Amanda Coughlan
@mandacoughlan
Co-Lead of paediatric advocacy group for children with spina bifida and/or hydrocephalus @sbh_pag
Proud mam, healthcare, special needs and disability advocate
ID: 436264349
14-12-2011 00:14:56
350 Tweet
517 Followers
1,1K Following
"A child is more that policy" Thank you for using your beautiful voice to share Harvey's message Ann Marie Flanagan #JusticeForHarvey
How many more times can our children continuously be failed before Micheál Martin Simon Harris TD Jennifer Carroll MacNeill TD will actually act !
"How many children must be lost before they'll count the human cost? " #JusticeForHarvey 😢😢😢 Is Harvey's passing & the uproar across the country enough yet ? Bernard Gloster Jennifer Carroll MacNeill TD Simon Harris TD Micheál Martin Úna Keightley Claire Cahill Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs
And the untold stories… Children living in pain & fear Parents begging for care while battling their own cancer journeys Raising siblings, minding grandparents, helping grieving friends Absolute legends. Anthony Keogh #JusticeForHarvey Stephen Morrison Gillian Sherratt
While I absolutely do not condone Simon Harris being threatened, it’s even more unacceptable if those threats were made towards his children. However, I do find it interesting how it’s immediately getting a Garda investigation. We have been saying for years that Children's Health Ireland is
So incredibly proud of Gillian Sherratt & Stephen Morrison , your strength , dignity and grace in what is every parents worse nightmare is just amazing. I'm sure harvey is just so proud of you both 💙 #JusticeForHarvey
CHI told the The Late Late Show : “We extend our deepest condolences to Harvey’s family. Many of our clinicians have cared for Harvey his whole life and are deeply affected by his passing. We remain available to meet Harvey’s family if and when they wish to do so…” As far as we
We at the Spina Bifida & Hydrocephalus Paeds Advocacy#backus &the The Scoliosis Advocacy Network #BackUs are cautiously optimistic about what this statutory inquiry will look like we commend Gillian Sherratt & Stephen Morrison for their continued dedication to secure this inquiry in the face of such huge loss . #JusticeForHarvey
Harvey was never declared palliative he was declared fit for spinal surgery Children's Health Ireland are blocking HSE access to his file & others, the inquiry pending into CHI must be nothing short of a statutory anything less is a complete slap In the face to families Jennifer Carroll MacNeill TD
We are meeting tomorrow with Simon Harris TD and Jennifer Carroll MacNeill TD. This meeting is of critical importance to every family we and Spina Bifida & Hydrocephalus Paeds Advocacy#backus represent. Over years of advocacy, we have met hundreds of children and families whose lives have been devastated by delays in care
Its has been a long drawn out process to get to this point , there has been too much pain suffering & loss experienced by the families we represent we thank them for their trust in us , utter determination and unwavering support . Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs #justiceforharvey
The Scoliosis Advocacy Network #BackUs Mick Caul Children's Health Ireland 100%! My daughter waited 8 yrs on the list for Orthopedic adult care @ TH under Lucy’s watch She was never seen Fulltime 🦽user, scoliosis, hip dysplasia, tethered cord, 2 club feet & very porous ankle bones, list closed in Nov 24 with an unanswered referral to the Mater Spinal
Hard read but a necessary one for Harvey, for my Tj & for every family who was & continues to be abandoned by Children's Health Ireland in their time of need we will always speak up & do our utmost to ensure these failures are never forgotten & your voices are heard Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs