PHA UK (@pha_uk) 's Twitter Profile
PHA UK

@pha_uk

We are the Pulmonary Hypertension Association UK (PHA UK) - dedicated to supporting people affected by pulmonary hypertension.

ID: 108994603

linkhttp://www.phauk.org calendar_today27-01-2010 16:57:12

4,4K Tweet

1,1K Followers

456 Following

PHA UK (@pha_uk) 's Twitter Profile Photo

☎️ Emotional wellbeing is a key aspect of mental health and our free Listening Line service provides supportive calls PHA UK team members Paul and Sian - former nurses who truly understand PH. Details: phauk.org/ListeningLine #MentalHealthAwarenessWeek

☎️ Emotional wellbeing is a key aspect of mental health and our free Listening Line service provides supportive calls PHA UK team members Paul and Sian - former nurses who truly understand PH. Details: phauk.org/ListeningLine #MentalHealthAwarenessWeek
PHA UK (@pha_uk) 's Twitter Profile Photo

Our May e-newsletter has landed in inboxes... so as always, don't forget to check your spam folder 📩 Anyone can sign up for these monthly email updates, which are separate from our member magazine. Subscribe here: bit.ly/PHAUKmonthlydi…

Our May e-newsletter has landed in inboxes... so as always, don't forget to check your spam folder 📩
Anyone can sign up for these monthly email updates, which are separate from our member magazine. Subscribe here: bit.ly/PHAUKmonthlydi…
PHA UK (@pha_uk) 's Twitter Profile Photo

This time last week, super supporter Natasha Hinton was making her way around a hot and hilly Leeds Marathon - with every stride dedicated to the memory of her friend Yan. Natasha has raised over £1,300 for our charity in his name, and we're so, so grateful 🙏 #TeamPH

This time  last week, super supporter Natasha Hinton was making her way around a hot and hilly Leeds Marathon - with every stride dedicated to the memory of her friend Yan. Natasha has raised over £1,300 for our charity in his name, and we're so, so grateful 🙏
#TeamPH
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💞We talk a lot as a #PH community about support from partners or spouses – but it’s important to remember that many people are single. If you’re dipping your toe into the relationship world, or hoping to meet someone special, this feature is for you: phauk.org/DatingWithPH

💞We talk a lot as a #PH community about support from partners or spouses – but it’s important to remember that many people are single. If you’re dipping your toe into the relationship world, or hoping to meet someone special, this feature is for you: phauk.org/DatingWithPH
PHA UK (@pha_uk) 's Twitter Profile Photo

If you've recently been told you have #PulmonaryHypertension, it's likely you'll have lots of questions. Our specially-curated web page brings together the free PHA UK resources that might be most helpful to you and your family at this time: phauk.org/resources

If you've recently been told you have #PulmonaryHypertension, it's likely you'll have lots of questions. Our specially-curated web page brings together the free PHA UK resources that might be most helpful to you and your family at this time: phauk.org/resources
PHA UK (@pha_uk) 's Twitter Profile Photo

Have you seen our new woven bracelets? Wear alone, or give one to someone else too as a friendship bracelet. They are fully adjustable, so fit all wrist sizes, and cost just £8 each (or two for £12), with free P&P. Find out more and order at phauk.org/bracelets

Have you seen our new woven bracelets? Wear alone, or give one to someone else too as a friendship bracelet. They are fully adjustable, so fit all wrist sizes, and cost just £8 each (or two for £12), with free P&P.
Find out more and order at phauk.org/bracelets
Frankie (@varianfrances) 's Twitter Profile Photo

Evaluating the equivalence of digital and paper formats of patient reported outcome measures enhances patient choice… our research for people living with pulmonary hypertension shows emPHasis-10 can be used in either format…. Read more here PHA UK Alex Rothman Prof Jill Carlton

We Are Undefeatable (@undefeatable) 's Twitter Profile Photo

"I wasn't active before so I can't be now" - Wrong ❌ It's never too late, being active is about finding what's right for you, start out with gentle movements and then slowly build up. If you're just starting out, visit our website: bit.ly/42TnVYJ #WeAreUndefeatable

"I wasn't active before so I can't be now" - Wrong ❌

It's never too late, being active is about finding what's right for you, start out with gentle movements and then slowly build up. 

If you're just starting out, visit our website: bit.ly/42TnVYJ

#WeAreUndefeatable
PHA UK (@pha_uk) 's Twitter Profile Photo

You've got to be in it to win it! (And 2 PHA UK players scooped £1,000 each earlier this year...) Our lottery gives you the chance to win big whilst supporting our work, and for just £1 a week you could end up with up to £25,000 💰 Find out more at phauk.org/lottery

You've got to be in it to win it! (And 2 PHA UK players scooped £1,000 each earlier this year...)
Our lottery gives you the chance to win big whilst supporting our work, and for just £1 a week you could end up with up to £25,000 💰
Find out more at phauk.org/lottery
PHA UK (@pha_uk) 's Twitter Profile Photo

