A huge step forward inews.co.uk/news/chronic-u…

Given that, depressingly, the hashtag "sendherback" is trending, I'm very happy to start a #welcomehomenazanin thing, if anyone wants to join in with being pleasant and cheerful.

Please sign and share. Thanks x chng.it/4QXJvTfYTF

Dear @Ofgem & @KwasiKwarteng. Pls reverse the recent burden shift to the standing charge (rather than unit rates) for the next price cap. It was regressive & means cutting usage has less impact on bills. Even those using NO energy now pay £165/yr for electricity, £99 for gas.

#ChronicUTI community please fill this in & share widely - they are explicitly asking for our experience of NHS UTI treatment…. Tell us: what is your experience of women’s healthcare in England? theguardian.com/lifeandstyle/2…

One of those due to be deported to Rwanda on Tuesday is an Iranian former police major, sentenced to jail for refusing orders to shoot on protestors in 2019. He's petrified bbc.co.uk/news/world-mid…

Department of Health and Social Care Lesley Regan Lesley Regan the chronic UTI community would love the opportunity to speak with you about this entirely debilitating illness. Women are being dismissed, inaccurately diagnosed & left to suffer with this. Check out cutic.co.uk

Guidelines are letting down patients with chronic UTI. Thanks to the inews for highlighting this debilitating, life-changing condition. inews.co.uk/inews-lifestyl…

3 questions for NICE 1. Why r u failing to recognise inadequacy of UTI testing in guidelines? 2. You’re updating rUTI guideline, will you include failure of tests? 3. Will research question on cUTI be included in the adults guideline under review? inews.co.uk/news/chronic-u…

The Guardian The Telegraph BBC Woman's Hour Mail+ The Mirror Loose Women pick up & run this story? NICE are failing to include that UTI tests are inadequate (despite clear evidence on this) in their guidelines, leading to misdiagnosis & misery. The media must ask why?!

Time is running out for these fine folks to get to 10K signatures for a Government response to their petition calling for better diagnosis, treatment and research for #UTI. Help raise awareness of this important matter - sign and tell your friends! petition.parliament.uk/petitions/6107…

One day 🙏

Please Please sign! We are nearing the end and I can’t understand why we haven’t got the signatures! If you ever happen to go through this painful disease you will understand why we pushed so hard for this testing to be changed!

I have a huge favour to ask. There is a big meeting coming up on 27th September about Mr Benn. I have to show the value of this twitter account, so I would like to see how much we can grow it in the next week. If you enjoy this account, please tell everybody! Thank you...

I just donated to Wild Futures. Their valuable work protects primates and habitats worldwide. wildfutures.org/donate via Wild Futures

We're aiming to raise enough in donations to purchase 100 electric blankets and electric throws - much cheaper to run than central heating - as a lifeline for those in need. Our crowdfunder has just gone live. Any and every donation is much appreciated: crowdfunder.co.uk/p/heat-the-per…

Hey Boris Johnson, thought I’d do a survey to help you read the room. A simple question: Should Stanley Johnson (Boris Johnson’s father) receive a knighthood? Please retweet once you answer so that we can get as many responses as possible

Anyone UK based willing to speak with journalist who has either of these two scenarios happen to them, please DM. 1. Very recently denied antibiotics in A&E or GP practice with UTI symptoms but dipstick or culture negative. 2. Developed cUTI after 3 day course of abx ineffective

‘The symptoms are debilitating, I’ve spent the last four years in significant pain and fear’ Leah Herridge, a chronic #UTI patient and campaigner, discusses the life-changing symptoms she's experienced... and her hope for more effective treatment: bsac.org.uk/patient-spotli…

📢 Do you experience recurrent urinary tract infection or other bladder related issues? A new survey published today, supported by CUTIC is collecting information about the impacts of CUTI on people in Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Respond below ⬇️ docs.google.com/forms/d/e/1FAI…