Mat Edick (@mjedick) 's Twitter Profile
Mat Edick

@mjedick

Director, Center for Strategic Health Partnerships, MPHI & Midwest Genetics Network. Parent of a child w/ Down Syndrome. All tweets are my own opinion.

ID: 3890194474

calendar_today07-10-2015 12:56:08

1,1K Tweet

150 Followers

146 Following

The Patient-Centered Outcomes Research Institute (@pcori) 's Twitter Profile Photo

Join health experts from UI Health and Mountain Area Health Education Center as they discuss challenges and successful strategies for the expansion and diversification of the maternal healthcare workforce to address the #maternalhealth crisis. pcori.me/3st5XZQ #PCORI2022

Join health experts from <a href="/UIHealth/">UI Health</a> and <a href="/MAHECwnc/">Mountain Area Health Education Center</a> as they discuss challenges and successful strategies for the expansion and diversification of the maternal healthcare workforce to address the #maternalhealth crisis.
pcori.me/3st5XZQ
 #PCORI2022
Mat Edick (@mjedick) 's Twitter Profile Photo

Exactly what does it mean to “do” health equity work? I would argue that in the US almost all work you do could be contributing to advancing health equity. But advance only happen by intentional action. There is no room for passive health equity work. #PCORI2022

Exactly what does it mean to “do” health equity work?  I would argue that in the US almost all work you do could be contributing to advancing health equity.  But advance only happen by intentional action.  There is no room for passive health equity work. #PCORI2022
Mat Edick (@mjedick) 's Twitter Profile Photo

Excited to hear from Jen Brown, Melvin Thompson, and Jennifer Lee speaking about #HealthEquity and how PCORI funded work can address root causes of health inequity - #PrimaryPrevention

Jessica V Smith (she/hers) (@jessicavsmith1) 's Twitter Profile Photo

#PCORI2022 talking about the transition from community-engaged to community-partnered to community-LED research prioritization and how this will impact our systems of power. It's such an exciting time to be a research trainee!

Mat Edick (@mjedick) 's Twitter Profile Photo

“Our lives have not been changed by what you have learned from us” This is why @CSHPatWork engages stakeholders in all aspects of our work from conception through sunset. Those most affected by our work have power to lead and influence it. Listening to Jen Brown #PCORI2022

“Our lives have not been changed by what you have learned from us” This is why @CSHPatWork engages stakeholders in all aspects of our work from conception through sunset. Those most affected by our work have power to lead and influence it. Listening to <a href="/JenBrownARCC/">Jen Brown</a>  #PCORI2022
Amy_Lang (@amy_lang) 's Twitter Profile Photo

#pcori2022 Advice to health researchers seeking to engage underserved communities: Building trust is the step one in building relationships between community and researchers. Trust is built when researchers show deference to community voices.

Jen Brown (@jenbrownarcc) 's Twitter Profile Photo

Mat Edick @CSHPatWork The Patient-Centered Outcomes Research Institute @Region4Genetics MPHI Janice Tufte @Poorcountryboy2 RGS Michael Mittelman, MBA, Sec+, AWS + Azure ARCC & partners developed an Anti-Racist Reflective Practice Tool for Community-Academic Researchers & Partnerships: bit.ly/ARCCtool It would be great to see if there are any opportunities for collaboration on this related work... #PCORI2022

Mat Edick (@mjedick) 's Twitter Profile Photo

Individuals with #RareDisease face crushing economic burden. For individuals with #SickleCellDisease, the burden is multiplied by systematic racial inequities faced by black and brown people. #PCORI2022. Listening to Ashley Valentine Sick Cells at #PCORI2022.