🐨 We've made this special little book free for children who need help to understand their #PulmonaryHypertension... Order your copy at phauk.org/KiKi

PHA UK (@pha_uk) 's Twitter Profile Photo

To mark the 25th anniversary of our charity, we’re holding a special free event in Birmingham on 9th August to help our PH community get to know each other better and benefit from expert talks and advice. Find out more or book your place at phauk.org/AboutTogether25

To mark the 25th anniversary of our charity, we’re holding a special free event in Birmingham on  9th August to help our PH community get to know each other better and benefit from expert talks and advice.
Find out more or book your place at phauk.org/AboutTogether25
Frankie (@varianfrances) 's Twitter Profile Photo

Thanks to the incredible support from PHA UK and its members… we are looking forward to designing this app for patient empowerment with Alex Rothman British Heart Foundation read the article here phauk.org/patient-voices…

Thanks to the incredible support from <a href="/PHA_UK/">PHA UK</a> and its members…  we are looking forward to designing this app for patient empowerment with <a href="/alex_rothman/">Alex Rothman</a> <a href="/BritishHeart_1/">British Heart Foundation</a> read the article here phauk.org/patient-voices…
PHA UK (@pha_uk) 's Twitter Profile Photo

NEWS: Our members have helped secure funding for a new toolkit to help people manage their PH via a convenient app. Researchers submitted a bid for a grant to develop the technology, using responses to our surveys from the last few years. Full story: phauk.org/AppFunding

NEWS: Our members have helped secure funding for a new toolkit to help people manage their PH via a convenient app.
Researchers submitted a bid for a grant to develop the technology, using responses to our surveys from the last few years. Full story: phauk.org/AppFunding
PHA UK (@pha_uk) 's Twitter Profile Photo

She did it! Ella Soady has been enjoying a well-deserved rest since completing her 150-mile walking challenge through May 🚶‍♀️ Ella trekked through both sunshine and rain during her month of movement, raising almost £1k for our charity in support of friend Luciana💜 #TeamPH

She did it! Ella Soady has been enjoying a well-deserved rest since completing her 150-mile walking challenge through May 🚶‍♀️
Ella trekked through both sunshine and rain during her month of movement, raising almost £1k for our charity in support of friend Luciana💜
#TeamPH
PHA UK (@pha_uk) 's Twitter Profile Photo

Caregivers play a huge role in our disease community, providing vital support to loved ones living with #PulmonaryHypertension. Today marks the start of #CarersWeek and we're joining the call for equality for unpaid carers: phauk.org/CaringAboutEqu…

Caregivers play a huge role in our disease community, providing vital support to loved ones living with #PulmonaryHypertension. Today marks the start of #CarersWeek and we're joining the call for equality for unpaid carers: phauk.org/CaringAboutEqu…
PHA UK (@pha_uk) 's Twitter Profile Photo

💬We're looking for young people with #PH to make their voices heard! We’ve teamed up with Great Ormond Street Children’s Hospital to build a young person’s advisory group to help shape the paediatric PH service and research. Details & get involved: phauk.org/GOSHgroup

💬We're looking for young people with #PH to  make their voices heard! We’ve teamed up with Great Ormond Street Children’s Hospital to build a young person’s advisory group to help shape the paediatric PH service and research. Details &amp; get involved: phauk.org/GOSHgroup
PHA UK (@pha_uk) 's Twitter Profile Photo

"My adult daughter has recently been diagnosed with PH and we have found this lifestyle website to be excellent and very helpful already" - It was lovely to receive this feedback from a father yesterday. There's so much to learn about living with #PH at phocusonlifestyle.org 💜

"My adult daughter has recently been diagnosed with PH and we have found this lifestyle website to be excellent and very helpful already"
- It was lovely to receive this feedback from a father yesterday. There's so much to learn about living with #PH at phocusonlifestyle.org 💜
PHA UK (@pha_uk) 's Twitter Profile Photo

Yesterday saw our Chair Dr Iain Armstrong take to the stage at a major health and care conference in Manchester, as part of a panel discussing the NHS England Breathlessness Pathway. Find out more: phauk.org/expo

Yesterday saw our Chair Dr Iain Armstrong take to the stage at a major health and care conference in Manchester, as part of a panel discussing the NHS England Breathlessness Pathway. Find out more: phauk.org/expo
PHA UK (@pha_uk) 's Twitter Profile Photo

Great to see this collaborative study published in the British Journal of Health Psychology: bit.ly/3G3wirT Our self-help intervention, freely available to all with #PH, is a valuable outcome of this research: phauk.org//OvercomingDep…

PHA UK (@pha_uk) 's Twitter Profile Photo

*Free downloadable door poster* The symptoms of PH mean it’s not always possible to rush quickly to the front door for parcel, so we’ve created a free poster to to let callers know it may take some time to answer the door. Download it at phauk.org/DoorPoster

*Free downloadable door poster*
The symptoms of PH mean it’s not always possible to rush quickly to the front door for parcel, so we’ve created a free poster to to let callers know it may take some time to answer the door.
Download it at phauk.org/DoorPoster