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Yesterday, I got my blood taken on the exact same date as 6 years ago — May 12. Waiting to find out my levels for days is always the very worst part. I am ssoooooo nervous about my platelets. I hope all of my prayers are working on my bones. #StartWithHillary & come on blood.

I am overjoyed to report that my platelets grew to 210 after losing 50K during my unexplained ER fever, which means, yes, my bones made more blood!!!!! I am not relapsing — I could NOT be happier. It’s the best day of my life. Again. I’m going to keep working hard to protect this

Last week, I was wondering how my family would move to Toronto for three months for my bone marrow transplant from someone who I’m not sure even exists. I listened to JUMP! 106.9 in the car — I heard the stories about Ronald McDonald House Charities. I know how hard it’s gonna be. It’s scary to think

It’s CHEO Eve — and I usually don’t sleep the night before. I don’t have anxiety and don’t ever get nervous —- I’m just always SUPER excited to see how I’m doing. This journey has been pretty easy thanks to my Hematologist-Oncologist, Dermatologist, Neurologist, Dentist, and my

My appointment today with my Hematologist was awesome. The kind of visit that makes you want to take a drive and sing out the window. Not many people with #AplasticAnemia get a CR — complete response — to second-line immunosuppressive therapy (hATG). To see my blood levels

My temperature is high again. Every night. I feel like we’re missing something. I don’t feel normal. My blood is boiling. My skin is red. I’m asking for help. Something is different. I hope I get more answers after my #PNH test tomorrow at CHEO Ottawa. They have to send it over to the

I’ve been quiet on X. Last week was rough. My ER bloodwork is showing some abnormal stuff and I’m a bit worried. I have to wait a couple more weeks to find out if I have #cancer. If my #PNH is growing. If I’m relapsing with #AA and need a transplant. Maybe it’s my spine. My