Great news! #MEAction & the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by The STTI Honor Society of Nursing. Details: meaction.net/2024/11/18/mea… #pwME #MECFS #MyalgicEncephalomyelitis

2/3) Here is a assessment by Brian Hughes, who states “Something seems very off about how it’s all done”. He discusses the critically flawed methods used by the authors: thesciencebit.net/2024/11/28/tha…

The latest paper from the Cornell Center is available at the PNAS website. Our study implicates T cell exhaustion in ME/CFS.

Incredibly honored to have received the Mayo Model of Care Award tonight. I am so thankful to my friends and colleagues for their support of me and the patients we serve 💙 MayoClinicGIM

This work underlies Simmaron Research's #rapamycin trial, which we are so excited to move into the next phase with AgelessRx in collaboration with Bateman Horne Center Stephanie Grach MD MS David Kaufman and others! simmaronresearch.com

So psyched to have Stephanie Grach MD MS present some early data on Simmaron Research rapamycin study. Without clinicians like Dr Grach, and our other clinical experts me and Avik Roy would have no patients to study. Manuscript is forthcoming! #MECFS #longcovid

Patients with chronic disorders are often dismissed or misdiagnosed. But a new #UBSSW and Jacobs School at University at Buffalo study offers recommendations to help physicians better communicate with—and treat—these patients: tinyurl.com/UBSSW-NeverWor… ⚕ #UBuffalo #Up4TheChallenge Nancy J. Smyth, PhD, LCSW S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic

We found that a significant proportion of the patients who finished the three month trial period of rapamycin (an mTOR inhibitor) showed improvements in both clinical features of the illness (PEM) and saw improvement in blood based markers of autophagy function

We are excited to share some early results of our low dose rapamycin project in #ME, in its pre-print version here. TY to Gunnar Gottschalk, Avik Roy & Dr. David Kaufman for leading it, to all our collaborators & to study patients! #MECFS 1/9 researchsquare.com/article/rs-659…

In our #rapamycin pilot, we developed 2 biomarkers to measure autophagy function & showed that they correlate to positive response in #MECFS. Our bold goal is to generate a biomarker test to predict likely responders to rapamycin. We’re on our way to a 1st for #ME: test-to-treat!

I am devastated by the loss of Minnesota State Representative Melissa Hortman and her husband, Mark, in a horrifying act of violence. Our prayers are with their children and all who loved them, and with State Senator John Hoffman and his wife, Yvette, who were also targeted.

The first paper that uses our Pacing Narrative Study data is now published. Thank you to all who participated! Stephanie Grach MD MS is building a case for vocal differences to detect PEM. She found many discussed such issues during a crash. mdpi.com/2077-0383/14/1… #MECFS #pwME

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s