TELEHEALTH UPDATE: The House passed the Department of Health and Human Services’ funding bill yesterday, including telehealth extensions. Under the proposal, Medicare telehealth flexibilities would be extended by 2 years. They are not permanent so there is still work to be done.

The bill is now headed to the Senate for a vote before the Jan. 30th deadline. Thank you to everyone who called their members to urge them to support telehealth extensions for Medicare. You can still call your Senator & ask them to support the telehealth. congress.gov/members/find-y…

It's with great sadness that I share the passing of Jennifer. I did not know her well but I was so grateful that she came on our podcast to share her experiences of living with ME and cancer. My thoughts are with her husband and children at this time.

Get the latest on OMF research in 2026. ➡️ Add impact to your inbox! Subscribe to OMF newsletter 👉 ow.ly/w0TO50WwRs4 🌟 When you subscribe, you’ll get the latest on OMF research, announcements, campaigns, and more—delivered straight to your inbox. #pwME #MECFS #pwLC

The NIH has 180 days to develop an implementation plan for the ME/CFS Research Roadmap. In 6 months, we SHOULD have a plan to implement the roadmap for biomarkers, treatments & clinical trials. #MEAction partnered w/ #NotJustFatigue to secure this support. meaction.net/post/senate-te…

Love lifts you up. #ValentinesDay

Reminder: Today, we celebrate you and the strength you show every day. You are strong, you are resilient, and you are not alone. 💙

🦦 💕 You’re otterly vital to my ecosystem. Because love should protect what we cherish - including wildlife. 📷: Courtney Edwards | #ValentinesDay2026 #seaotters #seaotter #otters #valentinesday #valentines #animals #oregon #wildlife #love

Sending you real love this Valentine’s Day ❤️

Dr. Christopher Armstrong and his team at OMF's Melbourne ME/CFS Collaboration have been awarded nearly $1 million through the Australian government’s Medical Research Future Fund (MRFF) for the project Energy inefficiency in #LongCOVID and #MECFS. 👉 ow.ly/WaGC50Yh6Qs

Please wish Yoko Ono a Happy Birthday at: wishtreeforyokoono.com/en/ Make a wish Plant a tree Pass it on…

My Docu-short, “Whispers” Julian Lennon: A Retrospective is now streaming. youtube.com/watch?v=wZAWF2…

“We have much more technology available now than we did years ago - proteomics, metabolomics, genomic analysis, immune profiling. We may not yet have ideal biomarkers, but we are finding objective, biological changes.” - Dr. Hector Bonilla Watch here: ow.ly/g7lY50Ykse1

🎉15,000 Participants and Growing: The OMF StudyME Registry 🌎 StudyME is a free global participant registry, serving as a recruitment tool to accelerate research on #MECFS, #LongCOVID, and other related illnesses. Learn more and join StudyME today: ow.ly/8E2S50Yl56r

Open up your email for otterly good news 💙🦦🙌 That's right, our monthly RAFT Newsletter hit inboxes early this morning. If you'd like to stay in the know, make sure to subscribe here: elakhaalliance.org/get-involved/s… #seaotter #Oregon #elakhaalliance #seaotters #nonprofitorg

Today for #MECFSAdvocacyWeek: make your voice heard at the federal level. Contact your reps: solvecfs.quorum.us/campaign/157943 Share our posts: tinyurl.com/MECFSFederalAd… #MECFS #pwME #MEAwarenessHour

Today for #MECFSAdvocacyWeek: make your voice heard at the federal level. This is our most time sensitive action! 1. Contact your reps: solvecfs.quorum.us/campaign/157943 2. Share our posts. Ask others to join in! tinyurl.com/MECFSFederalAd… #MECFS #pwME #MEAwarenessHour @plzSolveCFS

The Virtual ‘Whispers’ Exhibition captures my largest fine art photography event to date—taking the viewer through each room in the Le Stanze della Fotografia, a photography museum in Venice, where the ‘Whispers: Julian Lennon - A Retrospective’ showcase was hosted. Enter the

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/15794… #MECFS #MEAwarenessHour Solve ME/CFS Initiative @meactnet