I AM ALS(@iamalsorg) 's Twitter Profileg
I AM ALS

@iamalsorg

I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.

ID:1064599477342875649

linkhttps://iamals.org/ calendar_today19-11-2018 19:21:09

5,1K Tweets

26,0K Followers

799 Following

I AM ALS(@iamalsorg) 's Twitter Profile Photo

May is ALS Awareness Month, and we can't think of a better way to recognize it than with our annual flag display. But this year we will have even more to do in DC! We hope you'll join us. Learn more: iamals.org/2024-i-am-als-…

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The Write Stuff Team wants to help you tell your story and write about your ALS experience. They host visiting writers for inspiration, provide prompts to get your creativity flowing, and foster a positive environment for feedback. Join the team: iamals.org/action/the-wri…

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Today's the day! Join author Jonathan Eig and Zac Brown Band's John Driskell Hopkins of @HopOnaCure to discuss Jonathan's book 'Luckiest Man: The Life and Death of Lou Gehrig' at 7pm! Sign up: iamals.org/action/the-luc…

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There are only a few days left to add a name to a flag as part of the ALS Awareness Month display in Washington, DC. Add your name or the name of a loved one by May 2nd: iamals.org/action/2024fla…

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Social hour is TODAY at 4pm ET! It's not too late to sign up if you haven't yet: iamals.org/action/april-s…

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I AM ALS(@iamalsorg) 's Twitter Profile Photo

📢 Join us in urging U.S. Senators to support ALS caucus research funding. More federal money means saving lives and advancing treatments!

iamals.org/action/senate-…

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We are exactly ONE MONTH out from the ALS Community Summit! Join us in Washington DC May 29th - June 1st for this first-of-its-kind event. Find everything you need to know on our landing page: iamals.org/2024-i-am-als-…

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The Write Stuff's first of two Eyegaze panels is TONIGHT at 6:30pm ET! It's not too late to register, and you won't want to miss it: iamals.org/action/eyegaze…

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I AM ALS's Clinical Trials Team is inviting you to their first Clinical Trials 101 webinar! This will kick off a series of webinars covering various clinical trial topics, but this first one just covers the basics. Sign up to join on May 9th at 6pm ET. iamals.org/action/clinica…

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MISSOURI: the Legislative Affairs Team needs you! Every day they approach legislators about important issues. But their approach will be way more effective with Missouri legislators if they have someone from Missouri to back them up. Sign up: iamals.org/action/help-th…

MISSOURI: the Legislative Affairs Team needs you! Every day they approach legislators about important issues. But their approach will be way more effective with Missouri legislators if they have someone from Missouri to back them up. Sign up: iamals.org/action/help-th…
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I AM ALS(@iamalsorg) 's Twitter Profile Photo

Reminder: I AM ALS and Live Like Lou are presenting an informative virtual webinar about Lou Gehrig on May 6th! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…

Reminder: I AM ALS and @LiveLikeLou4 are presenting an informative virtual webinar about Lou Gehrig on May 6th! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
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All 32 MLB teams are participating in celebrations of the fourth annual Lou Gehrig Day! Find the event closest to you: iamals.org/lou-gehrig-day…

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I AM ALS(@iamalsorg) 's Twitter Profile Photo

We're counting down the days until May 1st, when we get to kick off ALS Awareness Month with this awesome event! It's not too late to sign up: iamals.org/action/the-luc…

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April social hour is next week! Gather with your fellow advocates on April 30th for an hour of low-key social time. Don't forget to sign up if you haven't already in 2024. iamals.org/action/april-s…

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Maycee Wilkie cared for her father before he passed from ALS, and she's launching an awareness campaign called On Your Mark that focuses on self care and gratitude. Learn more from Maycee at the upcoming webinar on May 3rd! iamals.org/action/on-your…

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Sign up to receive email notifications from I AM ALS to ensure you never miss breaking news from us! iamals.org/action/join-th…

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It's here, it's here!! We just launched our Lou Gehrig Day 2024 landing page with everything you need to know about the festivities on June 2nd and beyond. Check it out and find an event near you: iamals.org/lou-gehrig-day…

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Emily Cerbone(@Emmazi) 's Twitter Profile Photo

Interested in learning about technology or have questions?

Join the first of our two-part series on on April 29 and hear from panel experts comprised of current eyegaze users.

Attendance is free but registration is required. See you there!

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I’m Dying To Tell You Podcast with Lorri Carey(@LorrisPodcast) 's Twitter Profile Photo

In episode 94, Sara Bennett who is a young mother of two sons ages 5 & 7, shares how she is working with an end-of-life doula. This quote illustrates what it's meant to her. Direct Listen Link: bit.ly/ListenOnAppleP… or imdyingtotellyoupodcast.com Her ALS Story I AM ALS

In episode 94, Sara Bennett who is a young mother of two sons ages 5 & 7, shares how she is working with an end-of-life doula. This quote illustrates what it's meant to her. Direct Listen Link: bit.ly/ListenOnAppleP… or imdyingtotellyoupodcast.com @HerALSStory @iamalsorg #als
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I AM ALS(@iamalsorg) 's Twitter Profile Photo

When a loved one is first diagnosed with ALS, there is so much to think about, it can be overwhelming. Check out this resource that will guide you through the initial steps of being and becoming a caregiver to someone living with ALS. iamals.org/get-help/careg…

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