
Mat Edick
@mjedick
Director, Center for Strategic Health Partnerships, MPHI & Midwest Genetics Network. Parent of a child w/ Down Syndrome. All tweets are my own opinion.
ID: 3890194474
07-10-2015 12:56:08
1,1K Tweet
150 Followers
146 Following








Mat Edick @CSHPatWork The Patient-Centered Outcomes Research Institute @Region4Genetics MPHI Janice Tufte @Poorcountryboy2 RGS Michael Mittelman, MBA, Sec+, AWS + Azure ARCC & partners developed an Anti-Racist Reflective Practice Tool for Community-Academic Researchers & Partnerships: bit.ly/ARCCtool It would be great to see if there are any opportunities for collaboration on this related work... #PCORI2022


Individuals with #RareDisease face crushing economic burden. For individuals with #SickleCellDisease, the burden is multiplied by systematic racial inequities faced by black and brown people. #PCORI2022. Listening to Ashley Valentine Sick Cells at #PCORI2022.


Incredibly powerful storytelling from Ashley Valentine Sick Cells. Appreciate her sharing her family's experience as well as the historical context & legacy of racism on #SickleCellDisease patients & families. #PCORI2022




As #PCORI2022 is winding down, I am left wondering if The Patient-Centered Outcomes Research Institute’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR. What about evidences bases for CER? Thoughts??? #CSHPAtWork


Who are the stakeholders that know and understand how to collect cost of health care utilization data…and how does a research team attract them to collaborate? Listening to experts from RTI International, NPAF, PA Department of Human Services, and @pcori at #PCORI2022





