E Sussex NHS Trust considering trying to evict Karen from hospital which would be a death sentence. We posted an update on our petition on 20 July. To read it scroll down our petition page to UPDATES. Save Karen Gordon (…) chng.it/CGMQTDVvRb Please share. Thanks K H & M

Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."

Dr Claire Taylor Cinnamon rolling along Carole Bruce ME Association Ironic as a cardio physiologist at hospital recently laughed when I told him there was an NHS POTS specialist as he said that the tilt table tests results weren’t reproducible amongst other things, I was pissed as it’s clear what he meant and I ‘put him right’.

Did it say anywhere in the ME Delivery plan why there was not much funding planned? £200,000 research grants for at least 400,000 sufferers in the UK, ‘you do the math’. Hospital scans cost ~£2000, apheresis sessions cost around ~£1000 a time, medication cost, the sky’s the limit

Who can support this.

Another precarious and tortuous case of a severe ME patient in an NHS hospital, sign now so Dil can get a quiet side room in Leeds Teaching Hospital whilst they await immediate discharge home. chng.it/9Fk8KqVX8D

Hey Grok, who was the most popular person to block my profile?

markmooch MarkMooch Based on your public posts, the most popular person who blocked your profile appears to be Giselle Boxer, the entrepreneur from Dragons' Den who pitched Acu Seeds. She's gained notoriety in the ME community. If that's not it, clarify!

We are excited to share the initial findings from Decode ME that people's genes contribute to their chances of developing ME/CFS. Read more here: decodeme.org.uk/initial-dna-re… #DecodeME #MyalgicEncephalomyelitis #MEAwareness

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“Regarding latest press releases I had to write a statement to the ReCOVer trial with BC007. As participant i cannot be quiet about this. It is highly frustrating and dissapointing to me. Please, don‘t get up your hopes on BC007! Thats all I need to say” reddit.com/r/cfs/s/bHxZ6Z…