lisagrono 🇨🇦 (@lisagrono) 's Twitter Profile
lisagrono 🇨🇦

@lisagrono

cystic fibrosis advocate, if everyone was more like their dog this world would be even better!

ID: 1020321794002046980

calendar_today20-07-2018 14:57:27

3,3K Tweet

183 Followers

266 Following

beth Vanstone (@bethdenniss) 's Twitter Profile Photo

This girl, so brave, so wise and so humble. Living with Cystic Fibrosis and taking each hurdle with a deep understanding of life’s challenges and appreciation for what is good. #inspire #cysticfibrosis #staystrong #inspiration #strength #wise #mygirl

This girl, so brave, so wise and so humble. Living with Cystic Fibrosis and taking each hurdle with a deep understanding of life’s challenges and appreciation for what is good.
#inspire #cysticfibrosis #staystrong #inspiration #strength #wise #mygirl
beth Vanstone (@bethdenniss) 's Twitter Profile Photo

PMPRB_CEPMB We have been fighting for access to lifesaving drugs for a huge part of Madi’s life. Changes to PMPRB are going to make the battle to access these drugs nearly impossible. STOP the changes! @PMPRB_Watch Terry Dowdall Jim Wilson CORD

<a href="/PMPRB_CEPMB/">PMPRB_CEPMB</a> We have been fighting for access to lifesaving drugs for a huge part of Madi’s life. Changes to PMPRB are going to make the battle to access these drugs nearly impossible. STOP the changes!
@PMPRB_Watch <a href="/TerryDowdall/">Terry Dowdall</a> <a href="/mppjimwilson/">Jim Wilson</a> <a href="/raredisorders/">CORD</a>
Canadian Cystic Fibrosis Treatment Society (@cfadvocacynow) 's Twitter Profile Photo

Nothing's changed at the PMPRB_CEPMB since their hit job on #cysticfibrosis patient groups in the spring. Jean-Yves Duclos, PMPRB has no mandate to opine on clinical value of meds. “Minor” improvements from #Kalydeco, #Orkambi & #Trikafta transform lives. Tell @DougPMPRB to stop now.

Nothing's changed at the <a href="/PMPRB_CEPMB/">PMPRB_CEPMB</a> since their hit job on #cysticfibrosis patient groups in the spring. <a href="/jyduclos/">Jean-Yves Duclos</a>, PMPRB has no mandate to opine on clinical value of meds. “Minor” improvements from #Kalydeco, #Orkambi &amp; #Trikafta transform lives. Tell @DougPMPRB to stop now.
MDvoiceforaccess (@mdvoiceforacces) 's Twitter Profile Photo

Still time to let our government know changes are needed and physicians want a voice at the table so access is not limited! bradfordtoday.ca/local-news/upc…

CORD (@raredisorders) 's Twitter Profile Photo

Calling on Jean-Yves Duclos, Health Canada and PHAC, Justin Trudeau to #StopPMPRB - do not move forward w Patented Medicines Regs @durhane: "We will continue to fight this bit.ly/3qfMo5U we are not giving up the fight” #CdnPoli #CdnHealth beth Vanstone

Keith Golinsky (@keithgolinsky) 's Twitter Profile Photo

Today - like everyday😥 I remember my brother Kyle. But today #BellLetsTalk remember that you are not alone, people want to help, there is help out there and it’s ok to not be ok. #suicideprevention #yournotalone Thank you Bell for being a mental health champion.

Today - like everyday😥 I remember my brother Kyle. But today #BellLetsTalk remember that you are not alone, people want to help, there is help out there and it’s ok to not be ok. #suicideprevention #yournotalone   Thank you Bell for being a mental health champion.
beth Vanstone (@bethdenniss) 's Twitter Profile Photo

Severely reducing drug prices by federal regulation will harm not help patients | National Newswatch: nationalnewswatch.com/2022/02/05/sev…

Severely reducing drug prices by federal regulation will harm not help patients | National Newswatch: nationalnewswatch.com/2022/02/05/sev…
Ardoise16 (she/elle) (@ardoise16) 's Twitter Profile Photo

David Cochrane Not splintered. Not equal sizes. Majority worked together. Flag illustrates: 31M adult Canadians of which 91.6% vaccinated. Approx 8000 protesters. Zoom in to see the yellow dot.

<a href="/DavidWCochrane/">David Cochrane</a> Not splintered.  Not equal sizes.  Majority worked together.  Flag illustrates: 31M adult Canadians of which 91.6% vaccinated.   Approx 8000 protesters. Zoom in to see the yellow dot.
Canadian Cystic Fibrosis Treatment Society (@cfadvocacynow) 's Twitter Profile Photo

This #RareDiseaseDay, we're taking a victory lap on the The Quebec Court of Appeal agreeing with arguments presented by the Canadian Cystic Fibrosis Treatment Society to strike down two key provisions of the PMPRB_CEPMB price regulations. A win for all rare disease patients!

This #RareDiseaseDay, we're taking a victory lap on the The Quebec Court of Appeal agreeing with arguments presented by the Canadian Cystic Fibrosis Treatment Society to strike down two key provisions of the <a href="/PMPRB_CEPMB/">PMPRB_CEPMB</a> price regulations. A win for all rare disease patients!
Adam Palmer (@chiefpalmer) 's Twitter Profile Photo

We #NeverForget #Mayerthorpe #RCMP officers Brock Myrol, Peter Schiemann, Anthony Gordon & Leo Johnston who were tragically shot & killed 17 yrs ago today while bravely serving Canada #LODD #EOW #Heroes RCMP RCMP Alberta NPF-FPN Vancouver Police Canadian Police & Peace Officers Memorial

We #NeverForget #Mayerthorpe #RCMP officers Brock Myrol, Peter Schiemann, Anthony Gordon &amp; Leo Johnston who were tragically shot &amp; killed 17 yrs ago today while bravely serving <a href="/Canada/">Canada</a> #LODD #EOW #Heroes <a href="/rcmpgrcpolice/">RCMP</a> <a href="/RCMPAlberta/">RCMP Alberta</a> <a href="/npffpn/">NPF-FPN</a> <a href="/VancouverPD/">Vancouver Police</a> <a href="/CPPOM/">Canadian Police & Peace Officers Memorial</a>
CORD (@raredisorders) 's Twitter Profile Photo

Where is the RARE in federal budget? $500 million per year committed Canadian Rare Disease Strategy to launch in 2022 SHOULD have been prominent! Rare disease community is assured money is in fiscal plan but “execution plan” is not ready to go.