RAPSODI (@rapsodirfh) 's Twitter Profile
RAPSODI

@rapsodirfh

Rapsodi is a pioneering online study which uses the help of Gaucher patients and their families to develop life changing treatments for Parkinson's Disease.

ID: 981860769146048513

linkhttps://rapsodistudy.com/en calendar_today05-04-2018 11:47:04

249 Tweet

150 Followers

157 Following

RAPSODI (@rapsodirfh) 's Twitter Profile Photo

RAPSODI is a nationwide remote annual assessment, it can thereby be completed from anywhere with a computer and internet access. If you or anyone you know is interested in taking part, the RAPSODI team is available to assist and advise via our email [email protected].

RAPSODI (@rapsodirfh) 's Twitter Profile Photo

Changes in the GBA gene (which can cause #GaucherDisease), are some of the most important known risk factors for developing PD. RAPSODI is interested in understanding this link, so that we can develop better diagnostic procedures and disease management strategies for PD.

RAPSODI (@rapsodirfh) 's Twitter Profile Photo

RAPSODI is a nationwide remote annual assessment, it can thereby be completed from anywhere with a computer and internet access. If you or anyone you know is interested in taking part, the RAPSODI team is available to assist and advise via our email [email protected].

RAPSODI (@rapsodirfh) 's Twitter Profile Photo

It is never too late to join the RAPSODI study and we are particularly looking to recruit close blood relatives (e.g. parents, siblings, children), of our participants with Gaucher's disease and GBA mutation carriers. For more information, please email us at [email protected]

RAPSODI (@rapsodirfh) 's Twitter Profile Photo

It is never too late to join the RAPSODI study and we are particularly looking to recruit close blood relatives (e.g. parents, siblings, children), of our participants with Gaucher's disease and GBA mutation carriers. For more information, please email us at [email protected]

PDFrontline🧬 (@pdfrontline) 's Twitter Profile Photo

Join us on December 16th at 10 am for the 'Getting involved in Clinical Trials and PD Community' Webinar, hosted by PD Frontline! We hope to see you there! Register Here: ucl.zoom.us/webinar/regist… Cure Parkinson's EJS ACT-PD More Than a Tremor Move into Wellbeing®

Join us on December 16th at 10 am for the 'Getting involved in Clinical Trials and PD Community' Webinar, hosted by PD Frontline! We hope to see you there! Register Here: ucl.zoom.us/webinar/regist…
<a href="/CureParkinsonsT/">Cure Parkinson's</a> 
<a href="/EJS_ACT_PD/">EJS ACT-PD</a>  
<a href="/morethanatremor/">More Than a Tremor</a> 
<a href="/Movein2Welbng/">Move into Wellbeing®</a>
Tony Schapira (@tonyschapira) 's Twitter Profile Photo

Thank you to all our participants in RAPSODI and PDFrontline🧬 for their continuing support for these projects this year! The data we have collected from these studies has informed the ambroxol trial (ASProPD), which is an exciting development looking to see... (1/2)

Cure Parkinson's (@cureparkinsonst) 's Twitter Profile Photo

(1/2) Ambroxol was prioritised for clinical trial in people with Parkinson’s through our #iLCT programme and Cure Parkinson’s has been the impetus behind the new phase 3 ambroxol trial alongside Van Andel Institute (VAI) and the John Black Charitable Foundation. #ambroxolphase3

(1/2) Ambroxol was prioritised for clinical trial in people with Parkinson’s through our #iLCT programme and Cure Parkinson’s has been the impetus behind the new phase 3 ambroxol trial alongside <a href="/VAInstitute/">Van Andel Institute (VAI)</a> and the John Black Charitable Foundation.

#ambroxolphase3
Tony Schapira (@tonyschapira) 's Twitter Profile Photo

I am delighted to be leading this exciting project – the first time a drug specifically applied to a genetic cause of Parkinson’s has reached this level of trial in the #ambroxol trial Cure Parkinson's

UCL (@ucl) 's Twitter Profile Photo

Happy New Year to everyone celebrating! 春节快乐! 恭喜發財! Wishing you a happy, healthy and prosperous year.

Happy New Year to everyone celebrating! 春节快乐! 恭喜發財! 

Wishing you a happy, healthy and prosperous year.
Tony Schapira (@tonyschapira) 's Twitter Profile Photo

Join us next Thursday at the Cure Parkinson's Research Update meeting, where we will discuss the current status of cell therapies for Parkinson’s as well as the upcoming AsPro-PD trial to slow Parkinson's - find out more and register at: cureparkinsons.org.uk/2023/01/cure-p…

Tony Schapira (@tonyschapira) 's Twitter Profile Photo

Happy #InternationalWomensDay! I am proud to celebrate the women working in our team and at UCL Queen Square Institute of Neurology, dedicating their efforts to research and the development of new therapeutic strategies in Parkinson’s Disease

Happy #InternationalWomensDay!
I am proud to celebrate the women working in our team and at <a href="/UCLIoN/">UCL Queen Square Institute of Neurology</a>, dedicating their efforts to research and the development of new therapeutic strategies in Parkinson’s Disease
Tony Schapira (@tonyschapira) 's Twitter Profile Photo

April is #ParkinsonsAwarenessMonth! Team Schapira_ASAP CRN is just one part of the Aligning Science Across Parkinson’s network. We are able to celebrate a year’s work of deeper and faster discoveries that further #PDResearch and #OpenScience. Click below to learn more: parkinsonsroadmap.org/collaborative-…

Tony Schapira (@tonyschapira) 's Twitter Profile Photo

In honour of #ParkinsonsAwarenessMonth, I would like to introduce RAPSODI - an online study recruiting close blood relatives (parents, brothers/sisters, children) of #GaucherDisease patients to develop life changing treatments for Parkinson's Disease: rapsodistudy.com/en

RAPSODI (@rapsodirfh) 's Twitter Profile Photo

Read our new newsletter about the RAPSODI study, recent advances in Parkinson's research and ways to get involved here: drive.google.com/file/d/1QtbVzy…

Read our new newsletter about the RAPSODI study, recent advances in Parkinson's research and ways to get involved here:
drive.google.com/file/d/1QtbVzy…
VJ Neurology (@vjneurology) 's Twitter Profile Photo

At #CONy2024, we caught up with Tony Schapira (UCL) to hear about the launch of the new Phase III ASPro-PD study (Ambroxol to Slow Progression in Parkinson's Disease). For details, watch our exclusive interview: 👉ow.ly/xqGs50Rbpxc #Neurology #NeuroTwitter #Parkinsons

Tony Schapira (@tonyschapira) 's Twitter Profile Photo

Today is #WorldParkinsonsDay 2024 🌎I would like to take this opportunity to thank all of our participants on the Ext and PDFrontline🧬 studies who are enabling us to conduct important research into the role of the GBA gene in Parkinson's Disease🧠

Today is #WorldParkinsonsDay 2024 🌎I would like to take this opportunity to thank all of our participants on the <a href="/RAPSODI/">Ext</a> and <a href="/PDfrontline/">PDFrontline🧬</a> studies who are enabling us to conduct important research into the role of the GBA gene in Parkinson's Disease🧠