Individuals with #RareDisease face crushing economic burden.  For individuals with #SickleCellDisease, the burden is multiplied  by systematic racial inequities faced by black and brown people. #PCORI2022. Listening to Ashley Valentine <a href="/SickCells/">Sick Cells</a> at #PCORI2022.
Jen Brown (@jenbrownarcc) 's Twitter Profile Photo

Incredibly powerful storytelling from Ashley Valentine Sick Cells. Appreciate her sharing her family's experience as well as the historical context & legacy of racism on #SickleCellDisease patients & families. #PCORI2022

Incredibly powerful storytelling from Ashley Valentine 
<a href="/SickCells/">Sick Cells</a>. Appreciate her sharing her family's experience as well as the historical context &amp; legacy of racism on #SickleCellDisease patients &amp; families. #PCORI2022
Mat Edick (@mjedick) 's Twitter Profile Photo

Maybe this is obvious,but it’s also profound. Speaker after speaker at #PCORI2022 is highlighting the importance of trust and relationships to improve health outcomes. Funders take note - this takes a long time with many intangible deliverables & we need room for this in budgets.

Maybe this is obvious,but it’s also profound. Speaker after speaker at #PCORI2022 is highlighting the importance of trust and relationships to improve health outcomes. Funders take note - this takes a long time with many intangible deliverables &amp; we need room for this in budgets.
CDC Genomics & Precision Health (@cdc_genomics) 's Twitter Profile Photo

The CDC Genomics and Precision Health Weekly Update spotlights our November 14 webinar on family health history in medically underserved populations, a new blog post on preeclampsia and genomics, CDC information on hemophilia, and more cdc.gov/genomics/updat…

The CDC Genomics and Precision Health Weekly Update spotlights our November 14 webinar on family health history in medically underserved populations, a new blog post on preeclampsia and genomics, CDC information on hemophilia, and more cdc.gov/genomics/updat…
Mat Edick (@mjedick) 's Twitter Profile Photo

As #PCORI2022 is winding down, I am left wondering if The Patient-Centered Outcomes Research Institute’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR. What about evidences bases for CER? Thoughts??? #CSHPAtWork

As #PCORI2022 is winding down, I am left wondering if <a href="/PCORI/">The Patient-Centered Outcomes Research Institute</a>’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR.  What about evidences bases for CER?  Thoughts??? #CSHPAtWork
Mat Edick (@mjedick) 's Twitter Profile Photo

Who are the stakeholders that know and understand how to collect cost of health care utilization data…and how does a research team attract them to collaborate? Listening to experts from RTI International, NPAF, PA Department of Human Services, and @pcori at #PCORI2022

Who are the stakeholders that know and understand how to collect cost of health care utilization data…and how does a research team attract them to collaborate?  Listening to experts from <a href="/RTI_Intl/">RTI International</a>, <a href="/NPAF_tweets/">NPAF</a>, <a href="/PAHumanServices/">PA Department of Human Services</a>, and @pcori at #PCORI2022
Jen Brown (@jenbrownarcc) 's Twitter Profile Photo

🔥final #PCORI2022 panel. Particularly appreciated @sinsipuede's right-on comments on addressing racist systems, centering community voice, & rejection of resilience- 'resilience doesn't protect from structural racism'.

🔥final #PCORI2022 panel. Particularly appreciated @sinsipuede's right-on comments on addressing racist systems, centering community voice, &amp; rejection of resilience- 'resilience doesn't protect from structural racism'.
National Coordinating Center for the RGNs (@nccrcg) 's Twitter Profile Photo

NCC is excited to celebrate Genetic Counselor Awareness Day! We want to thank all the genetic counselors who assist in our efforts to increase the utilization of genetic services for underserved populations. #GCChat #IAmAGeneticCounselor

NCC is excited to celebrate Genetic Counselor Awareness Day! We want to thank all the genetic counselors who assist in our efforts to increase the utilization of genetic services for underserved populations. #GCChat #IAmAGeneticCounselor
Amy Gaviglio (@agavig) 's Twitter Profile Photo

Such an easy way to spread holiday cheer to children & families facing complex care and rare conditions over the holidays. If you are able, check out the adorable wishlists below and help make the holidays a little more joyful for these families! Please retweet to your networks!

Mat Edick (@mjedick) 's Twitter Profile Photo

Everyone has a role to play in the prevention of Adverse Childhood Experiences! Join me at the 2023 #MIACE Initiative Conference to learn about local & national #ACE Prevention Initiatives & inform strategies to improve the lives of Michigan's children. DMgtS.regfox.com/2023aceconfere…