lisagrono 🇨🇦
@lisagrono
cystic fibrosis advocate, if everyone was more like their dog this world would be even better!
ID: 1020321794002046980
20-07-2018 14:57:27
3,3K Tweet
183 Followers
266 Following
PMPRB_CEPMB We have been fighting for access to lifesaving drugs for a huge part of Madi’s life. Changes to PMPRB are going to make the battle to access these drugs nearly impossible. STOP the changes! @PMPRB_Watch Terry Dowdall Jim Wilson CORD
Nothing's changed at the PMPRB_CEPMB since their hit job on #cysticfibrosis patient groups in the spring. Jean-Yves Duclos, PMPRB has no mandate to opine on clinical value of meds. “Minor” improvements from #Kalydeco, #Orkambi & #Trikafta transform lives. Tell @DougPMPRB to stop now.
Calling on Jean-Yves Duclos, Health Canada and PHAC, Justin Trudeau to #StopPMPRB - do not move forward w Patented Medicines Regs @durhane: "We will continue to fight this bit.ly/3qfMo5U we are not giving up the fight” #CdnPoli #CdnHealth beth Vanstone
David Cochrane Not splintered. Not equal sizes. Majority worked together. Flag illustrates: 31M adult Canadians of which 91.6% vaccinated. Approx 8000 protesters. Zoom in to see the yellow dot.
This #RareDiseaseDay, we're taking a victory lap on the The Quebec Court of Appeal agreeing with arguments presented by the Canadian Cystic Fibrosis Treatment Society to strike down two key provisions of the PMPRB_CEPMB price regulations. A win for all rare disease patients!
We #NeverForget #Mayerthorpe #RCMP officers Brock Myrol, Peter Schiemann, Anthony Gordon & Leo Johnston who were tragically shot & killed 17 yrs ago today while bravely serving Canada #LODD #EOW #Heroes RCMP RCMP Alberta NPF-FPN Vancouver Police Canadian Police & Peace Officers Memorial