3/4 Episode 2️⃣: We’re joined by Geraldine Renton who discusses raising her son Ethan, with Hunter syndrome. She shares her journey with and without Ethan and how writing has helped her find courage and a path forward in the midst of grief. rarelyheard.org itsmeðan

Posts from It's me & Ethan for 12/13/2021 - eepurl.com/hPVQoP

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1/2 Listen here: rarelyheard.org Ep1️⃣:'It just takes time and I wish I’d had somebody telling me that'- @Shelley_Simmo Ep2️⃣:'I wanted my boys to remember me laughing with Ethan, not crying with Ethan.'- itsmeðan Ep3️⃣:'It will bring out the best in you'-Dan White : Disability Campaigner / Author / ♿️

My latest piece, we need to talk about grief geraldinerenton.com/conversations-… OUR HOUSE Grief Rare Diseases Brian Dowling Beacon for Rare Diseases HealGrief.org Fireflybyleckey Jen Hogan⚡ #grief #RareDiseaseDay #griefireland #griefbecomeshim #irish #huntersyndrome #ethanandme #itsmeandethan

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Posts from It's me & Ethan for 02/09/2022 - eepurl.com/hUkLY5

1 week to go!!😍

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It's #InternationalWomensDay2022 come along this Sunday Connacht Hotel for an afternoon dedicated to extraordinary women like us 😉We all know how amazing women are, come along and hear their stories! gdg.community.dev/events/details… #InternationalWomensDay #google

What an amazing event to have been a part of! #IWD2022 #BreakTheBias It was an honour to have had the chance to give a small talk amongst all these incredible women (only some pictured below). Thanks to #GDGGALWAY for inviting me and Connacht Hotel for the fabulous food & room!

#PatientGroups provide the emotional support after a rare #Diagnosis and help members live with and manage their #RareCondition Without rare disease patient groups, rare patients and their families would be left overwhelmed, isolated & misunderstood RT to amplify this message!

Today is #MPSAwarenessDay We're sharing Geraldine Renton’s (itsmeðan) #RarelyHeardPodcast episode where she discusses how her world changed forever in 2020 when her son Ethan passed away due to #HunterSyndrome Listen now and share #ChaseTheSigns rarelyheard.org/rarely-heard-s…

Where are the supports for the ageing carers and their ageing adult children? m.facebook.com/story.php?stor… Irish Independent Anne Rabbitte Carers Week Family Carers Ireland Jen Hogan⚡ Sean Canney TD Hildegarde Naughton Éamon Ó Cuív

Respite" issue" now on RTÉ - issue is staffing - real issue is the staff aren't paid enough for the work & care they do. Government been getting away with paying f-all to Family Carers Ireland & now doing it to those who choose to work as carers. Pay carers in & out of home fairly!

Posts from It's me & Ethan for 06/06/2023 - eepurl.com/isSuQ6