…
HCU Network America (@hcuamerica) 's Twitter Profile Photo

There are plenty of opportunities to plug in šŸ”Œ for #RareDiseaseWeek2024! šŸ¦“ EveryLife Foundation RDLA National Organization for Rare Disorders (NORD) U.S. FDA NIH #RareDC2024 #RareDisease #RareDiseaseDay #RDDNIH #advocacy #policy #awareness #homocystinuria #HCU #HopeConnectsUs

There are plenty of opportunities to plug in šŸ”Œ for #RareDiseaseWeek2024! šŸ¦“

<a href="/EveryLifeOrg/">EveryLife Foundation</a> <a href="/RareAdvocates/">RDLA</a> <a href="/RareDiseases/">National Organization for Rare Disorders (NORD)</a> <a href="/US_FDA/">U.S. FDA</a> <a href="/NIH/">NIH</a> 

#RareDC2024 #RareDisease #RareDiseaseDay #RDDNIH #advocacy #policy #awareness #homocystinuria #HCU #HopeConnectsUs
UDN PEER (@udn_peer) 's Twitter Profile Photo

Today @ 12 ET, come listen to the personal story of Nikki 's daughter who passed away in 2020 of an undiagnosed disease & Dr. Oglesbee of Mayo Clinic and Nicole Walley of Duke University talk about the challenges in science towards finding a a diagnosis. Register : udnf.org/tell-me-more-w…

Today @ 12 ET, come listen to the personal story of Nikki 's daughter who passed away in 2020 of an undiagnosed disease &amp; Dr. Oglesbee of <a href="/MayoClinic/">Mayo Clinic</a> and Nicole Walley of <a href="/DukeU/">Duke University</a> talk about the challenges in science towards finding a a diagnosis. Register : udnf.org/tell-me-more-w…
UDN PEER (@udn_peer) 's Twitter Profile Photo

Check out this article about UDN in Harvard Magazine , featuring an inspiring patient story, along with the current state and future of rare disease research magazine.hms.harvard.edu/articles/solvi…