Spina Bifida & Hydrocephalus Paeds Advocacy#backus
@sbh_pag
Parent-led voluntary group advocating for children living with Spina bifida and/or Hydrocephalus in Ireland Co-leads @mandacoughlan @UnaKeightley #backus
ID: 1460727148197597184
http://www.sbhpag.com 16-11-2021 21:51:23
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Amanda Coughlan Children's Health Ireland A blatant lie! They couldnât even identify the medically abandoned â0rphansâ At a conservative guess, more than 2/3 of those children are completely discharged out of Crumlin with no transition, starting 2017. The 2008 cohort are already 16/17 yrs & have reached discharge age.
Oireachtas Health Committee 19/6/25 The treatment of children with dysplasia and scoliosis related matters. Constant reluctance to disclose information - PĂĄdraig Rice TD Was there informed consent?? A philosophy among consultants led to a higher rate of hip surgeries #CHI
Dr Tom Clonan if you were running Tayto park I wouldn't let my child in to Children's Health Ireland
Spina Bifida & Hydrocephalus Paeds Advocacy#backus Dr Tom Clonan Children's Health Ireland I take my hat off to Tom, he built up to, and framed, those questions perfectly and despite the pain and anguish behind this he has done great service to the Country today. #TaytoPark
Children's Health Ireland you are farcical. i saw your unsympathetic soul less faces today for the first time, ive never experienced heartlessness like it. 7 or 8 of you in suits with huge files, all looking like naughty kids outside the principles office. You have all failed our children
PĂĄdraig Rice TD David Cullinane T.D. + others asking the big questions that CHI could not answer. Huge thanks to #brianbrennan Fine Gael and Dr Tom Clonan also for an emotional hard hitting contributions. Lucy Nugent/ Eilish Hardiman, the Trust of the nation is gone, please go too!
Spina Bifida & Hydrocephalus Paeds Advocacy#backus Children's Health Ireland Why is this not being investigated by high levels of Garda?
Stephen Morrison Children's Health Ireland Arrest those running CHI.
Sinéad McGarry Greatly appreciated by families
If you listen to nothing else, please listen to this. Dr Tom Clonan said he was worried he would become emotional while speaking, I became emotional listening to him. 'If you were running Tayto Park, I wouldn't let my children go there.' I cannot see how CHI can continue to exist.
Spina Bifida & Hydrocephalus Paeds Advocacy#backus I would love to see other professions and groups speak out - we need a full cross society call for justice and safe healthcare for children.
Mick Caul The Scoliosis Advocacy Network #BackUs Spina Bifida & Hydrocephalus Paeds Advocacy#backus 40 min in, I had to stop because it's just unbearable. How could we allow it to happen, and why are we still allowing this hide and seek game? Not publishing the report No real consequences. These children will one day hold us accountable, too.
Shout out to some senators, credit where its due, Dr Martin Daly Dr Tom Clonan #brianbrennan were hard hitting speakers, David Cullinane T.D. #teresacostello #nicoleryan, not 1 entertained Children's Health Ireland soulless apology for one of the biggest medical scandals in the history of the state
PĂĄdraig Rice TD another man who didnt entertain the litany of nonsense today đ some good humane people in the oireachtas đ
Mick Caul Mairead O'Doherty PĂĄdraig Rice TD The novel procedure used in the Hip surgeries was carried out because of the âphilosophy of a no. of Consultantsâ Very careful language is used, not once was it referenced as a âprovenâ belief.đ§ This cannot in all conscience be accepted as a reason. CHI are dancing around truth
When will we ever learn? How many healthcare disasters does it take? Seen today HEPS Conference 2025 #HEPS2025
This is really unbelievable. We are failing children at every twist and turn. Fair play to Dr Tom Clonan This is the level of holding people to account that is needed on a large scale.